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I was diagnosed with EPI: Need advice on diet, other management
Pancreatic Disorders | Last Active: Aug 9 10:36pm | Replies (55)Comment receiving replies
@becsbuddy It took 4months before I was diagnosed with EBI. The first 3 months I didn’t eat and I ended up in the hospital due to my potassium level was a 2.7 and then when they took a huge amount of blood and tests they couldn’t figure out why I had non stop diarrhea. I then had a colonoscopy but not before my potassium had dropped to 2.3 and they gave me liquid potassium to bring it up enough to sedate me. Then they told me I had colitis and inflammation. When the tests came back I didn’t have colitis. That’s when I had to call every few days to get to see her. I am on Creon but she didn’t explain anything just put the prescription in the portal. I still have diarrhea but it has slowed down.
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@diggy1302 I sincerely owe you an apology for my thoughtlessness in my previous response to you. I hope you’ll forgive me! It sounds like no one paid any attention to you and had no idea what EPI was. My doctor was not much better. He said hello while I was still goofy from the sedation I was given and that was the extent of his “professionalism.” I never saw him again and the physician assistant was supposed to take care of everything. Well, she didn’t so I found a new doctor.
As for Creon, I learned everything from this discussion. Everyone talks about changing your diet, but I haven’t done so. I try to take my creon when I should and eat a healthy diet, but that is all I’ve done and I’m doing very well.
Please try to get a new GI doctor! The Medical Society in your town, city or area can give you some names. Call their office and find out if they treat EPI. If so, make an appointment.
Ask it there is a dietician they recommend, so you can make an appointment. Make sure you explain what has happened to you and that you really need some help. Start a journal in which you’re going to write everything!
If you have more questions, I’ll try to answer.
The Cleveland Clinic has some good information on EPI. The Mayo Clinic has not posted yet.