Has anyone tried the HF10 Spinal Cord Stimulation Device?

Posted by patrick17 @patrick17, Nov 21, 2018

Has anyone tried a device called HF10 ? It’s a device which stimulates your spinal cord to help relieve back and leg pain. After a trial period of about a week, if the patient is achieving good results the device is implanted in the person. My pain management doctor has recommended it to me for arm and hand nerve pain. I would like to hear from anyone who has used this device and especially from anyone who has used it for arm and hand pain. Thank you.

@donfeld

Dr. Forest Tennant in CA who has been doing research and treatment to many individuals with. Arachnoititis says do not do stimulator unless all preventive care has been tried first. He is now 78 but he still help you with his ideas of preventing our disease from progressing.. He has helped me and his method is out of the box which is what you need to do. Get proactive! Don

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I also have Claudia Equina Adhesive Arachnoiditis (AA). I had a stimulator prior to the AA diagnosis and it drove me crazy. Since every doctor I talk to, doesn’t know what it is and admit after they do, nothing can be done. I was glad to hear your response about Dr. Tenant. My pain doctor says the SCS are improved, but I’m getting a little gun shy of all treatments.

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Sme Lazer treatment in the sacrum have been done in Florida. You have to be your own advacate in highly technical problems. I am a typical unhappy 90 yr old compainer about the late of research in sacrasl and brain movement problems. Screek , screek, parrots.

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@susieparker

I also have Claudia Equina Adhesive Arachnoiditis (AA). I had a stimulator prior to the AA diagnosis and it drove me crazy. Since every doctor I talk to, doesn’t know what it is and admit after they do, nothing can be done. I was glad to hear your response about Dr. Tenant. My pain doctor says the SCS are improved, but I’m getting a little gun shy of all treatments.

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@susieparker Welcome to Mayo Clinic Connect, a place to give and get support. You say you are getting gun shy of all treatments. Would you tell me a littlie more about that?

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@sallymagint

Hi, over the years I’ve had 3 dorsal column Stimulators (2 made by Medtronic the other by Nevro). I found them to be quite affective however please be very stringent in researching any kind of implanted pain device because many of them are not MRI Compatable. I ended up having emergency surgery to have my all my devices and leads removed so I could receive treatment for severe spinal instability.
I’d been complaining of my back feeling like a concertina that was going to collapse at any time. Of course I didn’t know at the time but that was exactly what was happening. One day I lost bowel/bladder control and it suddenly became a medical emergency. The devices were removed, MRI performed and before I knew it I was having a 6 level spinal fusion.
Even if you are told the device is MEI Compatable ring a few radiology/imaging places and ask then if they do MRI’s with pain devices. Many won’t even though some device company’s approve them. 9 mths prior to my back surgery I had brain surgery across the other side of Australia because no radiology would do a Cranial MRI where I live. Over 4000 to be able to have an MRI.

My pain specialist who put the stimulator in was hesitant to remove it because it was so difficult to put in in the first place. Perhaps if it had been removed earlier I wouldn’t have ended up with such complex circumstances surrounding both brain and spinal surgery. It’s important to remember that if you need one of these devices you probably have chronic pain and your condition may require ongoing imaging to monitor whatever condition it. Please check and double check the information you’re given, I would hate anyone to have to go through what I did

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I had a trial with stimulator. I have so much hardware in my back they could not get I to the proper location. I would need a other surgery to even git it to fit. It did not help my pain on the trial so I and my doctor thought we should not pursue putting in a permanent one.

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@donaldjames1 It sounds like your spinal issues are complicated and you are experiencing a lot of pain. Did your provider offer alternative options to the stimulator?

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Had FH 10 installed Oct this year, great job but implant is right on belt line so causes a little trouble. This is just to suggest patient asks about positioning post trial and pre implant

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Hello @bobby55 and welcome to Mayo Clinic Connect! I understand you are interested in sharing your experience with others considering an implanted device.

Because of that, you will see that I have moved your post to an existing discussion on spinal cord devices to share your feedback with other members considering an implanted device.

