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Merry, Volunteer Mentor (@merpreb)

Is my Lung Disease Stable or Unstable or NED?

Lung Cancer | Last Active: Mar 20, 2020 | Replies (25)

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@linda10

@merry thank you for asking. In August my surgeon sent me on to radiology because he can no longer do any more surgery on my lower lungs because of scar tissue. It was actually a very scary time for me as I have been with him exactly 9 years today and I had to move on to the unknown. I underwent SBRT radiation on an area in September. We were watching another area that grew in size but no difference in PET uptake from September to December. I’m waiting to see how my new Dr wants to proceed.

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Replies to "@Merry thank you for asking. In August my surgeon sent me on to radiology because he..."

@linda10– Hi! So glad that you wrote me back. When my surgeon told me that I had to move to a radiologist I was also scared! I felt that I was being abandoned. But then I thought, I had full faith in my surgeon, who also had become my friend. I had to trust his judgment. And I did. I love my radiologist! He's the best and has done tons of research on Multifocal adenocarcinomas. I've had SBRT twice. How did you find SBRT? It was a piece of cake compared to surgery, I think!
I think that we have to be on our toes, to expect that down the line we will get more lesions and just take each one as they come. Emotionally, as you well know that's not very easy. With multifocal Adeno. it's always a crapshoot. Should our doctors take more lung tissue through surgery or see if less can be taken by being zapped. My radiologist, oncologist, and surgeon are my team now. There is a consultation after each scan and a decision made. I have two possible lesions that might need to be zapped and lots and lots of little baby lesions.
I hope that you hear soon from your doctor. I hope that you will stay on this thread so that this small group can stay in touch and support each other! Will you let me know what your Dr's decision is and what you decide to do?