Does anyone know
I am 26 years old and was added to the kidney pancreas rransplant list on feb 21st 2014 can anhbodh tell me about thier transplant experiences and. Parricularlh thier wait time. J also live in washington and am listed in phoenix whT hppens when yoh geg that call how long dk j have to get thier ty
Congratulations on being placed on the transplant waiting list! For me, It was a frightening experience because I did not know what I was facing. It was also hopeful, because I knew that my docs were carefully watching over me.
Time seems to moves slowly. In my case, I became very sick and could not do much of anything. I had to really work at getting some exercise, and my husband had to make sure I would eat. I was afraid of the surgery, and afraid that I would not get a transplant in time. So I cried a lot.
Every one's wait is different, and your medical team will be able to answer questions about your particular condition. Ask your questions to them and believe their answers. They know what they are doing and they know about your needs.
When you get the call, you go right away to your transplant center where they get you ready for surgery. Your transplant team will talk to you about how much time you have to get there.
I received a Liver/kidney transplant 5 years ago. And I am doing great! I wish for you to have a successful transplant when the time is right for you.
I waited 5 1/2 months after I was listed. Waiting times are different for everyone. Organs are very carefully matched to a recipient. So the waiting time is needed for the best organ to become available for you that "matches" you.
I have met people who have waited less time than me, and I have met people who have waited more time than me.
Be patient, and trust that one will be available when you need it.
I am a pancrease transplant receipant any one else on here that has this kind of transplant?
Edited: 01/29/2016 @ 7:01am
Welcome to Connect. I'm glad you found us. I moved your message to this thread because I'd like to introduce you to @sophiadelgado and @rosemarya. See their messages about transplant above.
Sandras, when did you have your transplant? How is the recovery going?
Connect Community Director
Edited: 01/29/2016 @ 7:12am
I'd also like to tag @bszychow, who posted last Sept that she was on the pancreas transplant list https://connect.mayoclinic.org/discussion/i-recently-started-on-the-insulin-pump-after-taking-shots-for-over/
I had to wait 1 year to the date.
Edited: 01/30/2016 @ 1:21am
Sophia, I forgot to add the link to the message with information about being on multiple lists. Here you go: https://connect.mayoclinic.org/discussion/i-have-been-added-to-the-transplant-list-for-a-liver-at/
Sandras, how long ago did you have your transplant and how is the recovery going? How are you doing today?
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.