patrick17
@patrick17
@patrick17
Posts: 74
Joined: Jun 02, 2018
Has anyone one tried the HF10 Spinal Cord Stimulation Device?
Has anyone tried a device called HF10 ? It’s a device which stimulates your spinal cord to help relieve back and leg pain. After a trial period of about a week, if the patient is achieving good results the device is implanted in the person. My pain management doctor has recommended it to me for arm and hand nerve pain. I would like to hear from anyone who has used this device and especially from anyone who has used it for arm and hand pain. Thank you.
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Wise advice, @sallymagint. It is so important to research when comparing medical devices.
Patrick, you may be interested in reading this blog post
– New Developments in Spinal Stimulation for Pain Management https://connect.mayoclinic.org/page/adult-pain-medicine/newsfeed/new-developments-in-spinal-stimulation/
By the way, the Adult Pain Medicine is a new page and blog on Connect. Follow the page to get notifications each time a new blog is posted (weekly).
– Adult Pain Medicine https://connect.mayoclinic.org/page/adult-pain-medicine/
Colleen , how do I reply to you only ? I have a question for you as a moderator before I send it to the group
Alan
Colleen Young, Connect Director
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Colleen , how do I reply to you only ? I have a question for you as a moderator before I send it to the group
Alan
@alh123, you can reach me by using this form https://connect.mayoclinic.org/contact-a-community-moderator/
esperanza22
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elsa
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@patrick17 there is absolutely no doubt the devices had a positive outcome for pain management, especially with the damage I was left with following earlier Spinal trauma. In this respect I highly recommend them. It was just very unfortunate that it meant I could not have an MRI which would have picked up the other deficits I was suffering from earlier.
I can only hope that future developments in pain management come up with a similar device that is MRI compatiable because they really can be very beneficial.
In terms of the different types, the two brands were very different. The Medtronic ones I could feel the tingling in the areas the device was programmed to focus. The Nevro was a high frequency one so I couldn’t feel it working. In terms of the two different devices the Medtronic was good in the sense that each time the cycle stopped/started I would feel it kick in. Of course over time I became semi conscious of this happening so there was no thought process about it. If my pain was really bad I could use the remote to increase or change to another program to seek relief and would feel it tingle faster, stronger etc… The Nevro gave better pain relief for me overall even though I couldn’t actually feel it. Again I could increase or change the program to fit with the varied levels of pain. It really helped with nerve pain in legs/back and neuropathy in feet.
I do remember when it was suggested we try the Nevro and I read all the info, I thought ‘I’m not sure how this is going to work because if I can’t feel is working how is it going to change the pain?’ I was was pleasantly surprised how much it did help.
Whatever you decide make sure you research and ask questions of Drs and other patients who have used pain devices – good luck
Thanks for your post. I'm currently in the process of deciding between Boston Scientific's Wave Writer and Nevro's HF-10. Unfortunately, the doctor who's doing the trial has not provided much guidance. 🙁 I think I'm going with the HF-10 and your post validates this direction.
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scruffy1
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Joined: Jul 13, 2018
Thanks for your post. I'm currently in the process of deciding between Boston Scientific's Wave Writer and Nevro's HF-10. Unfortunately, the doctor who's doing the trial has not provided much guidance. 🙁 I think I'm going with the HF-10 and your post validates this direction.
Good choice!
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msstoppainnagginme
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Thanks again for all your good information! I really appreciate it. I’ve been reading as much as I can about it on the internet. MayfieldClinic.com has an excellent explanation of these devices. I still am unable to find any mention of this by someone who has been helped by this for arm and hand pain. It’s scary to me to have the wires and leads put in so near my spine. I don’t want to come home in worse condition. I trust my doctor and I will ask him a lot of questions when I see him. I may seek a second opinion from another doctor in the area who also implants Nevro devices.
@sallymagint Hi. You mentioned u have nerve pain in ur hands & arm's especially the right hand. Have you seen a rheumatologist for a Neurologist to make sure this is not some other type of issue? In my case I have 5 herniated disc's in my neck/cervical spine C3 thru C6. & then again in my Thoracic area 3more discs are herniated.
