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ktmnep
@ktmnep

Posts: 4
Joined: Feb 17, 2018

Aneurysm, Thalamic stroke

Posted by @ktmnep, Fri, Feb 16 11:59pm

My father was diagnosed with left P1 PCA and PCom junction aneurysm with mass effect over the pons and T2/FLAIR hyperintensity noted in pons, left middle cerebellar peduncle and superior cerebellum. The aneurysm measuring about 3.2(CC) * 2.4(TRA) * 2.7 (AP) cm.
Large dissecting P1 PCA aneurysm was treated with coil embolization by trapping from both left PCom and left P1 PCA.
Postoperatively, patient developed left PCA territory and P1 perforator infarcts (bilateral thalamic). Effective tracheostomy was done.
PEG was done for food intake. VP shunting was done for hydrocephalus.

After six months of coiling procedure, there is no distinct decrease in size of aneurysm and there has been odema according to latest MRI. He is maintaining oxygen saturation in room air. Moving of right upper and lower limb on painful stimuli. Sometimes, left limbs too. There is ever lasting dilatation of left pupil. The position of right hand of body is that of medial rotation with stiffness in both lower and upper right limb. There is irregular sweating from the right side of the body. He himself is an orthopaedic surgeon. What can we do further for his treatment? Any help, suggestions? Can we bring back his tone with physiotherapy ?
I believe in miracles.

REPLY

Hello @ktmnep,

Welcome to Connect. That last statement in your message, "I believe in miracles," – I love it!

I encourage you to view these Q&As on on Connect, where you can also meet a few members who've written about about PCoM Aneurysms.
– Mayo Clinic NeuroChat about Aneurysms and 3D Modeling (New research, Innovative Methods) https://connect.mayoclinic.org/webinar/mayoclinicneurochat-about-aneurysms-and-3d-modeling/
– MayoClinic Neuro Chat about Brain Aneurysms
https://connect.mayoclinic.org/webinar/mayoclinicneurochat-about-brain-aneurysms/

I'd also like to invite fellow members @patriciadip @buffaloriver @lsatenst1 @soloact @lakelifelady @beachgal8 @maryar into this discussion to share their experiences with stroke rehabilitation, further treatment, and regaining mobility. @hump1278 has also talking about spasticity and may be able to offer their experience.

Here is online information about stroke including rehabilitation, with additional links describing the care at Mayo Clinic and how to request an appointment http://www.mayoclinic.org/diseases-conditions/stroke/home/ovc-20117264.

You may also appreciate this article “Stroke rehabilitation: What to expect as you recover” http://www.mayoclinic.org/stroke-rehabilitation/art-20045172?pg=1

@kariulrich, might you have some thoughts for @ktmnep?

What should I do to take suggestion from expert doctors @kanaazpereira ? Rquest an appointment or can i do it from Mayo clinic connect itself ?

@ktmnep welcome and what a wonderful advocate you are for your father! I would recommend having your father's primary physician contacting Mayo Clinic, you may also do this yourself as a direct referral. I can only speak from my experience, but I have found the neurology department at Mayo Clinic Rochester to be quite helpful in understanding my care, especially in regards to the latest treatment and helping decide the best path for my care. Here is a link to get you started: https://www.mayoclinic.org/departments-centers/neurology/sections/request-appointment/ptc-20117069

How do I request an appointment being outside US @kariulrich ? Please provide me a suitable link for second opinion if you can.

Hi, @ktmnep — for this you'd want to contact Mayo Clinic to request an appointment at http://mayocl.in/2ClDe1h. All the best.

@ktmnep

How do I request an appointment being outside US @kariulrich ? Please provide me a suitable link for second opinion if you can.

Jump to this post

@ktmnep I am sorry for the delay in response. I have been looking for a link for Mayo Clinic, I think you may have to inquire through the appointment link. Cleveland Clinic has a direct link for online second opinions: https://www.eclevelandclinic.org/myConsultHome
I hope this helps! If I find any other information I will let you know!

Thank you very much @kariulrich @lisalucier

@ktmnep

How do I request an appointment being outside US @kariulrich ? Please provide me a suitable link for second opinion if you can.

Jump to this post

Hi @ktmnep
Here is the link about International Services at Mayo Clinic https://www.mayoclinic.org/departments-centers/international

On that page you will also find the Request an Appointment button for international patients https://www.mayoclinic.org/forms/international-patient-appointment

I have had 3 thalmic strokes with damage to sensory nerve and the part of the brain that is referred to as the “pain control center ” in the left side of the thalamus
The damage has affected the right side of body with foot drop and extreme “electric shock feeling ”
also continous ” migraine type headaches ”
Has anyone else had anything like this ?
I also have super sensitive to noise everything is extremely loud to me
In my right ear , I wear a headband 24/7 to help drown out the sound and the tightness of the headband helps with the constant headache
Thank you in advance for any information you provide me

@tammynbryan

I have had 3 thalmic strokes with damage to sensory nerve and the part of the brain that is referred to as the “pain control center ” in the left side of the thalamus
The damage has affected the right side of body with foot drop and extreme “electric shock feeling ”
also continous ” migraine type headaches ”
Has anyone else had anything like this ?
I also have super sensitive to noise everything is extremely loud to me
In my right ear , I wear a headband 24/7 to help drown out the sound and the tightness of the headband helps with the constant headache
Thank you in advance for any information you provide me

Jump to this post

Hi @tammynbryan
I moved your message to this existing discussion about thalamic stroke in the Stroke & Cerebrovascular Diseases group (https://connect.mayoclinic.org/group/cerebrovascular-diseases/) so you could meet other members like @catcat @ktmnep and @kariulrich.

You may also appreciate this article “Stroke rehabilitation: What to expect as you recover” http://www.mayoclinic.org/stroke-rehabilitation/art-20045172?pg=1

Have you taken part in a stroke rehab program? How long ago were your strokes?

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