Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@msan

I have the same surgery that you had scheduled for October 18th. Robotic Sacrocolpopexy and robotic hysterectomy. They will do a cystoscopy too to see if I would be incontinent after surgery, and would fix this during surgery if this be the case. I am fine with having the operation, my question is after my 8 week recuperation period of lifting nothing more than 15 lbs, no gym and no sex, what will my exercise limitations be. The doctor (uro-gyn) said for the rest of my life I should not pick up anything heavy….but what does that mean? 15 lbs? 20 or 25? Also, I always did zumba ( I am 65 years old) and now I am afraid to go back to it. There is jumping at times, etc. What type of exercise are you doing to stay fit? Any advice would be appreciated.

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well at this time I am doing yoga a lot of stretching you should ask your dr. about the weight limations I try to stay with no more then 25 lbs. I am scheduled for removal of the stiches in the back (not all) on the 18th of this month by the dr. out of state I feel that I am in good hands for this dr. has done removal of scar tissue around the nerves many times before….I wish you all the best

Liked by Lisa Lucier

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I'm interested in hearing any discussion of colpocleisis surgery.

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@tobiw

I'm interested in hearing any discussion of colpocleisis surgery.

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Hello, @tobiw — since your topic, colpocleisis surgery, is a vaginal closure used to treat prolapse, I've merged your post with this discussion on prolapse.

Hoping that members here knowledgeable about prolapse, like @pizon @gailg @AlwaysHopeful @prolapsehelp and others may have some information and insights to share about this option for treatment.

If you have any further background on your situation, @tobiw, that would be helpful. Are you looking at colpocleisis surgery and also other options?

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@pizon

well at this time I am doing yoga a lot of stretching you should ask your dr. about the weight limations I try to stay with no more then 25 lbs. I am scheduled for removal of the stiches in the back (not all) on the 18th of this month by the dr. out of state I feel that I am in good hands for this dr. has done removal of scar tissue around the nerves many times before….I wish you all the best

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Hello, @pizon – thinking of you since you'd mentioned you were having some stitches removed yesterday due to scar tissue building up over the nerves after your bladder and uterus repair. Wondering how you are doing today?

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@maisie2

I would like to be tagged on this discussion too as I am totally blinded by this and too embarrassed to talk to the doctor about it. I don’t know if it’s vaginal or rectal prolapse. I suspect rectal since I’ve suffered so often from chronic constipation/diarrhea. Can someone tell me what the symptoms of each…

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In reply to @colleenyoung, I suffer from rectal prolapse. You know if it is rectal because a bulge will come out of your rectum when you go to the bathroom. I had a radical hysterectomy in 1985 and had some nerve damage to my bladder. I have been straining to pee all these years and developed a rectal prolapse. I do not want to self-catherize so have been working with urologists lately to see if they can help with medication as my prolapse is getting worse and I am pretty sure I should have surgery for it and am afraid. Every time I pee it comes out and I manually push it back in. I would like to know if anyone has had this problem and has had rectal prolapse surgery? I tried PTNS for the bladder by urologist's nurse but it did not work. I will try an acupuncturist. Meds give me side effects. Anyway, if anyone can tell me if they had rectal prolapse surgery and what it is like. I also have IBS, sounds like what you have. Hope I helped some. –Mary.

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@sueblue

Hi y @skd43usa, – sorry to hear you have all 3 prolapsed. I have had a prolapsed urethra for years but have not done anything to correct it. However, I have recently gotten a mucosal rectal prolapse and that is devastating. I had severe hypothyroidism and they made me get the radioactive iodine pill to kill off the thyroid. However I was overdosed and it caused extremely bad constipation when I turned hypothyroid , thus the prolapse from straining. I also have a mucous discharge from the anus, probably from the inflammation as the prolapse comes in and out at will and I wipe it and wash it at times. I am going to pelvic PT to try to strengthen the sphincter muscle but so far I am not doing that well. The therapist insisted on doing a vaginal exam to test the shphincter tone and I think she pushed a bit of the discharge up into my vagina as I have developed a yellowy discharge from the vagina since ten. I am afraid to go to the
gyn as I do not know how to prevent leakage from the back door and do not want more pushed up there. A;lso I am 79 and very atrophic and in the past after a gyn visit I bleed for 2 days from the speculum opening me up.

