Liver pre-transplant question

Posted by jodeej @jodeej, Mar 26, 2018

My husband has occasional issues with stomach upset resulting in diarrhea recently. Is this part of his liver issue or is it possibly something else? He went to to work today, but turned around and came right back home because of it. We do go back for his 3 month check-up the week of the 9th, so I can talk to the transplant team about it. I know his liver is really getting worse because his breath is starting to smell and his "brain fog" or cognition is getting worse.
Thanks,
JoDee

@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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What wonderful news, @lisamb! I wish you and your husband all success.

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@lisamb
This is wonderful news! I am completely happy for you and your husband. Thank you for sharing.

Hugs, as you begin the next chapter of your lives.
Rosemary

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@lisalamb so happy to hear your news! Gives me hope that my call will come soon. Been on the wait list since July 10 2017

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@contentandwell hopefully your transplant will be soon. They're waiting for a match for me.

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@jerrydrennan, When my docs thought I might have bile duct cancer, I had to be inactivated from transplant list until a biopsy showed I was cancer free. Tests were negative, and I was able to be reactivated. Therefore, I am not familiar with the staging process, and I appreciate your explanation.

I do have a question for you – What does it mean to be 'passed over' as you have indicated?
Rosemary

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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The nurse coordinator has set me up twice to be staged. I was passed the first time the nurse said there where some other that needed to go before due to health issues. The second time was actually schedule and was canceled by the surgeon 3 weeks before the schedule . If I understand her right there was two many on the active list. Dr wanted to set up around sept. To October to stage me.
I was called on june22 and was told they want to stage me. They have had a lot of transplant done. That's a blessing. ( @lisamb) . I was also told it could be canceled when I go up there for my regular visit in July. I will not expect it to happen so maybe the pass will not be such a hard emotional drop.

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@lisamb congratulations! I'm so happy for the two of you!

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@jerrydrennan I've been praying for you!

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@rosemarya
I forgot the @ on my post

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@jerrydrennan, Thanks for the explanation. I know that the waiting and the unknowing are just plain awful, – however, at least you can take some comfort knowing that Mayo has a protocol based on years of experience. I hope that all continues to proceed favorably for you.
Sending prayers.
Rosemary

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@rosemarya
Thank you so much for the prayers and thoughts. The people at the Mayo are some of the best people I have meet . Being from south Texas, the mayo has been fantastic on working with me on almost all occasions due to my logistics. Have a beautiful day.
Jerry.

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@lisamb

GOD BLESS YOU BOTH.

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@jerrydrennan
I'm a newbie caregiver. What does it mean to be staged?

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@myson
Hello
From what I have been told and read
Staging for me is looking at the area that has cancer ,liver or bile duct. And to make sure that the cancer has not spread to other organs or lympnoids. I hope one of the moderators can send a link to staging. I am not versed on how to add links.
This procedure is done before I can get activated. If the cancer has not spread then I should get activated.
If the cancer has spread then I will be removed from transplant.
I hope this helps I am not the best at this buy I will help where I can. I not up on your story so ,info is free so is prayers.
God bless
Jerry Drennan

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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@myson, This staging refers to liver patients. Liver transplants are more common than lung trasplants and so you will be reading more about liver than about lung transplant.
If you would like to start a new discussion about lung transplant patients, I will be happy to help you to get one started. Just let me know. Okay?
Rosemary

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