Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@maisie2

I would like to be tagged on this discussion too as I am totally blinded by this and too embarrassed to talk to the doctor about it. I don’t know if it’s vaginal or rectal prolapse. I suspect rectal since I’ve suffered so often from chronic constipation/diarrhea. Can someone tell me what the symptoms of each…

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maosoe2. the symptoms of rectal prolapse is a bulge that comes out of your rectum when you go to the bathroom. According to how severe it is, right now I can manually push it back in. I need to strain to pee because I have some nerve damage to bladder since a hysterectomy in 1985. So straining will cause it. IF you can stop straining and it is not bad, maybe you can take care of it yourself. Otherwise surgery is the only option. I have yet to hear of anyone who has had the rectal prolapse surgery and how it went. You can tell if a red mass comes out of your anus……I now have a dischare of mucus and it is making it harder to pee so I will probably have the surgery. I have been trying to help my bladder first with medications, which haven't worked, now will try PTNS with an acupuncturist, and if that doesn't work, looks like I might be self-catherizing…….So, I hope I helped.@

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@mary1234

My major conerns about the rectal prolapse surgery is that it could do something to the bladder. I strain to pee and have been trying to take care of that with meds, etc. Am starting PTNS with an acupuncturist this Thursday. With the nurse didn't work. I am afraid I will have to self-catherize because I know you can't strain after the prolapse surgery. Will I be in a position to do that after the surgery? I mean, I am afraid of complications of the surgery. Did you know you had rectal prolapse, I mean with symptoms? You had 2 surgeries at once, and that is very brave of you. My rectum comes out when I pee and I manually push it back in. Lately I have been having mucus discharge so I know it is getting worse. I guess I want to reassured that the surgery will really fix it. I might end up having to self-cath. Thank you for your reply. –Mary

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Hi, @mary1234 – Though I did have rectal prolapse surgery, I'm afraid I don't know about whether it can do anything to the bladder. I had bladder prolapse repairs at the same time, and the rectal prolapse surgery didn't hurt anything with the bladder, to my knowledge.

I did have to have a catheter (a small tube inserted into my bladder to drain urine) at home for a week following my surgery. To be honest, it was not a picnic, but doable. I did have my mother-in-law, who is a nurse, staying with us and helping me with it for that time. If you have anyone living with you at home, it would help to have them on hand to help out, if needed, but I think you can do it on your own. I did have an accidental spillage incident with my catheter, and my husband helped me deal with it.

I didn't know I had rectal prolapse till I went in to the urogynecologist about my bladder prolapse and found out I also had rectal prolapse. After he told me this, which was new information for me, I then noticed a tiny lump coming out of my rectal area. This meant that I had experienced significant drop and still needed repair, but not to the extent that I had a lot of protrusion. I did not have the situation of needing to push that part of my anatomy back inside or any mucus.

I feel confident that the rectal prolapse surgery was successful in my case.

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@pizon

hello I am feeling very sore today but am up walking still have a ball hopefuly that will go away very upsetting but not life threating

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Hi, @pizon – sorry to hear you've had a lot of soreness. That is unfortunate you still have the feeling of sitting on a ball. How long did your doctor want to wait to assess whether you still have that situation?

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My original dr (Howard Goldstein) said I had many different things with each visit after the original prolapse repair (appx. 8 visits from 03/2017 till the last visit in April of 2018 where he told me we had to remove 2 stiches which crystalized and if that didn't work then he would take my uteras) needless to say I went to a new dr. in PA…..Dr. Goldstein told me I had IC then it was a bad back then it was IC again so he had no idea that it was a nerve issue…..please anyone else who reads this make sure your Dr. knows exactly what is wrong with you before you let him go cutting on you….I felt like a mortage payment

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A few of you have talked about vaginal or rectal prolapse or related surgery, so wanted to check in with you. Likely everyone in the discussion will benefit from what you have to say and your experiences.

@pizon – how has your recovery from surgery been? Are you still experiencing the sensation of sitting on a ball?

@mary1234 – how are the sessions going with the acupuncturist?

@maisie2 – did you learn anything further on whether you have prolapse?

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I had a bladder prolapse and I opted for surgery(sacrocolpopexy). It was done robotically (DaVinci). I had it done in March, minimal discomfort, five small scars and I am doing fine. It is imperative to find an experienced doctor!!!!!! No more squats with weights, horseback riding, motorcycling, etc. But that is o.k. I am glad I did it, I am 78 years old and walk three miles every day, do light weights, sit ups, and stretching exercises.
Friedelknoll1940

Liked by Lisa Lucier

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@lisalucier

A few of you have talked about vaginal or rectal prolapse or related surgery, so wanted to check in with you. Likely everyone in the discussion will benefit from what you have to say and your experiences.

