Mayo Clinic Connect
I have just started using this site so this is my first message.
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor, safetyshield, luckygirl ... see all
Oh, just want to say something and then i will sign off. I gave my phone number to theresa and colleen. So i now can be contacted.
But i need to say one more time that i feel much safer than i did last week. To have our online community care so much and wonder if i was okay was not expected and it has so overwhelmed me with gratitude. I will definitely not do stupid things without checking in with you guys first! Blessings
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Thanks for reply. I think I will take break from mental health since it’s been destabilizing for me.
Liked by Teresa, Volunteer Mentor
Yes, I was in a very bad car accident where my car was t-boned directly hitting my side, then both cars ricocheted and hit again. It was 1985, and seat belts were not required, so of course I didn’t have one on. I was thrown all around the front driver’s seat, hitting and breaking the windshield, the passenger seat, the steering wheel, and the driver’s window. I was unconscious for about 1/2 hour, and when I came to, the firemen were cutting me out with the jaws of life. I remembered feeling like I was in a samadi tank, which is a sensory deprivation tank where it is perfectly back, noise-free, and you are floating naked in skin temperature liquid. I knew I was waiting to be told it was ok to emerge. I felt complete peace and contentment in the tank. After awhile I became aware of a white light shining in a circle around the outside edge of what looked like a round door. Suddenly I heard someone saying, “lady, lady wakeup, are you ok?” He repeated that a couple of times before I became conscious. My head was laying on the driver side door where the window had been. In my mind I was thinking, don’t move, your neck may be broken, and keep your muscles relaxed. They got me out and I was taken to the hospital. It wasn’t until my husband was taking me home later that the experience came flooding back I told him that I thought I might have died briefly and that I no longer had a fear of dying because one second you are here and the next you’re not but you don’t even know it. Also, the feeling of love and peace I had was overwhelming. I think that addedto my calmness when I awakened. Remarkably, I had minimal injuries, no broken bones and no cuts. I did have some back, head, and neck problems and a pretty bad concussion. I’m pretty sure that’s when the back problems that still plague me today began. I remember the feeling of peace and love and can recreate those feelings whenever I meditate. I’m not religious, but I do believe our minds or consciousness go somewhere when we die. I wasn’t aware of my body, but whatever it is that makes me, “me” was there. I think perhaps that’s what is called, spirit. My experience still intrigues and calls to me now 38 years later. That’s the best description I can give, although it is entirely inadequate. Gail
Liked by Ballred, Teresa, Volunteer Mentor
@johnhans and @elizabethbryant Thanks to you both for encouraging @brit in the idea of getting a second ENT opinion. You are such great encouragers! Thanks to all of you! Teresa
Johnjames, thanks so much for telling us about the pain specialist . i am praying that you will have more and more strength each day. I did not know that there are service dogs specifically for psych issues. I am going to look that up. My english bulldog serves the purpose for now. I lost my bassette hound last year at the age of 14. Long life for a bassette. My chow mix had also passed 6 months earlier. I got my puppy before gracie died because i knew i wouldn’t do well when she passed. I stayed with my chow, louie, and of course with gracie as i had to make the decision to let each of them go. I still can’t look at their pictures because it is still too traumatic. But louie did live 11 years which is long for his breed.
Oh…i used to work in rehab/hospice/alzeiheimers (wrong spelling there) facilities and we brought in petting zoos for our patients. We actually brought into the building and even up the elevator a llama, goat, pigs and rabbits and all sorts of unusual animals. They sat on the beds (well, not the llama and goat)! And everyone came out of their yukky mental and physical stuff they were dealing with. Even me! I carried a baby pig around all day but, unfortunately, the zoo wouldn’t let me take him home. They found me hiding in a closet with him but they heard his squeeks through the door and found us.
It sounds like you have a loving wife and your comment about not wanting to leave her alone to suffer if you were “not here” is extremely compassionate and sensitive. Those who take their own lives have no idea of the life-long trauma they leave for their loved ones. It sounds like, even though you live with such mental and physical pain, you put your family first, and friends. Please keep us informed as to what is happening with you. You are definitely a role model and i feel encouraged when you share. Blessings.
