Is your loved one with dementia sleeping a lot (too much)?

Posted by bayviewgal @bayviewgal, Mar 13 8:29pm

Is anyone else's loved have a hard time falling asleep AND sleeping too much? My 63 yo husband has been living with dementia caused by alz for 3 years and just recently he is sleeping between 10-14 hours a night. At his last neurologist's appt 2 weeks ago she suggested taking his Aricept during the day instead of bedtime cuz she says it can act as a stimulant and keep him awake. He's been taking melatonin for a while now but it doesn't seem to be working much for him anymore with regards to helping him fall asleep but once he finally does fall asleep he sleeps SO much. His dr. said to keep him on it to help him fall asleep but he is so wound up that it takes up to 4 hours to kick in.
Does anyone has a similar experience with this? And if so, what have you done to help combat this? Because of all this, i'm not sleeping cuz i need to know what he's up while he's awake (at 3 or 4am)

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@celia16

Does he still get up to use the bathroom?

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He wears Depends but does pee into a bedside urinal (sometimes, but increasingly just into the Depends) he can get himself to the bathroom to poop and does that himself, but I try to stand by when that's happening. All those hard surfaces in the bathroom. 😕

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@crankyyankee

He wears Depends but does pee into a bedside urinal (sometimes, but increasingly just into the Depends) he can get himself to the bathroom to poop and does that himself, but I try to stand by when that's happening. All those hard surfaces in the bathroom. 😕

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Yes, that’s our concern. Daddy has delusions that he’s urinating, but he’s not. He sits on the toilet for a very long time repeatedly. I’ve read about it online. It’s common with dementia. He sits so long his feet get numb. And, he’s not constipated. It’s getting very disturbing. No way to convince him to stop. Hope it’ll fade.

We just got a transport chair and now plan on a new bed for him. Would you recommend a hospital bed? Those mattresses don’t look very comfortable…..Any input on a extra long, hospital size bed and mattress would be appreciated.

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@celia16

Yes, that’s our concern. Daddy has delusions that he’s urinating, but he’s not. He sits on the toilet for a very long time repeatedly. I’ve read about it online. It’s common with dementia. He sits so long his feet get numb. And, he’s not constipated. It’s getting very disturbing. No way to convince him to stop. Hope it’ll fade.

We just got a transport chair and now plan on a new bed for him. Would you recommend a hospital bed? Those mattresses don’t look very comfortable…..Any input on a extra long, hospital size bed and mattress would be appreciated.

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After a 6 day stay in the hospital for UTI and sepsis we immediately moved our bedroom downstairs (grumble grumble) because my husband's lack of mobility was freaking everyone (but me) out. Including the EMTs who transported him down our 250 year old winding staircase. Someone talked me into an adjustable bed and because I was not myself, I bought a queen sized one. I am a stomach sleeper , he has sleep apnea so our mattress requirements are very different, and I did not get a split queen because that would have been a nightmare. But I digress! I think those hospital beds are designed for short term use (as in hospice or palliative care). Someone else in this thread probably has some good advice about hospital beds, but I think it's not me!

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@crankyyankee

After a 6 day stay in the hospital for UTI and sepsis we immediately moved our bedroom downstairs (grumble grumble) because my husband's lack of mobility was freaking everyone (but me) out. Including the EMTs who transported him down our 250 year old winding staircase. Someone talked me into an adjustable bed and because I was not myself, I bought a queen sized one. I am a stomach sleeper , he has sleep apnea so our mattress requirements are very different, and I did not get a split queen because that would have been a nightmare. But I digress! I think those hospital beds are designed for short term use (as in hospice or palliative care). Someone else in this thread probably has some good advice about hospital beds, but I think it's not me!

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You’re probably right about the bed. We were thinking about being able to adjust the height for changing diapers, as that’s anticipated before too long. Maybe, get the bed and upgrade the mattress.

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@crankyyankee

Very similar here. My 92 yr old husband diagnosed in 2019 and is stable. When he first began to stay in bed longer, I became irritable because it threw off need schedule and meal schedule, but I soon realized that he wouldn't fall if he was in bed, he didn't have to remember what he just ate and he was making his own schedule. AND it was good for me since I could get some things done and have some "me" time. He enthusiastically eats two healthful meals a day and continues to be good natured. I just had to give up my expectation of "how he should be" and make the best of "how he is". He too has a doctor who is my cheerleader and that's very helpful to me.

