Is my Lung Disease Stable or Unstable or NED?

@merry thank you for asking. In August my surgeon sent me on to radiology because he can no longer do any more surgery on my lower lungs because of scar tissue. It was actually a very scary time for me as I have been with him exactly 9 years today and I had to move on to the unknown. I underwent SBRT radiation on an area in September. We were watching another area that grew in size but no difference in PET uptake from September to December. I’m waiting to see how my new Dr wants to proceed.

@linda10- Hi! So glad that you wrote me back. When my surgeon told me that I had to move to a radiologist I was also scared! I felt that I was being abandoned. But then I thought, I had full faith in my surgeon, who also had become my friend. I had to trust his judgment. And I did. I love my radiologist! He's the best and has done tons of research on Multifocal adenocarcinomas. I've had SBRT twice. How did you find SBRT? It was a piece of cake compared to surgery, I think!
I think that we have to be on our toes, to expect that down the line we will get more lesions and just take each one as they come. Emotionally, as you well know that's not very easy. With multifocal Adeno. it's always a crapshoot. Should our doctors take more lung tissue through surgery or see if less can be taken by being zapped. My radiologist, oncologist, and surgeon are my team now. There is a consultation after each scan and a decision made. I have two possible lesions that might need to be zapped and lots and lots of little baby lesions.
I hope that you hear soon from your doctor. I hope that you will stay on this thread so that this small group can stay in touch and support each other! Will you let me know what your Dr's decision is and what you decide to do?

@merpreb sorry, I should’ve added that I have a CT scan and follow up with my Dr on the 19th at Mayo. As I’m wishing for @bluelagoon I’m hoping for a short stay. My husband was diagnosed with RA in September and also has his appointment. Nice thing about Mayo as they work us both in together. My area they are watch has grown but the uptake on the PET has not. I will
Post again when I know more. I realize we are a small group those of us with multifocal. As frustrating as that may be at times, in many ways we are very lucky 🍀.

Wish we all could have short stays. Thanks for sharing about radiation, gives me hope! Now I have a whole new lingo to learn!

@linda10- I know what you mean. Your doctors might wait to see what happens in 3 months for another PET or maybe do a biopsy?
@meka, @linda10, @bluelagoon- I found this the day while searching for the latest news for Multi-focal.
http://jtd.amegroups.com/article/view_ests/12902/html

@meka- Check this out! https://www.verywellhealth.com/what-is-sbrt-2249187 now you will have more vocab to learn!
Hey, all this new vocab will keep us sharper and that's what we are supposed to do as we get older, right? 🙂

Good stuff 👍, will be sharing!!!

@merpreb I just got back to our hotel. The area we’ve been watching is still growing even though the past uptakes on PET in September and December were very low. I’m scheduled for another PET in the morning. I’ve never seen the Mayo so empty. I’m glad I came up. 🤞we can get this area resolved this trip. I am also hoping @meka is doing well.

@linda10. Hi. Are you exhausted? I wish there was a way to stop the growth of these things. I have 2 areas they are keeping an eye on. I'm with you and I wonder what it will show tomorrow and what will be done. Hugs
I think that only essential testing and treatments/ surgeries are happening across the country. What are you doing about meals?

Hi Linda, wondering how you were doing. I start radiation at Charlton at 3 today, tomorrow and 3days next week. Maybe we can see some sunshine 🌞 this weekend!!