My husband was dx with glioblastoma
I am new to this group. My husband was dx with glioblastoma stage 4 July 2014, he is 73. The tumor was completely removed, he had 30 radiation treatments of 42 temadar treatments. It has been a year and his MRIs are clear. His reaction time and short term memory is not what it use to be but otherwise he has a good quality life other than dreading the MRI as we have been told it will come back and was given 12-15 mos. It has been 13 mos and he is still doing well. Would like to hear from others who have had glioblastoma.
How wonderful that you have good doctors and more importantly that you can be hopeful in your situation. Blessings!Teresa
What a wonderful attitude you both have! Best wishes and my prayers go with you both!Teresa
@colleenyoung, I saw your message regarding glioblastoma and wanted to make sure everybody hears about the Duke University “breakthrough,” as declared by the FDA. CBS News broadcast details on its 60 Minutes program back on May 15, making it clear that it is one of the most exciting prospects ever in the war against cancer in general, not only brain tumors. I’d guess that @ljsandlin, @eaglesview, @jeannie2, @cynaburst, @adri, and many others will be greatly interested. Here are two links to the CBS News reports on the breakthrough:
http://www.cbsnews.com/news/60-minutes-fda-breakthrough-status-duke-university-cancer-therapy/http://www.cbsnews.com/videos/whats-next-in-fighting-cancer-with-polio-virus/
Using modified polio viruses, Duke U medical scientists successfully attacked and killed glioblastoma in several patients. Although the cancer came back in a few cases, it had been made vulnerable to cancer-cell killers in their newly tuned-in immune systems that were working on the second tumor. The FDA and Duke are so encouraged by the discovery that they advanced it to Phase 2 testing that will be conducted through trials in 40 locations around the country!
At this stage of the research, such encouraging news is nevertheless conditional — participants in the trials can get the benefits in the medium term, but others must wait until the trials are completed and the therapy is offered to all. Until then, patients and their families may develop false hopes about obtaining a treatment now that is at least months away from being available to them.
Thanks for posting this @predictable. While this research indeed is very promising, I appreciate your pointing out that the study is in phase 2 trials, meaning that it will still be some time before this becomes standard treatment. It is important to evaluate the research reported in the news as you have done here.
I found this thorough article from the Family Caregiver Alliance on Evaluating Medical Research Findings and Clinical Trials
https://www.caregiver.org/evaluating-medical-research-findings-and-clinical-trials It is well worth the read.
Thanks! He is doing fabulous and I am almost able to put the diagnosis in the back of my mind! We have been and continue to be blessed!
We are doing great! June MRI shows all is well. Treatments are 5/23 Temodar -today is end of 5 cycles. He is on a 6 month Bactrim prescription as side effects of Temodar can produce pneumonia in some people. Life is good right now!
Great news! Thanks for letting us know.
So encouraging and so many blessings to be thankful for. My mom passed away from a stage 4 GBM. It is truly a scary process. Stay positive and living each and everyday to it’s fullest. Will keep each one of you and your loved ones in our prayers.
Thanks for responding. We are keeping positive and taking time to enjoy time together! Sorry to hear of your Moms passing. One never knows the future.
My hubby was diagnosed in December 2015. They surgically removed 95%. He received radiation and chemo for 6 weeks. We are now on chemo maintenance. Hubby is doing well and loads of folks are praying. We’ve been to Duke for consultation. If it comes back we will go to Duke for possible clinical trial. Duke has had great success with trials, particularly with inserting the polio virus into tumors. We live outside Atlanta and Duke is only a few hours away. Make sure you inquire about clinical trials
My story is similar but we are now in the clinical trial you mentioned at Duke taking the MRZ . His tumor is too close to the bridge between the right and left side of the brain so they can’t give him the polio vaccine until his tumor shrinks from that site. Oct 3rd is the next mri so we’ll see if there is any improvement, I am quite impressed with Duke and the staff there.
Thinking of you @barbkaser as you prepare for tomorrow’s MRI. Please let us know how it goes.