Is the PARI eRapid® Nebulizer System worth what it costs?
Does anyone have any long-term experience with the PARI eRapid® Nebulizer System?
After 15 years of lugging different large and small nebulizers around when traveling, I am ready to spend a lot of money on something small, easy to clean, and fast, so long as it is rugged and will last a few years. I have to nebulize four vials of stuff (including saline) twice daily. I'm not loving traveling anymore because of the chore of having to spread out all my stuff, sometimes with very little available surface area, wherever I am, not to mention having to wake up an hour before everyone else to nebulize.
Information from anyone who knows this product is appreciated.
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The only time I've seen that mentioned was in the post I was responding to... that's why I was looking for clarification. Thanks!
I just received an email from Amy Leitman (President of NTM Info & Research) seeking donations to help fund MORE STUDIES ON OUR EQUIPMENT CARE. This is exactly what I was hoping for in a previous post-- more work to nail down best practice. Yes we have best practice now but maybe there are ways to make it easier for those that are overwhelmed and or more scientific for those seeking more protection from infection or reinfection.
From: Amy Leitman
Heading: Finally, answers about cleaning your devices
Dear Paula,
Every day, patients with NTM lung disease and Bronchiectasis face an enormous challenge: thinking about their environmental exposures to NTM including how to clean the devices they use to clear their airways, knowing that NTM can lurk in the water used to clean them.
For years, patients have used sterilization methods that have not been scientifically tested.
Until now. And we're asking you to support this work.
We've launched a groundbreaking collaboration with two leading NTM microbiologists, Dr. Joe Falkinham and Dr. Jennifer Honda, to provide some answers.
We're systematically performing laboratory testing:
Sterilization methods for airway clearance devices
Bottled water brands for NTM contamination (and microplastics)
Safe water-boiling times at different elevations
Biofilm formation across pipe materials
Testing is already underway. The results will yield comprehensive, evidence-based guidance that transforms how patients safely manage their care, and a peer-reviewed publication that equips clinicians to properly advise them.
Will you help us complete this critical research?
THIS IS SUPER GOOD NEWS FOR US AND I PLAN TO DONATE!
Research and studies building on previous research is vital. Can't sit on our laurels as they say.
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4 Reactions@scoop Ramon pot? Do you have a link ?
@scoop can it be sterilized in vinegar? Looking into travel out of the country , with outlet issues & no access to boiling water . Hoping there’s a solution. Thanks in advance .
@scoop do you use tap water with the Bololo? If distilled, how much water does it take for a cleaning ?
Thanks !
@sueinmn how do you sterilize if in a hotel , with no access to boiling water ?
I use Control III (a CPAP cleaner) recommended by Pari for the eRapid. I boil about once a week. I mistakenly poured into a glass once, and it got into my mouth. From its taste I think it could be classified as a WMD!
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1 Reaction@cholash I use distilled water in the Bololo, which I use right out of the jug. I keep meaning to use the Steripen to sterilize the distilled water first but I've tucked the Steripen away somewhere and need to find it. The Bololo requires a small amount of water on the heat plate reservoir, which I fill to the max line.
@cholash The PARI eRapid is a delicate mesh machine that requires distilled water for sterilizing. After nebulizing but before sterilizing I soak in warm/hot tap water with Dawn antibacterial dishwashing soap for some minutes, then rinse in running tap water, let dry on a towel. After its second use of the day I pop in BBS.
PARI also makes a portable battery-powered nebulizer (also plugs for US and international use). You could purchase many handsets (or disposable ones) and not worry about cleaning and sterilizing until you get home. The downside is that it's time consuming like your current compressor, and maybe not as powerful, but it will get the job done.
https://nebology.com/products/pari-trek-s-portable-nebulizer-system-with-lc-sprint
May I suggest you check out NTMinfo.org for ideas on traveling out of the country? I recall someone there went on safari and had similar issues as you with water, outlets. Be prepared as it might take time to search through the various conversations on the matter.
@spectrumcyclist Where did you purchase it? A link is appreciated.