Liver pre-transplant question

@beckyjohnson @contentandwell my husband is A, which is very common.

My husband was staged in march and is now at meld 33 with type O blood. He was activated in march also , right after staging surgery. Our phones have been on 24/7 waiting for the call. Needless to say, still waiting!

@contentandwell Tim's got bumped 21 points 6 months after listed. Since then it's been 2 points every 3 months. It will go to 32 in August. From reading your other post, I'm guessing you got transplanted earlier due to your blood type. B isn't as common.
Blessings,
JoDee

@jodeej I always figured my blood type played a part in it too, but my husband is somehow convinced it was because I was deteriorating, and also because he figures I was a good candidate and would be a success story, which I was. During my wait I lost weight to get my BMI below 30 (it’s about 26 now) and increased my exercise. I was really very healthy going into the transplant, except for the ravages that cirrhosis had dealt me in the last 6 weeks. I shudder to think of that time — water leaking out of my feet and legs, I was retaining so much fluid. I gained 35 pounds of fluid. I was incredibly well, except for occasional HE episodes, up until then so I guess overall I have to figure I was very fortunate.
JK

@lisamb I am unfamiliar with “staging”, what is that? What region are you in? It sounds like it must be one of the ones where getting transplanted happens at a higher MELD due to demand. My region (1) is that way also, but somehow I got lucky.
JK

@jodeej I think A, along with B, tends to get transplanted sooner than O does. I am thinking of you and your husband a lot, i feel like I know you now. I hope this happens soon for him. If I recall you said he was still working. That’s amazing. I had stopped before all of this happened and ended up glad about that because I felt like I would have been somewhat unreliable.
JK

I have stomach and diarrhea issues at times, plus the sweet breath and extreme fatigue. I also don't work as I would be very unreliable because of some of these ongoing complications - going on for the last couple of years. Every case is different.

@contentandwell I actually read that in my research. I will find the link if you want me to.

2 of my 3 children are AB which is the rarest. 30+ years ago they were referred to as ABOs & it was believed that the only way you could be an ABO is if there was an rh- up line which my maternal grandmother was.

@amyintucson You sound a lot like me. My diarrhea and stomach problems were fine when I was able to not be on lactulose though.
You are right, we each seem to have differences in our conditions. I had a lot of symptoms that are typical of cirrhosis and I still do not understand, nor will I ever, why my PCP was not able to put it all together, some were so obvious — plunging platelet count, HE episodes, shaking hands, always cold, sleeping difficulty. I still go to him, I had planned to change this year, but i know I will never trust him to give me a diagnosis with anything other than a very common ailment.
JK