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My husband was dx with glioblastoma

Posted by Jeannie1 @jeannie2, Aug 11, 2015

I am new to this group. My husband was dx with glioblastoma stage 4 July 2014, he is 73. The tumor was completely removed, he had 30 radiation treatments of 42 temadar treatments. It has been a year and his MRIs are clear. His reaction time and short term memory is not what it use to be but otherwise he has a good quality life other than dreading the MRI as we have been told it will come back and was given 12-15 mos. It has been 13 mos and he is still doing well. Would like to hear from others who have had glioblastoma.

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js119 | @js119 | Jun 30, 2016
In reply to @dawn_giacabazi "So encouraging and so many blessings to be thankful for. My mom passed away from a..." + (show)
@dawn_giacabazi

So encouraging and so many blessings to be thankful for. My mom passed away from a stage 4 GBM. It is truly a scary process. Stay positive and living each and everyday to it's fullest. Will keep each one of you and your loved ones in our prayers.

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Thanks for responding. We are keeping positive and taking time to enjoy time together! Sorry to hear of your Moms passing. One never knows the future.

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Sandy Dominy | @sandydominy1 | Sep 13, 2016

My hubby was diagnosed in December 2015. They surgically removed 95%. He received radiation and chemo for 6 weeks. We are now on chemo maintenance. Hubby is doing well and loads of folks are praying. We've been to Duke for consultation. If it comes back we will go to Duke for possible clinical trial. Duke has had great success with trials, particularly with inserting the polio virus into tumors. We live outside Atlanta and Duke is only a few hours away. Make sure you inquire about clinical trials

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barb kaser | @barbkaser | Sep 16, 2016

My story is similar but we are now in the clinical trial you mentioned at Duke taking the MRZ . His tumor is too close to the bridge between the right and left side of the brain so they can't give him the polio vaccine until his tumor shrinks from that site. Oct 3rd is the next mri so we'll see if there is any improvement, I am quite impressed with Duke and the staff there.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 2, 2016
In reply to @barbkaser "My story is similar but we are now in the clinical trial you mentioned at Duke..." + (show)
@barbkaser

My story is similar but we are now in the clinical trial you mentioned at Duke taking the MRZ . His tumor is too close to the bridge between the right and left side of the brain so they can't give him the polio vaccine until his tumor shrinks from that site. Oct 3rd is the next mri so we'll see if there is any improvement, I am quite impressed with Duke and the staff there.

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Thinking of you @barbkaser as you prepare for tomorrow's MRI. Please let us know how it goes.

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