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Thank you for helping me to see that what "is" is ok. My husband with ALZ sleeps a lot, and I was feeling concerned about him sleeping his life away. I'm reminded of the prayer that asks you to accept what you can't change, change what you can, and hope for the strength to know the difference.
I appreciate this forum to learn and share; perception and attitude can change how you view your situation.

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@bayviewgal

My husband has had a couple phases of when he sleeps alot (10-14 hours) but he still eats well and drinks plenty of fluids, thank god. His neurologist said for me not to be too concerned at this point because when he's sleeping he doesn't have to "think" or remember anything and things are "all good in his mind". His med schedule is a little wonky when this happens and I've told her about that as well and she told me to just keep doing the great job that I'm doing and as long as he's getting his meds he'll be fine ( so-to-speak). AND he looks SO peaceful when he's sleeping and i treasure those little joys that he "gives" me... like nothing has changed since when we first met... if that makes sense. If sleep is what it takes for him not to struggle, or be confused or frustrated, or agitated, I will embrace that. I know our situation is a little different because he IS still eating but this horrible journey is the same and i pray for all involved in caring with someone with dementia AND most of all for the person living with dementia.
Love, prayers and hugs to all

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Your situation is much like mine , as my husband is sleeping 12hrs at night and naps morning and afternoon. He does take gabapentin that makes him sleepy. But he is still eating and drinking, and even helps me clean the kitchen after supper. He is delusional much of every day, and is always thinking we are having visitors or we are going somewhere. We are blessed at this stage , but certainly see why this disease is called, “the long goodbye!”
Prayers for all on this journey!

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@marty505

Your situation is much like mine , as my husband is sleeping 12hrs at night and naps morning and afternoon. He does take gabapentin that makes him sleepy. But he is still eating and drinking, and even helps me clean the kitchen after supper. He is delusional much of every day, and is always thinking we are having visitors or we are going somewhere. We are blessed at this stage , but certainly see why this disease is called, “the long goodbye!”
Prayers for all on this journey!

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So interesting to read this. Over the last ½ year my husband has begun asking me if we have any visitors coming. This is so odd to me because we have never been very social animals and are not people who regularly have visitors. Except for my son and family, but he never says (specifically) 'is Neil coming to visit?' He also worries about intruders A LOT despite the fact that we live in a peaceful crime free suburban town. I have to raise my voice to have doors and windows open during the summer!

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@cking325

Good Morning allQuick question I’m going thru Dementia with mother-in-law and she has started soiling herself as I did get depends and also my biggest concern now is she’s sleeping all the time does not want to get up my thing is she needs to take her meds and she won’t get up she’s sometimes coherent and says ok but does not get up won’t eat my husband has had to get her up to take her meds but in 3days she’s hardly eaten or drank anything we do have a docs appointment tomorrow Monday early 🙏🏼

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Add me to the group whose loved often asks about other people that she believes are here, or in another room, or where her mom is in the house (15 years deceased)... and she sometimes thinks I'm not here, but that I'm our son.

I do tell her the truth... because if I play along with her beliefs, she goes on a searching expedition... which is unsafe for her to do (she's often dizzy, has weak extremities, osteoporosis, and is a significant fall risk).

I'm certain I'm not so unique. Hang in everybody!

/LarryG

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@cking325

Good Morning allQuick question I’m going thru Dementia with mother-in-law and she has started soiling herself as I did get depends and also my biggest concern now is she’s sleeping all the time does not want to get up my thing is she needs to take her meds and she won’t get up she’s sometimes coherent and says ok but does not get up won’t eat my husband has had to get her up to take her meds but in 3days she’s hardly eaten or drank anything we do have a docs appointment tomorrow Monday early 🙏🏼

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My husband sleeps so much during the day. I haven’t found the answer to what causes this. However, he does have a better day if he sleeps late in the morning. One time we had an early haircut appointment around 9:00. By the time she finished with both of us, he was so tired, like he lost all his energy, and we couldn’t get him to walk to my car. I had to call an ambulance to get him from salon to the car! I now never schedule any appointments before 11:00.

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@joastarnes

My husband sleeps so much during the day. I haven’t found the answer to what causes this. However, he does have a better day if he sleeps late in the morning. One time we had an early haircut appointment around 9:00. By the time she finished with both of us, he was so tired, like he lost all his energy, and we couldn’t get him to walk to my car. I had to call an ambulance to get him from salon to the car! I now never schedule any appointments before 11:00.

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1pm is the absolute earliest time I can book a medical or other appt for my husband. That means he has to be up by 11 because he needs to dress and have a meal, then the careful walk out to the car. And he's exhausted afterwards, so NEVER two events in one day.

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