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coastalgirl
@coastalgirl

Posts: 54
Joined: Mar 29, 2016

Kidney recipient

Posted by @coastalgirl, Jun 28, 2016

Hello fellow transplant friends!! I am years post kidney transplant and doing well. Have learned a lot on this journey. Happy to share any knowledge I have sndv encourage you through this process!!

REPLY

Hi coastalgirl, I,too, am years (7) past transplant and doing well!! You, me, and all other recipients deserve a pat on the back, for taking care of ourselves and honoring the new life gift we have received.
How long ago was your transplant? And did you have a deceased donor or a living donor? I would love to hear from you about your continuing journey.
Rosemary

@rosemarya

Hi coastalgirl, I,too, am years (7) past transplant and doing well!! You, me, and all other recipients deserve a pat on the back, for taking care of ourselves and honoring the new life gift we have received.
How long ago was your transplant? And did you have a deceased donor or a living donor? I would love to hear from you about your continuing journey.
Rosemary

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Hi Rosemary. My transplant was June 1, 2010. I was fortunate enough to have a live donor and never be on dialysis. I made it down to 6% kidney function at time of transplant and was still not on dialysis. I remained diligent in nutrition and trying to stay as healthy as possible and all the while working a full time job and owning my own business.
Much needed drastic lifestyle changes post-transplant required me to sell my business and just last year retire early from my career which I loved but hopefully I will find some balance and some peace in this new journey.
Continuing to push past my body’s ability reactivated my childhood asthma and i have developed fibromyalgia and chronic fatigue but I am now learning to listen to my body and find joy in the things that truly matter most in life. Working through these issues in a holistic approach is teaching me so many things about our amazing body that I have developed such a love for learning more and sharing to help others.
I have a desire to help others find their way through the transplant process and live a more productive life, if that is what they choose, so have signed up to be a mentor. Found other transplant friends locally and we started a support group. That has been such a blessing.
Please share what you will about your journey. Thank you for your support!!

@rosemarya

Hi coastalgirl, I,too, am years (7) past transplant and doing well!! You, me, and all other recipients deserve a pat on the back, for taking care of ourselves and honoring the new life gift we have received.
How long ago was your transplant? And did you have a deceased donor or a living donor? I would love to hear from you about your continuing journey.
Rosemary

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Hello coastalgirl, my new transplant friend! As transplant recipients, I feel that we share a powerful bond thru living a miracle and our persistent journey in learning and taking care of ourselves.
I received my transplant in April, 2009. I received both a liver and a kidney from a deceased donor. I lived with a liver disease for around 8 years before it progressed to cirrhosis and need for a liver transplant. I was listed in Nov. 2008; and had to be removed in mid Jan. 2009 due to possible cancer in bile ducts. My team locally was unable to make a diagnosis and they arranged for me to be seen at Mayo. While waiting for my appointment with specialists at Mayo, MN, I suffered acute renal failure. ICU and dialysis for a week, then airlifted to Mayo. I was able to be re-evaluated and was placed on transplant list in Mar 2009. This time for both liver and kidney. I had to continue dialysis up until my transplant. And was blessed by my transplant in April. I have always been healthy and have taken good care of myself, so my health returned immediately. It did take me a while to regain my strength and endurance levels.
I completely agree with you about the need to listen and be aware of what our body is telling us!
I think that it is great that you have started a local support group for transplant friends. From reading your posts, I can tell that you promote a very positive outlook.
Rosemart

Hi there. I'm new to this group and I just received a kidney transplant 9 days ago! My concern is weight loss. Since being discharged, I've lost about 8 pounds. I'm urinating a lot (after not urinating for close to 3 years) and, I have a call in to my case manager but she hasn't gotten back to me as of yet. Any thoughts? Concerns??

@mikechevy51 welcome! You picked a great place to ask. I can't answer this with any authority because I've never had a transplant, but it does make sense that if you are urinating s lot that you'd lose some water weight.
JoDee

@mikechevy51

Hi there. I'm new to this group and I just received a kidney transplant 9 days ago! My concern is weight loss. Since being discharged, I've lost about 8 pounds. I'm urinating a lot (after not urinating for close to 3 years) and, I have a call in to my case manager but she hasn't gotten back to me as of yet. Any thoughts? Concerns??

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@mikechevy51, I wish you a Good Morning and a Good New Life! Congratulations on your kidney transplant.

I am thrilled to hear this great news. I am a liver/kidney transplant recipient, going on 9 wonderful years. I want to welcome you to Mayo Connect. We have many amazing conversations and miracles happening here (including you) . I invite you to browse the discussion, and to join in anywhere with comments or questions.

After my transplant, I was pretty much skin-and-bones. It was especially evident due to the release of excess fluids that my organ failure had caused me to collect. It took me months to get back to a normal weight. I know that you are probably pushing lots of liquids since your transplant and that is great. So after years of restrictive diet, and now the liquids, and the new meds, My nonmedical thought is that if you are feeling well, and getting the necessary nutritional needs you are on the right path. But don't depend on my opinion: You did the absolutely right thing to call your case manager:-)

I want to invite some members who are very much involved in the World of Kidney Transplantation. I think they would want to meet you, and they might have some experiences of their own to share with you.
@ca426, @peterm53, @doogiie02, @ktaubman, @amberann, @gabinator, @hkvanhouten, @mauraacro, @skittles25 Do you have any thoughts to share with our new member and new kidney recipient, @mikechevy51,

mikechevy51, Would you send us an update?
Rosemary

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