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trishanna
@trishanna

Posts: 60
Joined: Apr 27, 2016

Kidney renal mass biopsy

Posted by @trishanna, Jun 20, 2017

Got as far as the CT scanner when doctor in charge presented me with the option to go forward with the biopsy or cancel, and gave me five minnutes to decide. After listing all possible negative results such a procedure could produce – up to and including removal of my kidney – hospital doctor said she could only say there was a 50/50 chance she’d be able to achieve a biopsy specimen due to location of 2.7 cm cyst. I cancelled. Most extraordinary thing medically that’s ever happened to me. To date, I’ve not heard word one from the hospital or from my urologist. I’ve no idea what to do. I’ve had a ct, mri, bladder exam all as a result of small amount of bleeding and pain in my bladder almost two months ago.

REPLY

Hi Trishanna,
Is this a new issue for you? I don’t recall you posting about kidney issues before. I’m bringing @kewpie8484 @predictable @lcamino and @upnorthnancy into this conversation, since I think they may have some related experiences with kidney cysts and/or testing. You might also be interested in reading this discussion:

– CYST ON KIDNEYS https://connect.mayoclinic.org/discussion/cyst-on-kidneys/

Have you called your urologist to follow-up? I don’t think I would wait for them to call you.

@colleenyoung

Hi Trishanna,
Is this a new issue for you? I don’t recall you posting about kidney issues before. I’m bringing @kewpie8484 @predictable @lcamino and @upnorthnancy into this conversation, since I think they may have some related experiences with kidney cysts and/or testing. You might also be interested in reading this discussion:

– CYST ON KIDNEYS https://connect.mayoclinic.org/discussion/cyst-on-kidneys/

Have you called your urologist to follow-up? I don’t think I would wait for them to call you.

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Yes, new issue unfortunately – thanks, Colleen. Just wonder if I’m better off having surgery to remove whatever is there. It’s a problem. I’m a bit angry over what happened and no one has called. Do I get a second opinion from a radiologist or from a urologist?

@trishanna, your anxiety and disgust are understandable, and with those under wraps, a conversation with your urologist is called for — first to find out whether there was a link between the growth on your kidney and the pain and bleeding in your bladder. It’s hard to imagine how those symptoms might be related, so the doctor needs to focus on that when you talk to her/him. The second opinion should come from another urologist rather than a radiologist, who is not certified to deal with kidney diseases (only images from radiology).

Colleen Young has included a link to an earlier discussion of cysts on a kidney, and my own experience is featured in that discussion. If you can take a look at that, you’ll know better about where I am coming from based on my experience. Martin

@predictable

@trishanna, your anxiety and disgust are understandable, and with those under wraps, a conversation with your urologist is called for — first to find out whether there was a link between the growth on your kidney and the pain and bleeding in your bladder. It’s hard to imagine how those symptoms might be related, so the doctor needs to focus on that when you talk to her/him. The second opinion should come from another urologist rather than a radiologist, who is not certified to deal with kidney diseases (only images from radiology).

Colleen Young has included a link to an earlier discussion of cysts on a kidney, and my own experience is featured in that discussion. If you can take a look at that, you’ll know better about where I am coming from based on my experience. Martin

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Yes, thank you – I took heart from your comments about waiting and watching. Just can’t understand this inability to communicate. Radiologist said that the “urologist just sends us his biopsy cases and has no idea of the problems we face. We can’t always do what the urologist wants.” Sounds like you had a doctor with whom you could communicate. My hunt for anothet urologist is on, but the one I have is very good. In our area we”re a bit limited in excellent-to-good doctors. Btw, did you ever have surgery?

Surgery, @trishanna? Yep. A triple-header from my urologist who aimed especially at my prostate and removed a large piece of it. That cleared out a view of my bladder, which was decorated by a small malignant papillary tumor, which he also removed. Six weeks later, he found a dozen more of those little tumors in my bladder and removed them. All of these procedures were performed via transurethral cystoscope. Now five years later, my annual cystoscope exam discovered no new tumors, and I’m doing fine. A tumor on the outside of my kidney has not grown appreciably, so we’re just watching and waiting, not getting ready for any kind of surgery now.

