Mayo Clinic Connect
I have just started using this site so this is my first message.
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor, safetyshield, luckygirl ... see all
Oh, just want to say something and then i will sign off. I gave my phone number to theresa and colleen. So i now can be contacted.
But i need to say one more time that i feel much safer than i did last week. To have our online community care so much and wonder if i was okay was not expected and it has so overwhelmed me with gratitude. I will definitely not do stupid things without checking in with you guys first! Blessings
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Hi jimhd….I hope you will consider to KEEP SHARING. we never know what we say that has meaning to another person. I have found that true so much in this life. Everyone’s comment is beneficial, even though we might not know it. Hope to see you on here a lot. Even if it is just a few words.
PEACE & LOVE….JJ
Liked by Teresa, Volunteer Mentor, Gail, Alumna Mentor
JOHNJAMES……i cannot imagine how anyone can go through an experience like you and others are still having. I ache so much for those. I think of men and women who are parents,, children, brothers,sisters, aunts uncles……but the unbelievable fear that must be experienced is so hard to understand, how anyone survives. The mental has to be a bad as the physical to a person and those that love them. I am sure you here “thanks” and I pray that you will take this as true as I know how to be..”THANK YOU
PEACE AND LOVE …JJ
Liked by Teresa, Volunteer Mentor
Jjwest, my apologies, i didn’t notice that you already said you have peripheral neuropathy in your post. I reread it this morning and said to myself, “Duh.” I hope you find some relief. I know my nerve pain is the worst at night. Some nights I wanted to cry or worse yet I wanted to scream, out of pain and frustration that I could do nothing about it. The Gabapentin is helping the night pain, but I am beginning to suffer side effects that may mean I have to stop taking it. I don’t know where the doctor will go next. I know I need major surgery to correct my L4, which has slipped out of alignment 7.3 mm. However, they want to put off the surgery until my other simpler surgery on my L5-S1 has completely healed. I am starting physical therapy next week and that should help. Then they will use steroid shots, which I’m not looking forward to, but are much less painful than major surgery will be. My brother had the surgery and he said the pain he had is gone, although his surgeon said he would still have pain, he was just helping him be able to walk. I’m not at that point yet, thankfully. I feel for you and hope you get some relief. Is surgery an option for you?
wow….and the fall did not kill you……I am a firm believer in the Book of Eccel: “a time for everything”…I take it that it was not your time to leave this life…I have a spine stimulator and have had great results. Sometimes it helps with the neuropathy, but then sometimes nothing does. I am thankful that it helps sometimes. Good vibes your way, I neglect to say pray , because of issues i have with certain words that seem to be said but not really meant. so…
PEACE AND LOVE ALWAYS….JJ
Hello,Kmhd and rspalding….. I too have peripheral neuropothy,for many years now.. I am told it is thought to be because of spine problems. With so many of us with this, it does seem that there has to be something that can bring us relief. I never know from one day to the next how my feet and hands are going to be at night. That seems to be the worst time. Although, If I forget to take a dose of meds, during the day it can be miserable. There are times I cannot feel my feet on the floor. I have a rolling walker for my spine problems and it helps when I cannot feel my feet. Sometimes, just driving to the store, I am not sure I will be able to walk. SURLEY there is something that can help. I take 800mg of Gabapentin 4 times a day, sometimes 5 times. I have been trying so hard to get the amount between doses longer, and less in mg. I also take Tramadol, I cannot lie down in my bed, and I have to sleep in my recliner. God I wish I could lay down. My feet usually wake me up with feet burning and stabbing bee sting like pains in my leg. I do crafts, paint, jewelry making, play the keyboard. And I have learned that staying busy is crucial. I send you my wish for ……….PEACE AND LOVE….JJ
HI, thanks for responding…..yes I have thought about an adjustable bed, But I cannot afford it. Most of the money I get goes to Rent, utilities and RX’s and medical bills. I wish our government folks would consider giving us a cost of living increase…but oh well…it is what it is.
PEACE & LOVE …JJ
Does Medicare not cover it? I would think that if your doctor knows how much you need it, he could prescribe one as hard medical supplies.
@jjwest Share as you are comfortable. Teresa
@johnjames Offers us all a good suggestion about finding our safe place. Let’s think about his idea and share thoughts with one another (as we feel safe, or course) @georgette12 @safetyshield @jimhd @rspaulling @lesbatts @overwhelmed @ihatediabetes @johnhans
Liked by Gail, Alumna Mentor
@jimhd Thanks for this important idea, Jim.