Especially when I'm feeling exhausted or should I say I feel like I'm going to collapse. & I have Osteoporosis/severe arthritis & carpal tunnel in both hands/wrists & my fingers. So I wear stabilizers/hand & wrist braces to help keep my wrists straight especially at night wen I wake up with shooting pins & needles dwn my forearms & hands. I do not tolerate any type of meds like Pregablin/Lyrica or Gabapentin/Neurontin. But I use Voltaren gel & LIDOCAINE roll On or creme with or without Menthol. Salonpas Brand has no scent. So I thought maybe this info could be something to consider checking for. Best Wishes.
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donfeld
@donfeld
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Posts: 199
Joined: Sep 22, 2019
@sallymagint Hi. You mentioned u have nerve pain in ur hands & arm's especially the right hand. Have you seen a rheumatologist for a Neurologist to make sure this is not some other type of issue? In my case I have 5 herniated disc's in my neck/cervical spine C3 thru C6. & then again in my Thoracic area 3more discs are herniated.
Especially when I'm feeling exhausted or should I say I feel like I'm going to collapse. & I have Osteoporosis/severe arthritis & carpal tunnel in both hands/wrists & my fingers. So I wear stabilizers/hand & wrist braces to help keep my wrists straight especially at night wen I wake up with shooting pins & needles dwn my forearms & hands. I do not tolerate any type of meds like Pregablin/Lyrica or Gabapentin/Neurontin. But I use Voltaren gel & LIDOCAINE roll On or creme with or without Menthol. Salonpas Brand has no scent. So I thought maybe this info could be something to consider checking for. Best Wishes.
I am diagnous with Arachnoititis which condition caused by surgery and injections and the prognosis is like stage 4 cancer. Just fighting with that to prevent it from spreading and the nerves touching together is enough to scare the crap out of you. It's a condition that's not curable and no research has been done on it and is caused by doctors. Not intentionally but but injections and surgery which I had herniated disc that they went too deep and cause a severe spinal leak. Now I have a permanent leak and a leaky spine causes serious problems for anybody who I've talked to has this condition he's on morphine drips
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msstoppainnagginme
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I am diagnous with Arachnoititis which condition caused by surgery and injections and the prognosis is like stage 4 cancer. Just fighting with that to prevent it from spreading and the nerves touching together is enough to scare the crap out of you. It's a condition that's not curable and no research has been done on it and is caused by doctors. Not intentionally but but injections and surgery which I had herniated disc that they went too deep and cause a severe spinal leak. Now I have a permanent leak and a leaky spine causes serious problems for anybody who I've talked to has this condition he's on morphine drips
@donfeld I'm so sad & feel bad that this happened to you. It's sad & very dangerous thinking your putting your life in some Dr's hands & later down the line have to deal with even more dangerous & painful conditions. I'm so sorry for you.
I received at least 5-6 epidurals in my lower back, I have an additional 3 herniated disc's in my lumbar, I also received about 4 RFA's & as well in my thoracic 2nd time wouldn't take. & I also had bunch of epidural injections done in my Cervical 5 herniated disc's as well as 2 times of RFA injections that was done about a year & 1/2 apart. Now it has worn off & I was planning to ask my pain mgmt Dr. For another 1 in my cervical area. But since I read what you wrote about the after effects from unintentional injections that caused for your spinal fluid to leak, I'm really concerned & very afraid of doing it. But at the same time I'm in excruciating pain & it's very hard to deal with. I take medicinal cannabis capsules 3-4 @day. I'm also having total knee replacement surgery around December of this year.
I would be grateful if you could tell me what type of injections caused this condition to happen to you?
I read a part where you said they went too deep & nerves touching each other, what type or types of injections were they?
donfeld
@donfeld
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Posts: 199
Joined: Sep 22, 2019
@donfeld I'm so sad & feel bad that this happened to you. It's sad & very dangerous thinking your putting your life in some Dr's hands & later down the line have to deal with even more dangerous & painful conditions. I'm so sorry for you.
