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pennie225 avatar

I was diagnosed with EPI: Need advice on diet, other management

Pancreatic Disorders | Last Active: 15 hours ago | Replies (47)
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Profile picture for skip522 @skip522

I was diagnosed with EPI in early March. Pretty shocking since I always considered myself healthy. I am taking Creon. 1 36000 pill with meals and 1 or 2 12000 pills with snacks. My biggest challenge is that I have been losing weight even though I am eating 150 grams of protein per day. I had a CT scan and endoscopy along with blood work and so far no cancer that they can see. Just wondering where I can communicate with people with the same condition—as I never heard of EPI before I got it

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Replies to "I was diagnosed with EPI in early March. Pretty shocking since I always considered myself healthy...."
Lisa Lucier, Moderator | @lisalucier | 15 hours ago

Hi @skip522 - you are in exactly the right place. Welcome to Mayo Clinic Connect. You are participating in a discussion in the Pancreatic Conditions group called "I was diagnosed with EPI: Need advice on diet, other management."

If you want to look for other EPI discussions, do a search on the group home page https://connect.mayoclinic.org/group/pancreatic-conditions/, or start a discussion you would like to have on that same page.

Here is some Mayo Clinic information on autoimmune pancreatitis, including pancreatic exocrine insufficiency (EPI) https://www.mayoclinic.org/diseases-conditions/autoimmune-pancreatitis/symptoms-causes/syc-20369800.

Details on testing related to EPI are found on the Mayo Clinic Laboratories site https://news.mayocliniclabs.com/gastroenterology/malabsorption/exocrine-pancreatic-insufficiency/.

I'm hoping that other members in this discussion will chime in with thoughts on your losing weight despite eating 150 grams of protein daily, as well as how they manage the diet choices that work with EPI. Please meet @becsbuddy @joandelray @venture @pennie225 and many others here.

What has your doctor said about your weight loss? If they have given feedback and advice on that, what did they say?

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