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I have 2 aortic aneurysms

Posted by janagain @janagain, Jun 24 1:25am

I have both ascending and descending aneurysms and If I were in need of surgery, I would need a vascular surgeon and/or a thoracic surgeon. I'm measuring 4.1 (lower) and 4.3 in the upper . I'm hope I'm explaining this correctly. I will be turning 69 in July. I don't have any symptoms and the doctors are seeing me every 6mos or maybe once a year. It was found while having an MRI of my neck. I read online that when you have 2 aneurysms it's fairly rare, only 18% of the people. If anyone is dealing with this, please send me a message or post here.
It's pretty discouraging news and I'm not sure how to feel about it other than scared and nervous. I'm a very busy retired person and I rarely have time to sit and cry! Maybe I can be educated on this situation. I do know that maybe nothing will ever happen and I'll live a nice long life. I have other comorbidities. Diabetes, Cervical Myelopathy and treated sleep apnea. I've been working hard on loosing weight and my BMI has come down significantly. I'm so glad I lost weight, it was an added problem with high blood pressure. All that is going well. Tonight it's giving me anxiety because I don't want to leave this world just yet! I have a new grandbaby I'm visiting with in a few weeks. This diagnosis humbles me and makes me feel grateful for all that I have in my life. Just feeling a bit blue and tomorrows a new day. Thanks for listening.
Jan in Fallbrook, CA

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rockpir | @rockpir | Jun 24 5:14pm

Have 5 aneurysms,bilateral illiac,right popliteal,abdominal &thoracic.All are stable but does cause a lot of anxiety.Was active my whole life being ex paratrooper,skier,marathoner and of course a gym rat.Still go to gym but have significantly altered exercises.Still cut lawn and other small jobs around the house.Thinking about it is depressing so I try not to dwell on it. Have several grandchildren and a great grand daughter and will soon have a great grandson.like everyone says,watch your BP and keep moving!You’ll be ok!
87yrs young here!

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ghm74 | @ghm74 | Jun 26 1:54am

My son had 4 aneurysms at the same time and had multiple surgeries. He had all but 1 inch of his aorta replaced including the aorta valve. The last inch of natural aorta was an aneurysm that he lived with for years. He had a great team of surgeons and a great heart hospital. He was known as patient zero for the ARIH1 gene mutation. He was the reason they found this gene that causes aneurysms. After multiple surgeries and 19.5 years he still had 4 aneurysms they were watching. He even had 1 dissection on the upper descending aorta back in 2013 and survived it. The medical community as a whole shares information and uses it to improve and save lives. I would definitely recommend to follow what your doctors and surgeons tell you what to do. Science and technology has come a long way since his first aorta valve replacement in 2005 when he was 6 years old at the time. If you follow what you heart doctors say you can live a longer healthier life. I also recommend praying and keeping faith it has gotten me and my family through a lot of tough times. Yes you can live a longer healthier life if you follow what your doctors say. I hope this helps you. Good luck on your journey. In closing I will tell you that he went for 9 years between his last aneurysm removal in 2023 from the one before in 2014, while they were watching 4 aneurysms.

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annieboo | @annieboo | Jun 26 8:24am
In reply to @ghm74 "My son had 4 aneurysms at the same time and had multiple surgeries. He had all..." + (show)
Profile picture for ghm74 @ghm74

My son had 4 aneurysms at the same time and had multiple surgeries. He had all but 1 inch of his aorta replaced including the aorta valve. The last inch of natural aorta was an aneurysm that he lived with for years. He had a great team of surgeons and a great heart hospital. He was known as patient zero for the ARIH1 gene mutation. He was the reason they found this gene that causes aneurysms. After multiple surgeries and 19.5 years he still had 4 aneurysms they were watching. He even had 1 dissection on the upper descending aorta back in 2013 and survived it. The medical community as a whole shares information and uses it to improve and save lives. I would definitely recommend to follow what your doctors and surgeons tell you what to do. Science and technology has come a long way since his first aorta valve replacement in 2005 when he was 6 years old at the time. If you follow what you heart doctors say you can live a longer healthier life. I also recommend praying and keeping faith it has gotten me and my family through a lot of tough times. Yes you can live a longer healthier life if you follow what your doctors say. I hope this helps you. Good luck on your journey. In closing I will tell you that he went for 9 years between his last aneurysm removal in 2023 from the one before in 2014, while they were watching 4 aneurysms.

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@ghm74 Thank you for sharing. Faith in our Lord and prayers can change our lives! “Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.” (Philippians 4:6–7)

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