I received at least 5-6 epidurals in my lower back, I have an additional 3 herniated disc's in my lumbar, I also received about 4 RFA's & as well in my thoracic 2nd time wouldn't take. & I also had bunch of epidural injections done in my Cervical 5 herniated disc's as well as 2 times of RFA injections that was done about a year & 1/2 apart. Now it has worn off & I was planning to ask my pain mgmt Dr. For another 1 in my cervical area. But since I read what you wrote about the after effects from unintentional injections that caused for your spinal fluid to leak, I'm really concerned & very afraid of doing it. But at the same time I'm in excruciating pain & it's very hard to deal with. I take medicinal cannabis capsules 3-4 @day. I'm also having total knee replacement surgery around December of this year.
I would be grateful if you could tell me what type of injections caused this condition to happen to you?
I read a part where you said they went too deep & nerves touching each other, what type or types of injections were they?
I was told that it was definitely cause buy a herniated disc surgery that went bad. It was well herniated and they had to go very deep which caused the arachnoiditis membrane to break and right after that I developed a leak where I had a bulge on the base of my spine that looked like a grapefruit. Had 3 surgeries to calm it down within a 8 week period. Then months later that had to go back in and do a Fusion and we operate which I think that is when the arachnoiditis came about. It's hard to say but there are certain injections that were done years ago using different medications that they say caused spinal leaks. You just don't want anybody putting needles into your spinal fluids canal.
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patrick17
@patrick17
@patrick17
Posts: 74
Joined: Jun 02, 2018
@sallymagint Hi. You mentioned u have nerve pain in ur hands & arm's especially the right hand. Have you seen a rheumatologist for a Neurologist to make sure this is not some other type of issue? In my case I have 5 herniated disc's in my neck/cervical spine C3 thru C6. & then again in my Thoracic area 3more discs are herniated.
Especially when I'm feeling exhausted or should I say I feel like I'm going to collapse. & I have Osteoporosis/severe arthritis & carpal tunnel in both hands/wrists & my fingers. So I wear stabilizers/hand & wrist braces to help keep my wrists straight especially at night wen I wake up with shooting pins & needles dwn my forearms & hands. I do not tolerate any type of meds like Pregablin/Lyrica or Gabapentin/Neurontin. But I use Voltaren gel & LIDOCAINE roll On or creme with or without Menthol. Salonpas Brand has no scent. So I thought maybe this info could be something to consider checking for. Best Wishes.
I am sorry for your pain and health issues. I have seen two neurologists both of whom diagnosed my condition as Parsonage Turner syndrome. It has left me with nerve pain in both hands and right arm as well as muscle atrophy. There’s not much you can do for it other than pain meds and physical therapy. I’ve tried several different rub on creams, but haven’t found anything that helps reduce the pain.
The first doctor I saw was an orthopedic spine surgeon who diagnosed my condition as being in my neck and performed ACDF C6/C7 surgery (disc removal and fusion). Unfortunately, the surgery didn’t help. Following the surgery I was seen by a neurologist. I wish I had seen the neurologist prior to seeing the surgeon.
After much research and consideration, I decided against a spinal cord stimulator. My neurologist advised against it, and I read too much accounts from people who had problems with it. I don’t want to go through more surgery and possibly be saddled with even more pain. I know you have a trial done first, but I have read stories from people where the trial works well, but the implant doesn’t. My doctor said that they don’t know why this occurs. So, it was a “No” for me.
lilypaws
@lilypaws
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Posts: 463
Joined: Apr 17, 2020
I was told that it was definitely cause buy a herniated disc surgery that went bad. It was well herniated and they had to go very deep which caused the arachnoiditis membrane to break and right after that I developed a leak where I had a bulge on the base of my spine that looked like a grapefruit. Had 3 surgeries to calm it down within a 8 week period. Then months later that had to go back in and do a Fusion and we operate which I think that is when the arachnoiditis came about. It's hard to say but there are certain injections that were done years ago using different medications that they say caused spinal leaks. You just don't want anybody putting needles into your spinal fluids canal.
