How did you get through after getting covid-19?

Posted by echo2022 @echo2022, Jul 24, 2022

Hey, unfortunately, my test showed two lines, positive after starting have a fever from three days ago. I just got one shot of vaccine on February because I've had abnormal bleeding for several months, so I didn't get the second shot.
I'm very scared now. Having a fever for three days, 110.1 temperature, and coughing heavier. Do you have any experiences to deal with it? Can we take that covid medicine?

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@hello1234

@echo2022 Yes, I can usually call and speak with a live transplant nurse, even if my assigned nurse is not available. Or if no one is available, I leave a detailed message and a transplant nurse will usually call me back in an hour or two. If you are having problems getting through to someone in transplant, leave an urgent detailed message that you are a transplant patient, you tested positive for covid 3 days ago, you have a high fever, bad cough and you would appreciate to speak with someone in transplant today for instructions. (Don't forget to leave your name, phone number and birthdate clearly).
Do you feel like you should go to the ER? If so, bring your transplant phone number so your local hospital can call transplant for specific instructions. How are you feeling? Are you feeling a little better or worse? Fever? Cough?

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I also called Keck according to the number on the specialist's business card. A nurse said my specialist wasn't in the office today and she already left a message to the specialist's nurse. They may respond me when they see it.

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@rosemarya

@echo2022, I'm breathing a sigh of relief because you were able to make contact with your PCD!
As for the question about Remdesivir - your PCD should contact the transplant team if there is any question. Please ask about how it could affect your immunosuppressant meds. And what kind of follow-up you might need.

Hope you feel better soon 🤍

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I just received my PCD's message. I don't understand very much.
"I believe you are now scheduled to get a monoclonal antibody infusion tomorrow instead called Bebtelovimab that way you only have to go in for one infusion. This will take place of Remdesivir. Both are good options for you and Bebtelovimab will be easier for you to get so we will start with just that"
Did he mean that I'll get Bebtelovimab, one shot, not Remdesivir, three shots? Are Bebtelovimab and Remedesivir both called monoclonal antibody infusion?

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@l0lag0lag0b3

@echo2022, has your temperature come down, if not would like you to address that too, 110 is high high.
Best Wishes and wish you a speedy recovery. Keep us posted.

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yes, it's lower after taking Tylenol. Thank you so much, dear. :))

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@echo2022

I just received my PCD's message. I don't understand very much.
"I believe you are now scheduled to get a monoclonal antibody infusion tomorrow instead called Bebtelovimab that way you only have to go in for one infusion. This will take place of Remdesivir. Both are good options for you and Bebtelovimab will be easier for you to get so we will start with just that"
Did he mean that I'll get Bebtelovimab, one shot, not Remdesivir, three shots? Are Bebtelovimab and Remedesivir both called monoclonal antibody infusion?

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@echo2022 It's my understanding that Bebtelovimab is a monoclonal antibodies treatment and Remdesivir is an antiviral.

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@hello1234

@echo2022 It's my understanding that Bebtelovimab is a monoclonal antibodies treatment and Remdesivir is an antiviral.

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Does Bebtelovimab address variants Ba4/5 ...

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@l0lag0lag0b3

Does Bebtelovimab address variants Ba4/5 ...

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yes it does just found out: https://www.fda.gov/media/156152/download

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Hi echo2022, Despite precautions, both vaccines & a booster, Covid caught up with me late April. As I am 82 ,high risk ( respiratory issues), my Dr put me on Paxlovid immediately & steroid, then Zithromax a few days later when cough got worse. No fever. It Took me 2 weeks at home to tést neg. & start to feel normal. Not real sick, just tired, weak, & the cough until the antibiotic won, not real interested in TV, reading, just letting hours pass vegetating without even feeling bored. Lots of sleeping. Once I did some dishes and needed a 2 - hour nap. Weird.
I hope yours does not develop into something more miserable than it is now,
Have you/ will you see a doctor?( I hope). Not something you want to play around with on your own.
Are you sure you wrote your temp corréctly- 110!!? At that temp. I don’t think
you’d be writing - or anything else.

All the best,DBG

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@hello1234

@echo2022 It's my understanding that Bebtelovimab is a monoclonal antibodies treatment and Remdesivir is an antiviral.

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P.s. to echo2022:
I see you are being followed by your Dr. and treatment
planned. I had not expanded the messages before replying, and missed that.
Best wishes for good results , and keep us posted please.

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@dbg

Hi echo2022, Despite precautions, both vaccines & a booster, Covid caught up with me late April. As I am 82 ,high risk ( respiratory issues), my Dr put me on Paxlovid immediately & steroid, then Zithromax a few days later when cough got worse. No fever. It Took me 2 weeks at home to tést neg. & start to feel normal. Not real sick, just tired, weak, & the cough until the antibiotic won, not real interested in TV, reading, just letting hours pass vegetating without even feeling bored. Lots of sleeping. Once I did some dishes and needed a 2 - hour nap. Weird.
I hope yours does not develop into something more miserable than it is now,
Have you/ will you see a doctor?( I hope). Not something you want to play around with on your own.
Are you sure you wrote your temp corréctly- 110!!? At that temp. I don’t think
you’d be writing - or anything else.

All the best,DBG

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Yes you are more discrete DBG, at 110 there can be brain damage & is highly likely is my understanding !

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@echo2022

I just received my PCD's message. I don't understand very much.
"I believe you are now scheduled to get a monoclonal antibody infusion tomorrow instead called Bebtelovimab that way you only have to go in for one infusion. This will take place of Remdesivir. Both are good options for you and Bebtelovimab will be easier for you to get so we will start with just that"
Did he mean that I'll get Bebtelovimab, one shot, not Remdesivir, three shots? Are Bebtelovimab and Remedesivir both called monoclonal antibody infusion?

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@echo2022, I hope that tomorrow goes smoothly for you. It sounds like you will get 1 shot of the Bebtelovimab.
I suggest that you write down your questions and take it with you tomorrow. Check that you get a phone number where you can call 24/7 if you have any complications or questions. Take a list of your medications, too. All of us in this discussion are patients, and the experts at the infusion center should be able to explain the details to you.
Is someone going to go along with you?

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