Do you have a discharge problem from the back door as well? If so how do you handle it? I tried putting a gauze pad there between my cheeks but because of the prolapse coming in and out, it stuck to the gauze pad and hurt when I took it off to pee. Luckily it did not bleed but afraid to do that again. As far as surgery there, I have been advised that it can make the situation worse, is not a permanent fix, and could cause permanent real bowel incontinence when they fool around with the sphincter muscle. Don't know if I can live with this one tho. It is taking my life away. Occasionally I do even get some fecal leakage but not too often, just the yellow mucous which do strain my undies. I was throwing them out but now bleach them first and rewash as could not afford new undies every week. I also find that at nite anything running ut goes to the front area which is disturbing so at nite I do put a 2 x 2 gauze pad between my vagina and anus to prevent anyting from leaking that diretion. However I put a vit of vaseline on my AH so if the pad should touch the prolapsed insides it wont stick and maybe tear me. Can't do that during the day however as it is very irritatting to have the pad there when sitting, etc. and it also falls out from my cheeks easuily. If it was just incontinence and no prolapse I coud handle it better.

Do you have any suggestions how to go to the gyn for an exam? I am more afraid of the days afrter I guess as I am afraid of any contamination in the area of the vaginal opening where it will be bleeding and open for infection, or worse sepsis – getting into my blood stream.

Hell to get old!!!!!!

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In reply to sueblue – I have a rectal prolapse and it is devastating. My straining is due to some nerve damage to my bladder years ago from a hysterectomy and straining since then. I have a mucous discharge from the anus. What I do is wear a large panti liner and a smaller organic cotton one over it. When it is wet I just change it. I am 74 and also atrophic. I would not put a gauze pad there because I think it would stick, but a regular soft pad to keep changing. I have heard that rectal prolapse surgery is the only solution and many have benefitted from it. But I have not heard from one person to state this, only research on the web. My prolapse comes out every time I strain to pee. Sounds like your's is coming out more. I would see a good colon rectal doctor if I were you. I saw a good one last year and keep putting it off but it does get worse. Let me know how you make out. –Mary.

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@lisalucier

Hi, @sueblue — I'd like to introduce you to some other members who may have some thoughts for you on your mucosal rectal prolapse with fecal incontinence and the discharge you've been experiencing. Please meet @pma58, @letsgo, @coliemore, @dreamin1037, @aithnie and @cowboy1997 . I also thought you'd like to meet @sandytoes14, @hopeful33250 and @kariulrich.

I thought you might be interested in one of the Mayo clinic videos about fecal incontinence, here: http://mayocl.in/2CfJac9.

How are you holding up emotionally with this situation?

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Lisa Lucier, please add me to this list of rectal prolapse, Mary1234. Thank you.

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@mary1234

Lisa Lucier, please add me to this list of rectal prolapse, Mary1234. Thank you.

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Hi, @mary1234 – I see that you've recently joined Mayo Clinic Connect, and I wanted to welcome you. Your posting here automatically adds you to those following this discussion on prolapse and notified about new posts.

I'm sorry to hear about the rectal prolapse. I have actually had rectal prolapse surgery personally. My bladder prolapse got very bad three years after my youngest son's delivery, such that it was interfering with walking (felt like I walked like a cowboy, due to protrusion), chafed when I exercised, bothered me when I sat and a host of other issues. I'd already done sling surgery before and knew from previous talks with the urogynecologist that a hysterectomy plus repairs was the likely answer. What I didn't expect to hear was that I had rectal prolapse. I was unaware of it. I guess I was a "dropped but not protruding" case.

So, I had this surgery in combination with the hysterectomy and repairing the bladder to the correct position.

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@lisalucier

Hi, @mary1234 – I see that you've recently joined Mayo Clinic Connect, and I wanted to welcome you. Your posting here automatically adds you to those following this discussion on prolapse and notified about new posts.

I'm sorry to hear about the rectal prolapse. I have actually had rectal prolapse surgery personally. My bladder prolapse got very bad three years after my youngest son's delivery, such that it was interfering with walking (felt like I walked like a cowboy, due to protrusion), chafed when I exercised, bothered me when I sat and a host of other issues. I'd already done sling surgery before and knew from previous talks with the urogynecologist that a hysterectomy plus repairs was the likely answer. What I didn't expect to hear was that I had rectal prolapse. I was unaware of it. I guess I was a "dropped but not protruding" case.

So, I had this surgery in combination with the hysterectomy and repairing the bladder to the correct position.

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Lisa Lucier, how was the rectal prolapse surgery? Was it successful? How long did it take for you to recover from it? Thank you.

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Please let me know how your rectal prolapse surgery went? Was it successful with no complications? Thank you.

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@lisalucier

Hello, @pizon – thinking of you since you'd mentioned you were having some stitches removed yesterday due to scar tissue building up over the nerves after your bladder and uterus repair. Wondering how you are doing today?