Hi @trishanna,

Here’s some information from Mayo Clinic, about kidney cysts: http://mayocl.in/2tG7SL3
@gailb, I saw that you had mentioned “T2 hyperintence right renal lesion that may represent a cyst,” in the past; do you have any insight for @trishanna?

When I saw my doctor, he did an ultrasound and said they found nothing at the time. Must have been a cyst that resolved itself. Sorry I can’t be more helpful. Gail B

Thank you Gail!

@predictable

@trishanna, your anxiety and disgust are understandable, and with those under wraps, a conversation with your urologist is called for — first to find out whether there was a link between the growth on your kidney and the pain and bleeding in your bladder. It’s hard to imagine how those symptoms might be related, so the doctor needs to focus on that when you talk to her/him. The second opinion should come from another urologist rather than a radiologist, who is not certified to deal with kidney diseases (only images from radiology).

Colleen Young has included a link to an earlier discussion of cysts on a kidney, and my own experience is featured in that discussion. If you can take a look at that, you’ll know better about where I am coming from based on my experience. Martin

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Appreciate your comments. Things move slowly – going for an MRI this week, ordered by my new urologist at a new facility, who said previous MRI was unacceptable because machine used was “too old.” It’s now been 3 months and I never heard from previous urologist, except he was quoted as saying “i must come back and have the biopsy.” My new highly recommended urologist says absolutely not. We will see. i guess.

@predictable

@trishanna, your anxiety and disgust are understandable, and with those under wraps, a conversation with your urologist is called for — first to find out whether there was a link between the growth on your kidney and the pain and bleeding in your bladder. It’s hard to imagine how those symptoms might be related, so the doctor needs to focus on that when you talk to her/him. The second opinion should come from another urologist rather than a radiologist, who is not certified to deal with kidney diseases (only images from radiology).

Colleen Young has included a link to an earlier discussion of cysts on a kidney, and my own experience is featured in that discussion. If you can take a look at that, you’ll know better about where I am coming from based on my experience. Martin

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Hi, @trishanna. Sorry your kidney mass is still haunting you, but it’s good to hear that you may have found a good and attentive urologist. Let me review the points of my own experience that I think provides some questions that your new urologist — or a third one or fourth — should talk over with you.

First, my kidney cyst was a secondary image that appeared in an MRI of my bladder, ordered by my urologist after resection of my prostate. In fact, the cyst was (and still is) located on an adrenal gland on the outside of my kidney. It became a subject of interest to my nephrologist, who was diagnosing and treating my hypertension, the cause for which was a mystery. She knew that adrenal tumors can become rogue glands that produce excess amounts of aldosterone, an adrenal hormone that plays a central role in regulating plasma sodium and potassium and arterial blood pressure. But my hypertension was caused by an inherited kidney condition, not an adrenal tumor, and later MRIs showed that the tumor had not grown and remained the consistency of a cyst. So we are waiting watchfully.

Is your blood pressure a problem, @trishanna? Approximately where is the mass located– in the kidney or on it? Are there any other irregularities that might be blamed on the mass? For example, kidney function, imbalances in electrolytes, excess proteins in your urine, excretion of red blood cells? Has the mass shown any growth over time? Perhaps your new urologist can clarify more in these respects and thereby give you what I got from my medical team — confidence that my condition is manageable as is and that a decision about surgery can be made calmly and deliberately when the evidence becomes convincing.

@predictable

@trishanna, your anxiety and disgust are understandable, and with those under wraps, a conversation with your urologist is called for — first to find out whether there was a link between the growth on your kidney and the pain and bleeding in your bladder. It’s hard to imagine how those symptoms might be related, so the doctor needs to focus on that when you talk to her/him. The second opinion should come from another urologist rather than a radiologist, who is not certified to deal with kidney diseases (only images from radiology).