@pizon – how has your recovery from surgery been? Are you still experiencing the sensation of sitting on a ball?

@mary1234 – how are the sessions going with the acupuncturist?

@maisie2 – did you learn anything further on whether you have prolapse?

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This summer I had a bladder prolapse diagnosed as being between a 2-3. Currently have a pessary upon commendation of a young Obgyn. I did have back to back bladder infections, but none recently. Am considering surgery, as my age 50 plus Obgyn recommended surgery which he does vaginally. The young Obgyn uses laparoscopic surgery, and recommended the pessary. My question is what women have experienced with a pessary, and the recuperating time for repairing a bladder prolapse.

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@astabenno1990

I had a bladder prolapse and I opted for surgery(sacrocolpopexy). It was done robotically (DaVinci). I had it done in March, minimal discomfort, five small scars and I am doing fine. It is imperative to find an experienced doctor!!!!!! No more squats with weights, horseback riding, motorcycling, etc. But that is o.k. I am glad I did it, I am 78 years old and walk three miles every day, do light weights, sit ups, and stretching exercises.
Friedelknoll1940

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I posted recently @mjforch, and was ordering WHO/LOCATION of hospital where you surgery was completed (at Mayo?). How long was your recovery, and is your prolapse better? I’m 58, and am wondering when or if I should have surgery.

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@mjforch

I posted recently @mjforch, and was ordering WHO/LOCATION of hospital where you surgery was completed (at Mayo?). How long was your recovery, and is your prolapse better? I’m 58, and am wondering when or if I should have surgery.

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Hi, @mjforch, and welcome to Connect. I had bladder (and rectal) prolapse repair surgery personally almost 7 years ago. I had my surgery at Mayo Clinic. It was performed the end of January and it wasn't till May that I didn't need to take a nap every day. The recovery was rather long and challenging. My bladder is starting to dip down again, but not to the point where it was when I had the surgery. I have also had a pessary, and I found it tolerable, but not optimal.

I'd also like to invite @pizon @letsgo @skd43usa @galah11@friendlyhelp @goldentretriever65 @smartchick43 into this conversation to comment on bladder prolapse and use of a pessary or when or if one might have surgery. @contentandwell may also have some thoughts on this.

@mjforch – my understanding is that you are using the pessary in the meantime, and considering whether to stay with it or have the surgical repair for your bladder prolapse? Is that correct? Are you currently leaning toward having the surgery or away from it?

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@lisalucier

Hi, @mjforch, and welcome to Connect. I had bladder (and rectal) prolapse repair surgery personally almost 7 years ago. I had my surgery at Mayo Clinic. It was performed the end of January and it wasn't till May that I didn't need to take a nap every day. The recovery was rather long and challenging. My bladder is starting to dip down again, but not to the point where it was when I had the surgery. I have also had a pessary, and I found it tolerable, but not optimal.

I'd also like to invite @pizon @letsgo @skd43usa @galah11@friendlyhelp @goldentretriever65 @smartchick43 into this conversation to comment on bladder prolapse and use of a pessary or when or if one might have surgery. @contentandwell may also have some thoughts on this.

@mjforch – my understanding is that you are using the pessary in the meantime, and considering whether to stay with it or have the surgical repair for your bladder prolapse? Is that correct? Are you currently leaning toward having the surgery or away from it?

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As I mentioned before……no problems with my prolapse surgery….sacro polpopexy……done by Da Vinci robot at Memorial Herman in Houston. I had it in March, no discomfort, no down time, and I am 78 years old.

Liked by Lisa Lucier

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@mjforch

I posted recently @mjforch, and was ordering WHO/LOCATION of hospital where you surgery was completed (at Mayo?). How long was your recovery, and is your prolapse better? I’m 58, and am wondering when or if I should have surgery.

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I am 57 and 2 yrs ago I prolapsed all at once to stage 2-3 after the surgery was done to correct it over a yr and half ago it left me with nerve damage….if you can live with it please do

Liked by Lisa Lucier

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@lisalucier

Hi, @mjforch, and welcome to Connect. I had bladder (and rectal) prolapse repair surgery personally almost 7 years ago. I had my surgery at Mayo Clinic. It was performed the end of January and it wasn't till May that I didn't need to take a nap every day. The recovery was rather long and challenging. My bladder is starting to dip down again, but not to the point where it was when I had the surgery. I have also had a pessary, and I found it tolerable, but not optimal.