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Hello and thank you for remembering me…my surgery was Tuesday the 18th and was done by a different dr. then the original dr. in March of 2017..I had 2 stiches that had come thru the vaginal wall and these 2 were removed however the Dr. (and the nerve Dr. in MD) wanted to remove all the stiches in the back of the vagina and they were to far up so they were not able to be removed without doing further nerve damage…so I am playing a waiting game we are hoping that removing the 2 stiches and cleaning out around those nerves will be enough…but I don't think the dr. thinks that will be the case…I have to wait to see if I still have the feeling of sitting on a ball and the pain I will have to go back to the Dr. in MD who specializes in the P/N and get nerve blocks…not the out come I was hoping for but it is early I would like everyone to know that if in the state of DE there is only 1 practice that is uro/gyn and once you start seeing a dr. in that practice you can't see another one in that same practice. The dr I saw did the surgery correctly however du2 having problems with my recovery I feel he didn't take care of me as he should had I had this diagnosis earlier and maybe then the stiches could have been removed???? I do believe there is a reason for everything but I would not recommend the Christiana URO GYN in the state of DE I would travel to Media of Phila PA again thank you

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@mary1234

Lisa Lucier, how was the rectal prolapse surgery? Was it successful? How long did it take for you to recover from it? Thank you.

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Hi, @mary1234 – so, I will try my best to differentiate how the rectal prolapse surgery went from the bladder prolapse repair (hysterectomy plus stitching my bladder back in the correct position), as they were done simultaneously.

What I recall is that at first I did have pain – quite a bit – and that pain management was very important. I really made the wrong decision, in retrospect, telling my nurses and physician the day of my surgery that I did not want any more opioids. I did so because after taking them initially, I saw that look in my husband's eye of "she is babbling nonsense" on the opioids (in kindness, but still that I was not making sense and acting a bit odd), and I didn't like that. So, I asked for other pain meds. That took me on a journey of the medical team trying a host of other options and none of them working well at all. I'm pretty sure that this kept me in the hospital another day, as I believe that pain control is a key factor in being dismissed from the hospital, and I was there more at the outer end of the projected hospital stay time. In my opinion, the pain did merit opioids to properly manage the initial pain.

Once at home, it was key for me to keep up with my alternating schedule I'd been told to follow of taking ibuprofen and acetaminophen. When I set a timer (my husband did this for me initially, even all night) and took those meds on time, my pain was there but tolerable. If I got behind in taking them and was playing catch-up with the pain, it was not a great scenario.

I recall a distinct feeling of being tied up too tight in my rectal area. I don't think so, now, as this did eventually loosen to a normal feeling there. I had to use a lot hemorrhoidal cooling pads, and that helped provide some relief. They have you take a lot of stool softeners after this surgery, and I was thankful for it. Honestly, I was terrified to have my first BM. After surgery in that area, you just feel like that much pressure is going to blow your stitches right out. That was not terribly fun. I did finally get through that hurdle, stitches intact. It didn't feel great, but doable. Having a BM continued to be a concern for another 1-2 weeks, but then was fine.

My recovery from the whole surgery (not just the rectal prolapse) was fairly challenging, cause of pain at first and then the fact that I felt weak and tired for a long time. I had my surgery the end of January, and it was not till May till I didn't have to take a nap every day and I had normal energy again. That was discouraging, and made me question my own strength somewhat. I also had a UTI after surgery (I believe this is fairly common), and then I developed lots of rashing from the medication given to me for it and they had to use other medication.

One thing I learned, in addition to what I've mentioned, was that my expectations were not realistic. I think I expected a perfect surgery and that the "perfect" state I was in down there after my surgery would stay that way forever. Well, seven years later, I know that my bladder has moved back down somewhat (from a urogyn appointment where they measured the bladder's position), though not nearly to where I was at surgery time. I don't know about the rectal area, as that was not measured. I'm sure it's not 100 percent perfect anymore. I think if I'd expected to be, say, at least 75% better post-surgery, I'd have been more realistic.

@mary1234 – what are your major concerns with having the rectal prolapse surgery?