@johnjames Thanks for being part of Mayo Connect. You have wonderful gifts of insight and encouragement. We value your presence, your words and your experiences here in our online community. We are pulling for you and wish you many more years! Teresa
@ihatediabetes It’s important to take care of yourself and I’m glad to see that you can do that. Please rejoin us whenever you are ready. You will be welcome! Best wishes, Teresa
@gailb Thanks for sharing that remarkable experience! We are glad that you are with us today. Teresa
God Bless you sweetheart…….Our Good Lord was with you and remains by your side…..always. You are in my thoughts and prayers
@johnjames Thanks for your post about your fox hole. It doesn’t sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that “safe place” is very important. Just a message to the rest of our group, @georgette12 @safetyshield @jimhd @rspaulding @lesbatts @overwhelmed @ihatediabetes @johnhans, please share with the group, if you like, where your “safe place” is. Thanks to you all for your wonderful kindness and support to each other. As I’ve said before, you all really bless me! Teresa
Hello Patti! Thank you for posting this question. This will help other members in the future who are here looking to connect regarding the topic oral thrush.
I spoke with one of our knowledgeable physicians in ENT about your thrush diagnosis. He suggested making a second opinion appointment with an oral dermatologist that specializes in oral thrush. They need to take cultures, diagnose and treat from there. He said most of the time thrush is not “flaky”. Do you remember if your regular doctor took a culture?
Being an advocate for your own healthcare is top priority. Please be safe and make an appointment with a specialist. Here is a link to our appointment line http://mayocl.in/1mtmR63 if you wish to seek health care here at Mayo Clinic.
@brit, If you are ok sharing, would you mind replying to the community with an update on how you are doing after you have been seen for a second opinion?
Liked by Teresa, Volunteer Mentor, GailBL, Volunteer Mentor
are you saying you had this tongue roughage you had was cancer?
Hi, I am doing ok. I talked to psychologist about remembering looking for my mom – to see if she was ok. So that memory came back to me from this group discussion. I didn’t remember. So it turned out to be helpful even though discussion was triggering for me. I was in the park yesterday and today walking through trees and being happy.
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor
I had tongue roughage and my neighbor bought me a special brush to get it off. It sounds
like you are in the early stages, and it needs to be addressed now. Dr. Siversky at MCV
is a specialist in oral issues. My tongue roughage condition eventually led to a condition called
lichen planus, the lichen planus turned into erosive lichen planus and that turned into
cancer. You could have burning mouth, as my neighbor has. My Neighbor’s doctor
told her all this comes from stress. It comes from the Immune system. Sooo you need
to find out what the problem is and it may be necessary to have a light biopsy in that
area. Your life depends on having a good doctor and YOU need to do some research
on your own with your symptoms on the internet. You need to become educated
so you can communicate with a good oral surgeon or ENT. I wish i had done internet
research then I would have known the serious cond. I was dealing with and I know I
would have confronted until I found the right doctor to listen to me and taken it serious
and now it is said that they don’t know what to do after the fact. i don’t want to alarm
you, but it does need attention in the early stages and it sounds like you in the very
early stages and it is a condition not yet cancer.
@elizabethbryant, Thanks for sharing your experience with @brit. It is important to keep looking for answers and being proactive. Teresa
I did have a culture test twice and all came back negetive. He ran that tube down my nose/ throat and said no cancer. It miss spoke saying it was flacky its kinda of chalky feeling . My dentist said get a tongue brush and brush my tongue it 3-4 times a day. It has helped.
My sister was director of pharmacy at a large hospital in Jacksonville and was so tired of all the “bad ” things that regular medications does to people She went to China and lived with a tribe of people that only use nature-based medications. Everyone lived until after
100 years old and she seems to think its the acid on me stomach. She told me to take a dairy product called Kefir. I am a diabetic and
had to have sugar free I ordered it and am waiting for them to called me with my supply. It comes in different flavors.
Anyway, I am going to go with what she says and see where we go from there.
She always has said the Lord put everything on this earth to cure every ailments so I am going to try the natural way. Will keep you posted
I did have a second opinion and came up with the same answers. No cancer no thrush . They did take swabs from my tongue that came up negetive. I am going with my sister in law on natural medicine and see what it does. I will keep you posted and hopefully in a way that can help anyone going through this. My sister like I have said had a very good job as director of pharmacy but she couldn’t take it any more seeing how medications were doing to people. She spent 6 months in the mountains of China with this guru and all that his tribe had ever taken was natural from nature. He said most people live into at least lat 90’s and a lost into 100’s. So guess where I am taking
my advise from
Anyone out there that has the same point of view. Those people said the Lord put every thing on this earth to heal any ailment and thats
what they do.
Any opinions would be appreciated.
Music has been helpful for me on this journey. I have had many diagnoses, beyond many medications, years of therapy, suicide attempts, ECT, etc..
Throughout all of this, music has been a part of me, providing an avenue for expression of those deepest parts, from joy to despair. Whether writing, art or music, any of these can provide help with expression of feelings beyond the usual therapies
I thank God for this gift in my life. Blessings to all of you; your words have really touched me.
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