← Return to Living with High-Risk C-Diff and Preventing Re-Infection

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@virgo1952

Hi Faithwalker007. Yeah. Getting C diff is not fun. Not sure of your c diff back story. I became infected after my colon re-section. I believe I got this bacterial infection while in the hospital, but the symptoms were so similar to my surgery/re-section post healing, the Dr did not order the test for 2 1/2 months after I came home. (By then, I was sending daily emails). I was unaware of the fact that I was in a high risk group (no info or conversation). I finally was tested (positive) and given two rounds of strong antibiotics. Since then, I am aware of the signs and have learned to document, document, document. Hopefully, I will never have to contact this Dr again regarding a possible infection. I know I am lucky to not have reoccurring infections. I am good with adding pre and probiotics (food and supplements) to my diet so I have good bacteria. I wish I had more info to share. Like me, you may get more info from the members than your medical provider. It really helped me figure out what was going on and who I should talk to. Take care. virgo52.

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Replies to "Hi Faithwalker007. Yeah. Getting C diff is not fun. Not sure of your c diff back..."

Thanks virgo52, as far as backstory, it’s pretty straightforward. I contracted my first case from the community, either from Deadwood at one of the casinos, or from church from a fellow member who’s son had it in Denver Children’s Hospital at the time (he was a cancer patient- fully recovered, by the way.) I proceeded to go to the doctor for three weeks and was told I had the stomach flu. Finally ended up in the hospital, severely dehydrated, dangerously low BP, low BS, and tested positive for C Diff and with infectious colitis.
I was started on Flagyl, and Doxycycline, and something else, and continued to dehydrate. It’s a blur, I’m just telling you what they told me. Because I’m epileptic, they had me pretty sedated. They were going to transfer me to Casper or Rapid City, but my bowels would not allow it. They switched me to IV Vancomycin and I began to improve. Another three or four days later, i was well enough to go home. I remained on Vancomycin for two more weeks.
Within four days, I was sick again. They started another course. 14 more days. I was okay until a few months later I received Clindamycin for a skin infection. Wham! The infectious colitis was back and I was tested. C diff was back. They tried metronidazole and the other meds. No luck. Back on Vancomycin it was. Two weeks. Knocked it out.
The next round was about two or three months later and I really don’t know if it was C diff or a stomach bug. All I know is I had severe diarrhea and my PCP said “here’s some Vanco, we are not messing with this.” I took ten days of it and it was gone.
The last round was after my DRG Spinal Cord Stimulator Insertion. I had been tested pre-op and know that I had no active C diff infection. I warned all of my doctors, nurses (pre-and post-op), anesthesiologists, everybody that I was a HIGH-RISK C DIFF PATIENT WITH 4 PREVIOUS BOUTS IN THE PREVIOUS YEAR. NOT A SOUL TOOK PRECAUTIONS OR PASSED THE WORD TO THEIR CO-WORKERS.
I went home the next day after profusely complaining to the FLOOR NURSE.
Within 48 hours, I had C Diff signs and symptoms and within the next 24 hours I had the worst full-blown case of C diff I had ever had. I was literally crawling on the floor to the bathroom for three days. I called my doctor and they started me on vancomycin AGAIN.
I have never been referred to a GI SPECIALIST. I have never been referred to INFECTIOUS DISEASE SPECIALIST. I SIMPLY DO THE RESEARCH AND MAKE SURE I’M OKAY.

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