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@pizon

Hello and thank you for remembering me…my surgery was Tuesday the 18th and was done by a different dr. then the original dr. in March of 2017..I had 2 stiches that had come thru the vaginal wall and these 2 were removed however the Dr. (and the nerve Dr. in MD) wanted to remove all the stiches in the back of the vagina and they were to far up so they were not able to be removed without doing further nerve damage…so I am playing a waiting game we are hoping that removing the 2 stiches and cleaning out around those nerves will be enough…but I don't think the dr. thinks that will be the case…I have to wait to see if I still have the feeling of sitting on a ball and the pain I will have to go back to the Dr. in MD who specializes in the P/N and get nerve blocks…not the out come I was hoping for but it is early I would like everyone to know that if in the state of DE there is only 1 practice that is uro/gyn and once you start seeing a dr. in that practice you can't see another one in that same practice. The dr I saw did the surgery correctly however du2 having problems with my recovery I feel he didn't take care of me as he should had I had this diagnosis earlier and maybe then the stiches could have been removed???? I do believe there is a reason for everything but I would not recommend the Christiana URO GYN in the state of DE I would travel to Media of Phila PA again thank you

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@pizon – good to hear from you. I really hope that removing the two stitches and cleaning out around those nerves will be enough so you can get rid of the pain and the feeling of sitting on a ball.

How are you feeling today, following your surgery this week?

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@lisalucier

@pizon – good to hear from you. I really hope that removing the two stitches and cleaning out around those nerves will be enough so you can get rid of the pain and the feeling of sitting on a ball.

How are you feeling today, following your surgery this week?

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hello I am feeling very sore today but am up walking still have a ball hopefuly that will go away very upsetting but not life threating

Liked by Lisa Lucier

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@lisalucier

Hi, @mary1234 – so, I will try my best to differentiate how the rectal prolapse surgery went from the bladder prolapse repair (hysterectomy plus stitching my bladder back in the correct position), as they were done simultaneously.

What I recall is that at first I did have pain – quite a bit – and that pain management was very important. I really made the wrong decision, in retrospect, telling my nurses and physician the day of my surgery that I did not want any more opioids. I did so because after taking them initially, I saw that look in my husband's eye of "she is babbling nonsense" on the opioids (in kindness, but still that I was not making sense and acting a bit odd), and I didn't like that. So, I asked for other pain meds. That took me on a journey of the medical team trying a host of other options and none of them working well at all. I'm pretty sure that this kept me in the hospital another day, as I believe that pain control is a key factor in being dismissed from the hospital, and I was there more at the outer end of the projected hospital stay time. In my opinion, the pain did merit opioids to properly manage the initial pain.

Once at home, it was key for me to keep up with my alternating schedule I'd been told to follow of taking ibuprofen and acetaminophen. When I set a timer (my husband did this for me initially, even all night) and took those meds on time, my pain was there but tolerable. If I got behind in taking them and was playing catch-up with the pain, it was not a great scenario.

I recall a distinct feeling of being tied up too tight in my rectal area. I don't think so, now, as this did eventually loosen to a normal feeling there. I had to use a lot hemorrhoidal cooling pads, and that helped provide some relief. They have you take a lot of stool softeners after this surgery, and I was thankful for it. Honestly, I was terrified to have my first BM. After surgery in that area, you just feel like that much pressure is going to blow your stitches right out. That was not terribly fun. I did finally get through that hurdle, stitches intact. It didn't feel great, but doable. Having a BM continued to be a concern for another 1-2 weeks, but then was fine.

My recovery from the whole surgery (not just the rectal prolapse) was fairly challenging, cause of pain at first and then the fact that I felt weak and tired for a long time. I had my surgery the end of January, and it was not till May till I didn't have to take a nap every day and I had normal energy again. That was discouraging, and made me question my own strength somewhat. I also had a UTI after surgery (I believe this is fairly common), and then I developed lots of rashing from the medication given to me for it and they had to use other medication.

One thing I learned, in addition to what I've mentioned, was that my expectations were not realistic. I think I expected a perfect surgery and that the "perfect" state I was in down there after my surgery would stay that way forever. Well, seven years later, I know that my bladder has moved back down somewhat (from a urogyn appointment where they measured the bladder's position), though not nearly to where I was at surgery time. I don't know about the rectal area, as that was not measured. I'm sure it's not 100 percent perfect anymore. I think if I'd expected to be, say, at least 75% better post-surgery, I'd have been more realistic.

@mary1234 – what are your major concerns with having the rectal prolapse surgery?

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My major conerns about the rectal prolapse surgery is that it could do something to the bladder. I strain to pee and have been trying to take care of that with meds, etc. Am starting PTNS with an acupuncturist this Thursday. With the nurse didn't work. I am afraid I will have to self-catherize because I know you can't strain after the prolapse surgery. Will I be in a position to do that after the surgery? I mean, I am afraid of complications of the surgery. Did you know you had rectal prolapse, I mean with symptoms? You had 2 surgeries at once, and that is very brave of you. My rectum comes out when I pee and I manually push it back in. Lately I have been having mucus discharge so I know it is getting worse. I guess I want to reassured that the surgery will really fix it. I might end up having to self-cath. Thank you for your reply. –Mary

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