How did you get through after getting covid-19?

Posted by echo2022 @echo2022, Jul 24, 2022

Hey, unfortunately, my test showed two lines, positive after starting have a fever from three days ago. I just got one shot of vaccine on February because I've had abnormal bleeding for several months, so I didn't get the second shot.
I'm very scared now. Having a fever for three days, 110.1 temperature, and coughing heavier. Do you have any experiences to deal with it? Can we take that covid medicine?

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I got Bebtelovimab antibodies infusion in the afternoon. Before I got it, my temperature was almost normal, but it was raising up again when I was back home. I had to take a tablet Tylenol. Everyday the temperature is like riding roller coaster. Hopefully, the infusion would be helpful.
thanks your concerns. @rosemarya @dbg @hello1234

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@echo2022

I got Bebtelovimab antibodies infusion in the afternoon. Before I got it, my temperature was almost normal, but it was raising up again when I was back home. I had to take a tablet Tylenol. Everyday the temperature is like riding roller coaster. Hopefully, the infusion would be helpful.
thanks your concerns. @rosemarya @dbg @hello1234

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Good morning @echo2022 😊 I am very happy to hear you had your infusion of monoclonal antibodies.
Hopefully, the antibodies will kick in today to help. I think a roller coaster of low grade fever is not unusual with covid. But if you see a large spike of fever, I would notify your PCP. Also, are they scheduling you for Remdesivir or is there a problem for them to get that drug? You mentioned that that your PCP"s phone message said that they suggested you have the monoclonal antibodies first because you could get them quicker. I was wondering if your local hospital has it in stock? I am pretty sure, like the antibodies, it needs to be taken early after diagnosis so maybe ask your PCP about it today. I heard the antibodies and Remdesivir are a good one-two punch against the virus. Is that the plan?

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@hello1234

Good morning @echo2022 😊 I am very happy to hear you had your infusion of monoclonal antibodies.
Hopefully, the antibodies will kick in today to help. I think a roller coaster of low grade fever is not unusual with covid. But if you see a large spike of fever, I would notify your PCP. Also, are they scheduling you for Remdesivir or is there a problem for them to get that drug? You mentioned that that your PCP"s phone message said that they suggested you have the monoclonal antibodies first because you could get them quicker. I was wondering if your local hospital has it in stock? I am pretty sure, like the antibodies, it needs to be taken early after diagnosis so maybe ask your PCP about it today. I heard the antibodies and Remdesivir are a good one-two punch against the virus. Is that the plan?

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Yes, my PCP told me that I should get it within 7days. At first my PCP ordered Remedesivir, 3 shots for me. He thought it was safer, but after our video visit, he changed and sent me messages and let me get Bebtelovimab, 1shot. Finally I got Bebtelovimab monoclonal antibody. It seems it doesn't work to me. My situation is still the same.
The transplant specialist in Keck School of Medicine of USC doesn't respond me. I called the hospital on Monday and sent two messages on Friday and Monday. I don't know how to do now. The first time I went to see her was in April and she ordered abdomen Doppler to me. The second appointment is on Sep. 28. It's tooooo long.

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@echo2022

Yes, my PCP told me that I should get it within 7days. At first my PCP ordered Remedesivir, 3 shots for me. He thought it was safer, but after our video visit, he changed and sent me messages and let me get Bebtelovimab, 1shot. Finally I got Bebtelovimab monoclonal antibody. It seems it doesn't work to me. My situation is still the same.
The transplant specialist in Keck School of Medicine of USC doesn't respond me. I called the hospital on Monday and sent two messages on Friday and Monday. I don't know how to do now. The first time I went to see her was in April and she ordered abdomen Doppler to me. The second appointment is on Sep. 28. It's tooooo long.

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I just had a thought about you not getting a return call from Keck. Is it possible that someone called you from an unknown number and it went to spam? My husband blocks calls from unrecognizable (non in contact list) numbers. So they don’t ring, but he can see them in missed calls. We learned that the return call is different from the original call number.
If you have patient portal you might try checked ng there for a possible message.
One day at a time-you can get thru this.

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I didn't set up blocking strange numbers, so I also can get the scammer calls. I also didn't see any missed calls and any return messages in my account in Keck. I'm confused. I don't know if it's necessary that specialists or their nurses need to respond the patients' messages in allotted time or they can choose to answer or not?

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Hi @echo2022
When was the last time you contacted and spoke with your transplant team or transplant nurse for assistance? Do you call a specific person's voicemail or is there a department number that you are calling?

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@echo2022

I didn't set up blocking strange numbers, so I also can get the scammer calls. I also didn't see any missed calls and any return messages in my account in Keck. I'm confused. I don't know if it's necessary that specialists or their nurses need to respond the patients' messages in allotted time or they can choose to answer or not?

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Do you have access to Keck Transplant center via portal, if so update them and I am sure they will respond back... let us know.

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@hello1234

Hi @echo2022
When was the last time you contacted and spoke with your transplant team or transplant nurse for assistance? Do you call a specific person's voicemail or is there a department number that you are calling?

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My first visit is also my last visit with the specialist. It was in April. (I took the surgery in China)
The number I called is supposed to be the hospital number. The nurse answered it and she also transferred it to another nurse or she called another one. In the end she told me that she already left the message to them. They may answer me when the specialist went back on Tuesday.

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@l0lag0lag0b3

Do you have access to Keck Transplant center via portal, if so update them and I am sure they will respond back... let us know.

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Yes, each patient has their own account on Keck hospital website. we can see our test results, bills and messages there. I sent messages there too.

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@echo2022

Yes, each patient has their own account on Keck hospital website. we can see our test results, bills and messages there. I sent messages there too.

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Hi @echo2022 😊
How are you feeling now? Did the monoclonal antibodies help you to feel better? ( I am hopeful that you are improving nicely! )
Maybe the next time you speak with a transplant team member or visit, get specific instructions on the best way to communicate with them if you need a timely response. Explain your covid situation (high fever, heavy cough etc) when you were trying to get medical instructions and you were unable to get to a live person on the phone to answer your questions. I think it's important for you to have notes on exactly what you should do if something medically urgent like this happens again.

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