I'd also like to invite @pizon @letsgo @skd43usa @galah11@friendlyhelp @goldentretriever65 @smartchick43 into this conversation to comment on bladder prolapse and use of a pessary or when or if one might have surgery. @contentandwell may also have some thoughts on this.

@mjforch – my understanding is that you are using the pessary in the meantime, and considering whether to stay with it or have the surgical repair for your bladder prolapse? Is that correct? Are you currently leaning toward having the surgery or away from it?

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@lisalucier Wow, there is a wealth of information here, thank you for involving me.

I have seen a urogynecologist at MGH two times for urinary incontinence. I presume that is from a prolapsed bladder. The first thing she recommends is PT, there are specialists in PT who deal with urinary incontinence. Basically the PT teaches you umpteen ways to do Kegels — walking, sitting, when you arise from sitting, and so on and so on. The doctor has also prescribed a drug for me, trospium. I am just finally picking it up today, it took forever to get the doctor and pharmacy to coordinate for a pre-approval. It's a fairly new drug so will cost me a bit more than my other prescriptions, about $57 a month. If it helps though it is worth it.

So far there has been no mention of surgery, except to possibly to repair a rectocele which is related to fecal incontinence not urinary incontinence. I never had a problem with that until I got on immunosuppressants and now I do. Mine is exacerbated by eating certain foods — healthy foods, like oatmeal, strawberries, blueberries, and salads!. I am still trying to get a more definite feel for what I can and cannot eat. I was having wonderful salads every day for lunch with lettuce, strawberries, chicken, and goat cheese so I have stopped them. I am beginning to suspect the berries are the biggest cause of my soft stools. With a rectocele, some of the fecal matter gets caught in what's sort of a hernia, and then since it is soft, can seep out later. I do also have weak anal muscles though, does the surgery help that?

No mention has been made of a pessary. I guess that's something I should ask about. What exactly does a pessary do? I don't think my urinary incontinence is the type that can be helped with surgery, it is urge incontinence. I do need to address the other problem though. She wants me to see my gastro first and have some tests to get a better definition of exactly what is wrong.

I have shared here more than I have shared with ANYONE. I find this to be a rather embarrassing topic so it is nice to have people to share with who have similar problems. I am discouraged that the recovery from surgery takes so long.
JK

Liked by Lisa Lucier

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@contentandwell

@lisalucier Wow, there is a wealth of information here, thank you for involving me.

I have seen a urogynecologist at MGH two times for urinary incontinence. I presume that is from a prolapsed bladder. The first thing she recommends is PT, there are specialists in PT who deal with urinary incontinence. Basically the PT teaches you umpteen ways to do Kegels — walking, sitting, when you arise from sitting, and so on and so on. The doctor has also prescribed a drug for me, trospium. I am just finally picking it up today, it took forever to get the doctor and pharmacy to coordinate for a pre-approval. It's a fairly new drug so will cost me a bit more than my other prescriptions, about $57 a month. If it helps though it is worth it.

So far there has been no mention of surgery, except to possibly to repair a rectocele which is related to fecal incontinence not urinary incontinence. I never had a problem with that until I got on immunosuppressants and now I do. Mine is exacerbated by eating certain foods — healthy foods, like oatmeal, strawberries, blueberries, and salads!. I am still trying to get a more definite feel for what I can and cannot eat. I was having wonderful salads every day for lunch with lettuce, strawberries, chicken, and goat cheese so I have stopped them. I am beginning to suspect the berries are the biggest cause of my soft stools. With a rectocele, some of the fecal matter gets caught in what's sort of a hernia, and then since it is soft, can seep out later. I do also have weak anal muscles though, does the surgery help that?

No mention has been made of a pessary. I guess that's something I should ask about. What exactly does a pessary do? I don't think my urinary incontinence is the type that can be helped with surgery, it is urge incontinence. I do need to address the other problem though. She wants me to see my gastro first and have some tests to get a better definition of exactly what is wrong.

