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I was diagnosed with EPI: Need advice on diet, other management
Pancreatic Disorders | Last Active: 7 hours ago | Replies (49)Comment receiving replies
Hi @skip522 - you are in exactly the right place. Welcome to Mayo Clinic Connect. You are participating in a discussion in the Pancreatic Conditions group called "I was diagnosed with EPI: Need advice on diet, other management."
If you want to look for other EPI discussions, do a search on the group home page https://connect.mayoclinic.org/group/pancreatic-conditions/, or start a discussion you would like to have on that same page.
Here is some Mayo Clinic information on autoimmune pancreatitis, including pancreatic exocrine insufficiency (EPI) https://www.mayoclinic.org/diseases-conditions/autoimmune-pancreatitis/symptoms-causes/syc-20369800.
Details on testing related to EPI are found on the Mayo Clinic Laboratories site https://news.mayocliniclabs.com/gastroenterology/malabsorption/exocrine-pancreatic-insufficiency/.
I'm hoping that other members in this discussion will chime in with thoughts on your losing weight despite eating 150 grams of protein daily, as well as how they manage the diet choices that work with EPI. Please meet @becsbuddy @joandelray @venture @pennie225 and many others here.
What has your doctor said about your weight loss? If they have given feedback and advice on that, what did they say?
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@lisalucier
Hi Lisa: Thank you for your response. The doctors quite frankly have not been very helpful other than that they did a CT Scan and an endoscopy. They are the ones who said to eat more protein. They were not helpful with the dosing of the Creon, but fortunately Creon has a lot of good information online and they even sent me vitamins and a copay card for the medication. I have gotten most of my information from ChatGPT. I just saw a naturopath doctor who is going to try to start helping and he suggested that I take a higher dose of the enzymes. My condition seems to be more of an exception to what I have read in that my problems are more constipation than the other. More enzymes see to exacerbate that condition. Hoping to hear from people or even a person who has been on my journey and has done well.