Colleen Young has included a link to an earlier discussion of cysts on a kidney, and my own experience is featured in that discussion. If you can take a look at that, you’ll know better about where I am coming from based on my experience. Martin

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Thanks for your comments. Is waiting and watching a problem for you? Part of my problem with the original urologist is that he told me nothing, which is how much, therefore, that I know!Only problem is the original: blood in the urine. Still there, but if I understood properly, the kidney mass CANNOT be the cause, so I actually have two problems. Won’t know anything new until after the MRI!

@predictable

@trishanna, your anxiety and disgust are understandable, and with those under wraps, a conversation with your urologist is called for — first to find out whether there was a link between the growth on your kidney and the pain and bleeding in your bladder. It’s hard to imagine how those symptoms might be related, so the doctor needs to focus on that when you talk to her/him. The second opinion should come from another urologist rather than a radiologist, who is not certified to deal with kidney diseases (only images from radiology).

Colleen Young has included a link to an earlier discussion of cysts on a kidney, and my own experience is featured in that discussion. If you can take a look at that, you’ll know better about where I am coming from based on my experience. Martin

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Hi, @trishanna. Waiting and watching has become the normal for me. At my stage in life (as a senior senior citizen), after cancer in my bladder (all removed and not recurring yet) and harassed by prostate growth, there could be some malignant spots down low in my groin, but watchful waiting is the way to go unless some real discomfort occurs. So I watch pretty intensely for symptom signs and try to hoodwink my medical team into another MRI every year to see whether any masses are showing up or getting larger. So far, so good. I don’t plan on any more surgery, although I’ll consider it if it offers the chance for a cure or maximum recovery. Martin

A year ago I had a MRI of my abdomen where they saw a mass on my kidney. This was followed by a biopsy of the mass and it was found to be malignant. I had few options since I have chronic low kidney function. It was suggested I have an ablation of the mas which is done by a radiologist. They did the ablation successfully and all the followup scans have shown the mass is no longer a problem. I am being watched with different scans every three months in part because I had lung cancer 4 years ago and surgery removed the left lower lob of my lung. So far I have been fortunate in both instances since there hasn’t’ shown to be any other trouble spots. I am comfortable but lingering is always the thought that it is not “if”they will find something but “when” will it be. I am 86 years old , care for a 62 year old special needs daughter so that keeps me going. 0ther tan that, for my age, I am in good health and continue to live independent, cook, take care of my house and drive my car…

@mrmaid11

A year ago I had a MRI of my abdomen where they saw a mass on my kidney. This was followed by a biopsy of the mass and it was found to be malignant. I had few options since I have chronic low kidney function. It was suggested I have an ablation of the mas which is done by a radiologist. They did the ablation successfully and all the followup scans have shown the mass is no longer a problem. I am being watched with different scans every three months in part because I had lung cancer 4 years ago and surgery removed the left lower lob of my lung. So far I have been fortunate in both instances since there hasn’t’ shown to be any other trouble spots. I am comfortable but lingering is always the thought that it is not “if”they will find something but “when” will it be. I am 86 years old , care for a 62 year old special needs daughter so that keeps me going. 0ther tan that, for my age, I am in good health and continue to live independent, cook, take care of my house and drive my car…

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Thanks for posting – I find your words encouraging!! My right kidney will be removed on Friday – condition unknown. A bit scary at 78, and I’ve a relative who needs my care, so I am less worried about possible cancer than about being able to do for the two of us!!!!

Hi @trishanna,

You might be interested in reading this information from Mayo Clinic, which details the procedure, how you prepare, results, etc of Nephrectomy or kidney removal: http://www.mayoclinic.org/tests-procedures/nephrectomy/home/ovc-20326175

@trishanna, when you are able to, please update us with your progress; Connect has a few members like @charlie1947, and our very own Mentor @rosemarya, who’ve written about their journey and living with one kidney. We wish you all success.

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