How did you get through after getting covid-19?

Is your Transplant Team aware of the situation ?

@echo2022
Call your Transplant team immediately. Are you on immune suppression drugs for transplant? Then do NOT take the new Pfizer Paxloid covid drug. Mayo sent out an alert to all transplant patients taking immune suppression meds that this new drug can cause elevated levels of our immune suppression meds. Depending on your health situation, your transplant team may suggest a monoclonal antibodies infusion within the first several days (antibodies have to be administered early to help, Remdesivir may help, etc). Definitely call your transplant team first this morning. Please come back and post what they say and let us know how you are doing!

@echo2022 - Seek Medical Care NOW! If you don't have a transplant nurse or transplant doctor - Contact or go to your Emergency Medical center.

I'd like to know can you usually call your transplant and talk with them at once? I only can call the hospital and the nurse will transfer to another nurse or other places, then they tell me that they leave a message to the doctor or the nurse. They may respond me when they see it.

Tell the person who answers the phone this, “my name is…. I am a transplant recipient. My temperature is….. and I have Tested positive for Covid and have symptoms. I need to speak with someone about what to do.”
With a positive test and symptoms, You should not go there unless they tell you to.

I hope this helps you to get the help and care you need.

@echo2022 Yes, I can usually call and speak with a live transplant nurse, even if my assigned nurse is not available. Or if no one is available, I leave a detailed message and a transplant nurse will usually call me back in an hour or two. If you are having problems getting through to someone in transplant, leave an urgent detailed message that you are a transplant patient, you tested positive for covid 3 days ago, you have a high fever, bad cough and you would appreciate to speak with someone in transplant today for instructions. (Don't forget to leave your name, phone number and birthdate clearly).
Do you feel like you should go to the ER? If so, bring your transplant phone number so your local hospital can call transplant for specific instructions. How are you feeling? Are you feeling a little better or worse? Fever? Cough?

@echo2022 @rosemary I must have been typing at the same time as Rosemary. I agree with everything Rosemary just said.

I just took a video visit with my PCD. He'll give me Remdesivir, three dozes. Is it ok to us?

@echo2022, I'm breathing a sigh of relief because you were able to make contact with your PCD!
As for the question about Remdesivir - your PCD should contact the transplant team if there is any question. Please ask about how it could affect your immunosuppressant meds. And what kind of follow-up you might need.

Hope you feel better soon 🤍

@echo2022, has your temperature come down, if not would like you to address that too, 110 is high high.
Best Wishes and wish you a speedy recovery. Keep us posted.