Kidney renal mass biopsy

Posted by trishanna @trishanna, Jun 20, 2017

Got as far as the CT scanner when doctor in charge presented me with the option to go forward with the biopsy or cancel, and gave me five minnutes to decide. After listing all possible negative results such a procedure could produce – up to and including removal of my kidney – hospital doctor said she could only say there was a 50/50 chance she’d be able to achieve a biopsy specimen due to location of 2.7 cm cyst. I cancelled. Most extraordinary thing medically that’s ever happened to me. To date, I’ve not heard word one from the hospital or from my urologist. I’ve no idea what to do. I’ve had a ct, mri, bladder exam all as a result of small amount of bleeding and pain in my bladder almost two months ago.

@mrmaid11

A year ago I had a MRI of my abdomen where they saw a mass on my kidney. This was followed by a biopsy of the mass and it was found to be malignant. I had few options since I have chronic low kidney function. It was suggested I have an ablation of the mas which is done by a radiologist. They did the ablation successfully and all the followup scans have shown the mass is no longer a problem. I am being watched with different scans every three months in part because I had lung cancer 4 years ago and surgery removed the left lower lob of my lung. So far I have been fortunate in both instances since there hasn’t’ shown to be any other trouble spots. I am comfortable but lingering is always the thought that it is not “if”they will find something but “when” will it be. I am 86 years old , care for a 62 year old special needs daughter so that keeps me going. 0ther tan that, for my age, I am in good health and continue to live independent, cook, take care of my house and drive my car…

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@trishanna, I am thinking about you. I pray for your procedure to go well.

I do live with one kidney (due to a transplant) and I will be here if you want to talk.
Hugs,
Rosemary

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@kanaazpereira

Hi @trishanna,

You might be interested in reading this information from Mayo Clinic, which details the procedure, how you prepare, results, etc of Nephrectomy or kidney removal: http://www.mayoclinic.org/tests-procedures/nephrectomy/home/ovc-20326175

@trishanna, when you are able to, please update us with your progress; Connect has a few members like @charlie1947, and our very own Mentor @rosemarya, who’ve written about their journey and living with one kidney. We wish you all success.

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Two weeks out from surgery – removal of my right kidney. Still do not have results from pathologist – is no news good news, I hope. Healing seems okay but complications from surgery continue. Does anyone know when one can sleep on their right side?

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@kanaazpereira

Hi @trishanna,

You might be interested in reading this information from Mayo Clinic, which details the procedure, how you prepare, results, etc of Nephrectomy or kidney removal: http://www.mayoclinic.org/tests-procedures/nephrectomy/home/ovc-20326175

@trishanna, when you are able to, please update us with your progress; Connect has a few members like @charlie1947, and our very own Mentor @rosemarya, who’ve written about their journey and living with one kidney. We wish you all success.

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Hi, @trishanna. It must surely be a relief to have this procedure behind you. I am afraid that I cannot answer the question about sleeping on your tight side because I did not have that procedure. When I had my transplant surgery, I used pillows to prop me up for a while. Have you tried that? Or even sleeping on the sofa where you can prop with pillows, and also get extra support from the sofa back.

I always like to tell myself that no news is good news. But the unknowing is terrible! Did your surgeon schedule a follow-up appointment? Maybe he is waiting until then to share with you.

You mention complications from the surgery. Can I ask you if this is being treated? Any time there are complications, I believe you are justified to call your doctor and find out what to do about it. After what you’ve gone through, you don’t want any more stress on your body.

Let me know what you find out. I hope you feel better soon.
Rosemary

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@kanaazpereira

Hi @trishanna,

You might be interested in reading this information from Mayo Clinic, which details the procedure, how you prepare, results, etc of Nephrectomy or kidney removal: http://www.mayoclinic.org/tests-procedures/nephrectomy/home/ovc-20326175

@trishanna, when you are able to, please update us with your progress; Connect has a few members like @charlie1947, and our very own Mentor @rosemarya, who’ve written about their journey and living with one kidney. We wish you all success.

