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I was diagnosed with EPI: Need advice on diet, other management

Posted by pennie225 @pennie225, Sep 5, 2023

After being diagnosed with severe EPI I was told to follow a diet that has no meat , no fish , no dairy and nothing fried. Other members in my household eat what they want and mealtimes are depressing.

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diggy1302 | @diggy1302 | 11 hours ago
In reply to @becsbuddy "@diggy1302 Did the doctor give you any guidelines about meals and food? You can’t go on..." + (show)
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@diggy1302 Did the doctor give you any guidelines about meals and food? You can’t go on forever just on rice cakes, peanut butter, cottage cheese and avocado toast. Really? You must have the same doctor I had—he didn’t say a thing! No office hours, just said “his PA would tell me everything.” She didn’t so I found a new doctor. What about doses of Creon? I take 36,000 Creon x2 and eat healthy meals and I’ve not had any problems. I’ll find a good, informative web site for you!
Avoid the following:
High-Fat Foods: Fatty, fried, greasy, and oily foods are hardest for your body to process. Limit saturated and trans fats like butter, cream, fatty cuts of red meat, poultry skin, and fast food.
Alcohol: Alcohol damages the pancreas and directly interferes with digestive enzymes. It is best to avoid it completely.
Excessive Fiber: While normally healthy, too much fiber (like in brown rice, lentils, peas, and whole grains) can interfere with pancreatic enzyme activity.
Heavy Meals: Large, heavy meals make it difficult for your pancreas to keep up with enzyme
I would also recommend that you get an appointment with a Hospital-based Dietician.

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@becsbuddy It took 4months before I was diagnosed with EBI. The first 3 months I didn’t eat and I ended up in the hospital due to my potassium level was a 2.7 and then when they took a huge amount of blood and tests they couldn’t figure out why I had non stop diarrhea. I then had a colonoscopy but not before my potassium had dropped to 2.3 and they gave me liquid potassium to bring it up enough to sedate me. Then they told me I had colitis and inflammation. When the tests came back I didn’t have colitis. That’s when I had to call every few days to get to see her. I am on Creon but she didn’t explain anything just put the prescription in the portal. I still have diarrhea but it has slowed down.

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