Can I ask if you've shared your concern/discomfort with your surgeon and if there is anything you are hoping to have done about it?

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@amandajro

Hello @bobby55 and welcome to Mayo Clinic Connect! I understand you are interested in sharing your experience with others considering an implanted device.

Because of that, you will see that I have moved your post to an existing discussion on spinal cord devices to share your feedback with other members considering an implanted device.

Can I ask if you've shared your concern/discomfort with your surgeon and if there is anything you are hoping to have done about it?

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I have had a follow up appointment and mentioned this issue, but I have no intentions of having it removed or replaced !
I just wanted them and possible to let others who may have this system fitted are aware and can discus to prevent issue for anyone else. Other than that I’m most happy with pain relief from my unit .

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@bobby55

Had FH 10 installed Oct this year, great job but implant is right on belt line so causes a little trouble. This is just to suggest patient asks about positioning post trial and pre implant

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I guess I am surprised they did put it there – with your name and the word belt, presumably you are a male – men wear belts often, which makes it even more surprising to me! Someone wasn’t thinking ahead! Hope you have given them loud and clear feedback! I was asked what positions I most often am in at home i.e. I recline on couch with pillows often – what sleeping positions I preferred, which side, etc. It all seemed logical to me, so makes it more surprising that your belt and waist weren’t closely considered. That would indeed be annoying!

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@donaldjames1

I had a trial with stimulator. I have so much hardware in my back they could not get I to the proper location. I would need a other surgery to even git it to fit. It did not help my pain on the trial so I and my doctor thought we should not pursue putting in a permanent one.

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You sound like my twin in male form! I would like to share my stimulator experience.

I also have extensive hardware (C3-C7, T10-L5 fusions, hardware, Harrington rods) and suffering chronic pain since the 80's, plus Failed Back Syndrome. The trial for the SCS was agreed upon. I had it put in one morning in 2015 by a very experienced Neurosurgeon. That same evening I felt like I was getting electric shock all of a sudden- couldn't move, as it felt like I was burning from inside out from hands to chest to abdomen. Hubby called the doc's emergency number and he suggested I met him back at the hospital ER. Returned and could not lay flat for CT, screaming in agony. The CT was done on left side only due to that, and it showed that the "puck" part had migrated into the left Harrington rod and had caused a blood clot there. Neurosurgeon removed the SCS and removed the blood clot. If you have hardware on thoracic and/or upper lumbar region I DEFINITELY would not recommend the SCS trial… Horrible, horrible experience.

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@metalneck

You sound like my twin in male form! I would like to share my stimulator experience.

I also have extensive hardware (C3-C7, T10-L5 fusions, hardware, Harrington rods) and suffering chronic pain since the 80's, plus Failed Back Syndrome. The trial for the SCS was agreed upon. I had it put in one morning in 2015 by a very experienced Neurosurgeon. That same evening I felt like I was getting electric shock all of a sudden- couldn't move, as it felt like I was burning from inside out from hands to chest to abdomen. Hubby called the doc's emergency number and he suggested I met him back at the hospital ER. Returned and could not lay flat for CT, screaming in agony. The CT was done on left side only due to that, and it showed that the "puck" part had migrated into the left Harrington rod and had caused a blood clot there. Neurosurgeon removed the SCS and removed the blood clot. If you have hardware on thoracic and/or upper lumbar region I DEFINITELY would not recommend the SCS trial… Horrible, horrible experience.

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@metalneck Welcome back to Mayo Clinic Connect, a place to give and get support. You have a lot of experience members can benefit from.

@donaldjames1 has had a similar experience to you and you would not recommend the SCS trial.

May I ask if you are also looking for particular information on Connect or looking to connect with members that have similar experience to you.

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@esperanza22

Anyone had the veriflex superion implant

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I had 2 implanted about 4 months ago it has helped with the back of my legs and slightly help with the spinal stenosis I have but I still have enough pain that I take tramadol and Tylenol

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