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@trishanna, Oops, I just realized that my surgery was in the front lower left quadrant, I’m not even aware of where the surgery was for your procedure. Rosemary

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Ha! My biggest scar is in the front lower right quadrant in the area of one’s appendix, and it itches!!! Follow up with surgeon is the 8th – I’ve lots of questions so I’ll just wait!! Complications include dispute over lungs /oxygen, and now cardiac? For that, I return to my GP next week!! Seems I was perfectly okay presurgery, and suddenly postsurgery not so good. Not especially concerned cause I left home to have my surgery and think all my new medical friends were worried, hopefully incorrectly!! So kind of you to ask. How long before you were able to resume physical activity? I am very worried about my back!!!! And how long did you tire easily?

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@trishanna

Ha! My biggest scar is in the front lower right quadrant in the area of one’s appendix, and it itches!!! Follow up with surgeon is the 8th – I’ve lots of questions so I’ll just wait!! Complications include dispute over lungs /oxygen, and now cardiac? For that, I return to my GP next week!! Seems I was perfectly okay presurgery, and suddenly postsurgery not so good. Not especially concerned cause I left home to have my surgery and think all my new medical friends were worried, hopefully incorrectly!! So kind of you to ask. How long before you were able to resume physical activity? I am very worried about my back!!!! And how long did you tire easily?

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@trishanna – I remember the itching that accompanied the healing. Can you use a lotion on it? My dialysis nurses told me about a lotion called VaniCream. It worked for me after surgery on my dry skin. I find it at the pharmacists counter, not on the shelves.

I am happy that you will be able to see your GP soon to take care of you and to set your mind at ease. I hope that these complications not going to be a problem for you. Are you on many medications? it unfair to compare my timeline with yours because of entirely different procedures. My native kidney(s) were not removed. With my transplant surgery for liver and kidney, I remember that I could not lift ?? lbs for 2 months – I don’t even remember.
Your body probably needs to rest to recover from this surgery.
I wish I could give you the answers that you are looking for! In the time between now and your doctor appointment, start a list of all your questions.
Rosemary

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@trishanna

Ha! My biggest scar is in the front lower right quadrant in the area of one’s appendix, and it itches!!! Follow up with surgeon is the 8th – I’ve lots of questions so I’ll just wait!! Complications include dispute over lungs /oxygen, and now cardiac? For that, I return to my GP next week!! Seems I was perfectly okay presurgery, and suddenly postsurgery not so good. Not especially concerned cause I left home to have my surgery and think all my new medical friends were worried, hopefully incorrectly!! So kind of you to ask. How long before you were able to resume physical activity? I am very worried about my back!!!! And how long did you tire easily?

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Well, my two-month surgical aniversary is Monday and I really have more questions than answers. I’ve recovered physically from the surgery, but still have two problems: I really have to still take catnaps, and blood has returned to my urine, very light and exactly as it was before surgery. Does anyone know if these are normal for my recovery period? Oh, and my “mass” turned out to be a sarcoma – both the type and location very rare. So, now I am seeking a urologist and oncologist experienced with the necessary follow-up. Thankfully, I’ve a clean bill of health so far.

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Hi @trishanna,

Thank you for the update. Here’s some more information about renal sarcomas, which are indeed rare (I’ve copied relevant information for your convenience):
“Sarcoma of the kidney is rare. This type of cancer develops in the soft tissue of the kidney; the thin layer of connective tissue surrounding the kidney, called the capsule; or surrounding fat. Sarcoma of the kidney is usually treated with surgery. More surgery or chemotherapy may be recommended after the first surgery.” https://www.cancer.net/cancer-types/kidney-cancer/introduction

We also have an incredibly informative discussion on Connect, “Diagnosed with sarcoma? Let’s share” https://connect.mayoclinic.org/discussion/diagnosed-with-sarcoma-lets-share/ which I would encourage you to read through, and post your questions there, if you wish.

@rosemarya, would you be able to shed some light on @trishanna‘s symptoms?

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@trishanna, I can relate to the catnaps. Keep in mind that my surgery and recovery was from organ transplant, however, I used to nap daily during my recovery. Even now, I do not deprive myself of a good nap when my body wants one.