@johnjames Thanks for your post about your fox hole. It doesn’t sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that “safe place” is very important. Just a message to the rest of our group, @georgette12 @safetyshield @jimhd @rspaulding @lesbatts @overwhelmed @ihatediabetes @johnhans, please share with the group, if you like, where your “safe place” is. Thanks to you all for your wonderful kindness and support to each other. As I’ve said before, you all really bless me! Teresa
I am not religious, but I agree with you that the immence peace and love I fand awe I experience while out in nature feel like what has been called the holy spirit. This truly lifts me up in ways nothing else can. Thanks for your posts and expression about nature as a healing force.
Jimhd, is there a reason you want to stop being part of this group that you are willing to share?
Georgette12, don’t take from my post about the inch worm rule that I start out with distrusting people. I have a basic trust in people with the exception of those I pick up on right away as not being trustworthy. I will sometimes use the inch worm rule with them, and other times I will just stay away from those I think are not trustworthy. I understand that those empathic feelings I have are filtered through my own experiences and may be my own issue and not reflective of who that person is.
In the past I was too trusting and I had few boundaries, which meant I laid my heart and life out to everyone and was not able to discriminate between those who would respect and be kind to me, and those who might take advantage of my nievete’. I would often be hurt by untrustworthy people. I learned through therapy and years of personal work that I have boundaries that are real and necessary for me to live a productive and happy life. I learned to use the inch worm rule when my intuition told me that I needed to be cautious until i knew a particular individual better. This worked very well, especially in business situations. (I have worked all of my life, retiring in 2016.)
My life has been filled with situations where I could not trust the adults in my life, and had to rely on myself to keep me safe. Since I was a very young child, I didn’t always make the right decision about safety. I also learned that at times the best way for me to get support was to open up to everyone, looking for the person who would love me. That is where my insecurity and my hyper-vigilance were in conflict and confusing for me. I first sought help with counseling when I was 24 years old. I grew up with my parents separating when I was 18 months old, after my father pulled both my arms out of my shoulder sockets sending me to the emergency room. My mother was pregnant with my sister at the time and she was very sick. She decided to send me to live with my aunt. I lived with my aunt until I was 4 years old. Then I came back to my mother, and I was totally confused about which woman was my mom at that point. By the time I was 5, my mother realized she could not take care of my 2 older brothers, my sister and me. She sent my brothers to live with our father in Denver, and my sister and I were sent to an orphanage in Missouri, where my mother lived. We were there until I was 12 years old. My grandmother bought a house so my mom, sister, and I could live with her. That lasted 2 years, and then my mother couldn’t stand living with her mother. So, she took my sister with her and left me to tell my grandmother that she had gone to Denver. I ended up living with my mother in Denver after she had remarried my father, when I was 16. I was pregnant and married by the time I was 19. I needed to create my own stability. I had been in counseling for 3 years when realized my marriage was a mess and my husband was an alcoholic. My first husband and I were married for 9 years.
That’s a snapshot of my history, which in detail is disturbing, but that would be just too much for this forum. Suffice to say mistrust and confusion were a big part of my psyche. I really needed counseling and I was aware enough to ask for help when I was 24 years old. My life steadily improved since then. I only realized about 4 years ago that I was depressed for most of my life, and again I asked for help. I am taking Citalopram now and it has had a tremendous affect on my happiness. Life is good now; I am fulfilled; I love my second husband of 34 years. I am very grateful for what I have learned and the opportunities I have had to choose to be successful in my life.
Liked by Jen, Volunteer Mentor, Teresa, Volunteer Mentor, ihatediabetes, johnhans
I will keep you posted on my progression. They are reluctant to do the surgery ri5right now. They want to make sure my other side’s surgery has healed completely first. I will be getting steroid shots after my PT sessions are done in 8 weeks.
Itoo was leary of back surgery due to bad stories from my oldest brother. But his surgeries were year2ago, and he recently had a surgery that helped and was successful. My other brother’s surgery went great and it was to keep him out of a wheelchair. He’s doing great now.
More later….Gail B
Jjwest, i had a similar experience in a car accident. I was out of consciousness and i had a near death experience that left me a changed person. I have no fear of death now and I experienced that total love and acceptance. .
Liked by Teresa, Volunteer Mentor, ihatediabetes
I didn’t mean to say I wasn’t going to stay in the group. I just meant it was time to go to bed, and had to get off the computer. Sorry for the miscommunication.
@jimhd Thanks for explaining that Jim. I’m sure you will hear a collective “sigh of relief” from everyone in the group! We value your sharing with us. Teresa
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