I have shared here more than I have shared with ANYONE. I find this to be a rather embarrassing topic so it is nice to have people to share with who have similar problems. I am discouraged that the recovery from surgery takes so long.
JK

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Hi Lisa Luceir,
I hope I’m answering the right email! If you have a problem with soft stools which I do and a bowel prolapse, my urologist suggested Metamucil to add bulk to help my loose stools. A lot of people think that Metamucil is only for constipation. Also I have found that chocolate and cheese will firm up bowels. Some people don’t have same results with chocolate, it makes their bowels loose. I don’t think you have to give up up your nutricious salads and oatmeal with berries. Just add cheese to your salads and I think your problem will be solved. As for the oatmeal, add some form of chocolate to it like like the almond butter with chocolate in it. I’m not a doctor, but these methods have worked for me! By the way I also have a prolapsed bladder and surgery will only make it worse at this point. I’m starting PT for it too as soon as I get an appt. Let me know if these changes help.

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I did some PT for my prolapsed bladder, but I unfortunately was one of the percentage of people who "fail" that treatment. I evidently have very poor coordination of my pelvic floor muscles, and when asked to clench one would clench another, and so forth. I think at times the physical therapist may have thought I was kidding in those instances, but I actually was trying really hard to do as I was asked. Required a lot of concentration on my part. So, eventually I learned from my therapist that I was deemed to have failed this therapy (I always think of it in terms of a treatment failing the patient, though). My understanding is that pelvic floor PT is helpful for many women with prolapse, however.

@contentandwell – the pessary is used to push the bladder back up so that it is not protruding out of the body or not putting pressure on the opening and feeling uncomfortable. This Mayo Clinic information on pessaries shows some of the types https://www.mayoclinic.org/diseases-conditions/urinary-incontinence/multimedia/pessary-use/img-20006056. I've tried the ring type.

After I finally had the surgery to correct the prolapsed bladder and rectum, my urogynecologist actually suggested just what you are saying, @coralbells1: he said he tells all his patients to take a fiber supplement powder daily (I take the clear, tasteless kind in my morning coffee).

@astabenno1990 – sounds like your prolapse surgery and recovery went really well. Do you think about it much anymore?

@pizon – where are things at with the nerve damage now after your correction surgery?

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@lisalucier

Hi, @mjforch, and welcome to Connect. I had bladder (and rectal) prolapse repair surgery personally almost 7 years ago. I had my surgery at Mayo Clinic. It was performed the end of January and it wasn't till May that I didn't need to take a nap every day. The recovery was rather long and challenging. My bladder is starting to dip down again, but not to the point where it was when I had the surgery. I have also had a pessary, and I found it tolerable, but not optimal.

I'd also like to invite @pizon @letsgo @skd43usa @galah11@friendlyhelp @goldentretriever65 @smartchick43 into this conversation to comment on bladder prolapse and use of a pessary or when or if one might have surgery. @contentandwell may also have some thoughts on this.

@mjforch – my understanding is that you are using the pessary in the meantime, and considering whether to stay with it or have the surgical repair for your bladder prolapse? Is that correct? Are you currently leaning toward having the surgery or away from it?

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Thanks for the response. I’ve been to two OBGYNs locally, the one I’d seen for years recommended surgery, and the second one, who is much younger recommended a pessary. I didn’t even know what a pessary was, and can review the symptoms in hindsight, and can see that I was slowly heading towards a prolapse. (Had one child over 9 lbs with forceps, 34 years ago.) I’m not sure what my next course of action will be, frankly.
My story is at the last part of July I felt like my insides were “hanging low”. The OBGYN I’ve gone to for about 10 years diagnosed a bladder prolapse, described a pessary as messy, and assured me I wouldn’t like it, didn’t even insert one. He said he did surgery vaginally, and suggested that as an option. I put the surgery off because I needed to be with our daughter, who was having a child the first part of October. I knew I couldn’t do surgery and be with our daughter if an August surgery was done. In the meantime, I got a second opinion from a younger OBGYN, and he inserted the pessary. I did have two UTI’s back to back, which apparently sometime happens, but I was able to be with our daughter, and the pessary is doing its “job” so to speak. Our daughter had a beautiful baby boy, and I made it through the mini “prolapse” crisis by using the pessary. I can insert it on my own. It sometimes feels strange, and I’m considering surgery
The OBGYN I’ve done to for years is in his 50’s, and does vaginal surgeries. The younger OBGYN does laparoscopic surgery.
My questions are 1) Which surgery is best (vaginally or laparoscopic)? 2) Can the prolapse really be “fixed”, or will I go through a surgery and still need a pessary? I’m 58, do take a blood pressure med, and another med for hypothyroidism, but would consider myself healthy.

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