@donfild I really feel sorry for you. I had a back fusion from T10 to my pelvis and it has corrected everything. I went to Mayo in Rochester MN. I don't know where you live. But I had an excellent surgeon that had his PHD in orthopecidics and spinal surgeries and other califications. I don't know if you doctors knew what they were doing, I'm not a doctor, but really feel bad for you. I hope you bet better soon.
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lilypaws
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@lilypaws
Posts: 463
Joined: Apr 17, 2020
I am diagnous with Arachnoititis which condition caused by surgery and injections and the prognosis is like stage 4 cancer. Just fighting with that to prevent it from spreading and the nerves touching together is enough to scare the crap out of you. It's a condition that's not curable and no research has been done on it and is caused by doctors. Not intentionally but but injections and surgery which I had herniated disc that they went too deep and cause a severe spinal leak. Now I have a permanent leak and a leaky spine causes serious problems for anybody who I've talked to has this condition he's on morphine drips
@donfeld I am so sorry to you. It sounds like you don't have very good doctors. I went to Mayo in Rochester MN and had a nine hour surgery for degeneration, which caused a scoliosis and had stenosis in my L4 & 5. The surgeon told my husband I must have been in a lot of pain. But Mayo is rated the #1 clinic. I can't remember where you live, but it would be worth going to Mayo, I had the best surgeon and your doctor can refer you their. People even fly there. I had the best surgeon that was a Professor in spinal surgeon and had 4 other qualifications. My surgery was 9 hours long surgery.
I can't believe they caused a sever spinal leak. Hang in there. I don't know what Arachnoititis is could you explain is that why you have Stage 4 cancer or is is caused my something else? I feel so sad for you. Take care and you will always in my thoughts and prayers.
Liked by msstoppainnagginme
I am diagnous with Arachnoititis which condition caused by surgery and injections and the prognosis is like stage 4 cancer. Just fighting with that to prevent it from spreading and the nerves touching together is enough to scare the crap out of you. It's a condition that's not curable and no research has been done on it and is caused by doctors. Not intentionally but but injections and surgery which I had herniated disc that they went too deep and cause a severe spinal leak. Now I have a permanent leak and a leaky spine causes serious problems for anybody who I've talked to has this condition he's on morphine drips
Never heard of this condition before but something I have down to get ruled out one day. I have had Epidural steroid injections, facet blocks, radio frequency ablations on just about every levels of my spine. Multiple surgeries on my ulnar nerve in the right arm/hand and still not better. Numerous mri’s showed pinched nerves in shoulder and cervical,thoracic and lumbar levels. Two herniated disk in the cervical areas bounced back and forth between neuros and orthopedic and pain mgmt doctors over last 8 years. All I know is my back,neck etc pain is worse and I believe the procedures on my back is the cause. Numbness and tingling in right foot now. Praying for a miracle because I have lost trust in doctors and I would have to start all over with new doctors. Mental health is a mess as a result and cortisol,DHEA etc are out of whack. Adrenals crashed and lord knows what else. All doctors 🥼 was seeing are gone, moved, retired etc and just can’t find a doctor to address the root cause of so many things. Until I get ready to fight again for help, I turned it all over to God. No pain meds since the doctors abused prescribing them and from the people abusing them. It was the only thing that helped my back and neck pain and some what quality of life, and I took my responsible. So over the counter meds is all I can do besides my tens unit and heating pads, stretches etc.
Good luck to you all
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donfeld
@donfeld
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Posts: 199
Joined: Sep 22, 2019
You might want to check your MRI with contrast of your pelvic area for lumbar area to see if you have arachnoiditis. That's the only way you know you have it and if I didn't get that one test done with Contrast MRI on my lumbar I would have never known I had it. Surgeons try to discourage me from getting the MRI as I know they were trying to cover up or hopefully I would never find out about it. There are people on The Forum with that conditioned and if you talk to them it's amazing how much they're suffering and how little help it can get. Sorry to hear about your issues I wish you all the best and we are living in very tough times. Where are the opioids!
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@fatsfat
No, because they are in Jacksonville Florida and I am in Tampa. Too long of a drive. Wish they had one closer to me. Thx