That you have a clean bill of health so far, sounds like a good thing.
It sounds like you are doing the right thing, to consult with specialists. One thing that I have experienced is that higher level specialists are best able to provide more answers and information about the ‘rare’ conditions. And that brings peace of mind, to at least know what is happening inside of our bodies and what we are facing.
I am completely unfamiliar with sarcoma, so I am happy that @kanaazpereira has provided some information for you to read and to prepare for your visit. I imagine that you already have loads of questions that you want answered. Are you writing them on as list as you think of them? Are you looking on your own for the additional doctors, or has your surgeon referred you to someone?

Rosemary

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@rosemarya

@trishanna, I can relate to the catnaps. Keep in mind that my surgery and recovery was from organ transplant, however, I used to nap daily during my recovery. Even now, I do not deprive myself of a good nap when my body wants one.

That you have a clean bill of health so far, sounds like a good thing.
It sounds like you are doing the right thing, to consult with specialists. One thing that I have experienced is that higher level specialists are best able to provide more answers and information about the ‘rare’ conditions. And that brings peace of mind, to at least know what is happening inside of our bodies and what we are facing.
I am completely unfamiliar with sarcoma, so I am happy that @kanaazpereira has provided some information for you to read and to prepare for your visit. I imagine that you already have loads of questions that you want answered. Are you writing them on as list as you think of them? Are you looking on your own for the additional doctors, or has your surgeon referred you to someone?

Rosemary

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Thanks for responding, @rosemarya. Yes, so far I feel quite fortunate. The questions regarding specialists is vexing, to say the least. My oncologist had to do research just to keep our first appt, admitted he knows zip about my condition, and recommended a (unknown) oncologist who handles only cases like mine and whose practice would be in some major center, like Chicago. Not particularly practical advice, but I’m assuming that eliminates everyone in our rather large geographical area. My case occurs in something like 0.07% of all sarcoma kidney cases, of which there are maybe 60!!! I do note your suggestion about questions – good idea – but answers are important so Santa is bringing me a hand-held recording device just in the nick of time. Appreciate everyone’s advice, so I welcome any and all questions or suggestions you may have. BTW, how are you doing? Have you had any problems with what must have been a very difficult – liver and kidney – surgery!!! And while napping-needs have eased somewhat, I have decided to follow your lead and nap as necessary. And give up trying to keep to a schedule!!! Merry Christmas to us both – we’ve been good, don’t you think?

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@rosemarya

@trishanna, I can relate to the catnaps. Keep in mind that my surgery and recovery was from organ transplant, however, I used to nap daily during my recovery. Even now, I do not deprive myself of a good nap when my body wants one.

That you have a clean bill of health so far, sounds like a good thing.
It sounds like you are doing the right thing, to consult with specialists. One thing that I have experienced is that higher level specialists are best able to provide more answers and information about the ‘rare’ conditions. And that brings peace of mind, to at least know what is happening inside of our bodies and what we are facing.
I am completely unfamiliar with sarcoma, so I am happy that @kanaazpereira has provided some information for you to read and to prepare for your visit. I imagine that you already have loads of questions that you want answered. Are you writing them on as list as you think of them? Are you looking on your own for the additional doctors, or has your surgeon referred you to someone?

Rosemary

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@trishanna, I agree that wish for a Very Merry Christmas is a perfectly fitting for us!
We celebrated our family Christmas this past Sunday and for me, the ‘Merry” is already happening! I hope that you are feeling okay, and that you can put your medical issues ‘on hold’ until after the holidays.

In response to your question about how I am doing: My rough part was the time and illness leading up to my transplant. After the transplant, my recovery was without incident, and I began to feel better immediately. I have been blessed, and everyday I am thankful for this gift. I try to take good care of these ‘new’ (8+ years) organs. I share the following article as a means of answering your question.
https://connect.mayoclinic.org/newsfeed-post/staying-positive-while-waiting-for-a-transplant/
Good luck with mastering the recording device:-) Let me know how that works for you!
Rosemary

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