Is the PARI eRapid® Nebulizer System worth what it costs?

@jnvt I guess I better go back and watch the video again as I did not pick that up. For years I've used regular blue Dawn dish washing liquid that I purchase at Costco. Please let us know what you hear back from the scientists.

And with a second thought, soaking in dawn is only part of the cleaning/sterilizing equation. After soaking it's suggested you boil or use a BBS, which has been shown to reduce significantly NTM.

I’ll try to download the slide. I posted it on NTM forum for Dr. F so we’ll see if I get a response. I may email him directly as well.

I am hoping more and more researchers help us out with these equipment, cleaning/sterilizing, time requirement questions. These are perfect research projects for grad students! I am though so impressed with BE patients willing to share their ideas and experiences. Thank you all! < 3

@dpaula I found this video extremely helpful. The charts provided by Dr Jennifer Honda (from her NTM-ir sponsored lab) show the effectiveness of soaking baby bottle sterilizers and microwave bags.
What additional information would you like to see? I'll try to track it down for you. Please know that is would be impossible for labs to test and report on every single combination of sanitizing/sterilizing processes. Equipment changes all the time, and keeping up would be a nightmare.

The better approach is to follow Dr Honda's advice to pick the important things and let the rest go. If you haven't watched this yet, I strongly encourage you to do so:
https://connect.mayoclinic.org/discussion/overwhelmed-by-bronchiectasis-must-dos-watch-this-video/

I did reach out to Dr. Honda, here is her response ....

Hi Ling,
Thanks for the email.
We are currently working on getting answers for boiling.
Please stay tuned.
Testing each and every brand of baby bottler sterilizers is cost prohibitive and takes a lot of staff time to perform and this project is not funded on that large scale.
But, we have been able to test 5-6 different brands and they are all effective in reducing NTM, no matter the brand.
Very best,
Jenn

@sueinmn Hi Sue, I have watched Dr J Honda's video! I do appreciate her philosophy of identifying one's priorities and letting the rest go, though that is not always easy to do when one is struggling with exacerbations or even sputum outputs over 100cc like me. I ask myself often, am I doing enough? I guess I was looking at it from a different angle, that is, building on what has been done and hoping manufacturers could make their products even better to handle the temperatures needed and maybe streamline the process! I do understand that this all takes time and money so it probably was unrealistic to even suggest in an area that has already undergone much research.

I am currently on Brinsupri for almost three weeks now, so I am benefiting from the research progress in the biological/medical aspect of our common disease. I will update my Brinsupri results thus far on that thread. I am doing a little data collection on my own here in Michigan 😉

Thanks for pointing this out. I noticed it too on the slide that appears at 21:04 in the presentation, and was wondering if we should change our practices for my sister, who has Bronchiectasis and NTM. For nebulizer cup parts, we have been doing 10 mins. soak in sudsy regular Dawn/water then rinse, and run them through a sterilizing and drying cycle in the Philips baby bottle sterilizer. For my sister's Aerobika, we use a regular Dawn soak, then rinse and air dry daily, but also put this through sterilizer about once a week.

We're using regular Dawn for cleaning BiPAP mask pieces (which don't get otherwise sterilized). A concern for BiPAP parts would be the scents of the antibacterial Dawn (although of course, Dawn already has a scent), but also, as you mention, lotion or softener ingredients that might affect the silicone parts...

I hope you will post whatever additional information you obtain from the medical sources! Thanks!

As far as the question about whether the PARI e rapid is worth the price, I sure think it is!! I used to DREAD nebulizing because it took so long and was so loud. The PARI is so fast by comparison, and quiet. For me personally it’s turned my 2x day nebulization sessions into a “no big deal, quick thing I do.” I usually do the airway clearance things a bit later than the nebulization, so that the saline can infiltrate and loosen things up first. I can do the Autogenic thing even in the car. Sometimes I skip that part, but I always nebulize because it’s so quick and easy.

100% !

@evpaj There are no lotions or softeners in anti-bacterial Dawn. I just read the label on mine, and compared it with Original Dawn, Ultra Dawn, and Dawn PowerWash, as well as the ingredient list on their website.
https://dawn-dish.com/en-us/dawn-faqs/dish-soap-safety-ingredients/
Other than the anti-bacterial agent, chloroxylenol, the ingredients are the same as original Dawn.
I wonder how the idea began circulating that it includes lotion or softener ingredients? Please let's not spread this notion.