Has anyone tried the HF10 Spinal Cord Stimulation Device?

I am sorry for your pain and health issues. I have seen two neurologists both of whom diagnosed my condition as Parsonage Turner syndrome. It has left me with nerve pain in both hands and right arm as well as muscle atrophy. There’s not much you can do for it other than pain meds and physical therapy. I’ve tried several different rub on creams, but haven’t found anything that helps reduce the pain.

The first doctor I saw was an orthopedic spine surgeon who diagnosed my condition as being in my neck and performed ACDF C6/C7 surgery (disc removal and fusion). Unfortunately, the surgery didn’t help. Following the surgery I was seen by a neurologist. I wish I had seen the neurologist prior to seeing the surgeon.

After much research and consideration, I decided against a spinal cord stimulator. My neurologist advised against it, and I read too much accounts from people who had problems with it. I don’t want to go through more surgery and possibly be saddled with even more pain. I know you have a trial done first, but I have read stories from people where the trial works well, but the implant doesn’t. My doctor said that they don’t know why this occurs. So, it was a “No” for me.

@donfild I really feel sorry for you. I had a back fusion from T10 to my pelvis and it has corrected everything. I went to Mayo in Rochester MN. I don't know where you live. But I had an excellent surgeon that had his PHD in orthopecidics and spinal surgeries and other califications. I don't know if you doctors knew what they were doing, I'm not a doctor, but really feel bad for you. I hope you bet better soon.

@donfeld I am so sorry to you. It sounds like you don't have very good doctors. I went to Mayo in Rochester MN and had a nine hour surgery for degeneration, which caused a scoliosis and had stenosis in my L4 & 5. The surgeon told my husband I must have been in a lot of pain. But Mayo is rated the #1 clinic. I can't remember where you live, but it would be worth going to Mayo, I had the best surgeon and your doctor can refer you their. People even fly there. I had the best surgeon that was a Professor in spinal surgeon and had 4 other qualifications. My surgery was 9 hours long surgery.
I can't believe they caused a sever spinal leak. Hang in there. I don't know what Arachnoititis is could you explain is that why you have Stage 4 cancer or is is caused my something else? I feel so sad for you. Take care and you will always in my thoughts and prayers.

Never heard of this condition before but something I have down to get ruled out one day. I have had Epidural steroid injections, facet blocks, radio frequency ablations on just about every levels of my spine. Multiple surgeries on my ulnar nerve in the right arm/hand and still not better. Numerous mri’s showed pinched nerves in shoulder and cervical,thoracic and lumbar levels. Two herniated disk in the cervical areas bounced back and forth between neuros and orthopedic and pain mgmt doctors over last 8 years. All I know is my back,neck etc pain is worse and I believe the procedures on my back is the cause. Numbness and tingling in right foot now. Praying for a miracle because I have lost trust in doctors and I would have to start all over with new doctors. Mental health is a mess as a result and cortisol,DHEA etc are out of whack. Adrenals crashed and lord knows what else. All doctors 🥼 was seeing are gone, moved, retired etc and just can’t find a doctor to address the root cause of so many things. Until I get ready to fight again for help, I turned it all over to God. No pain meds since the doctors abused prescribing them and from the people abusing them. It was the only thing that helped my back and neck pain and some what quality of life, and I took my responsible. So over the counter meds is all I can do besides my tens unit and heating pads, stretches etc.
Good luck to you all

You might want to check your MRI with contrast of your pelvic area for lumbar area to see if you have arachnoiditis. That's the only way you know you have it and if I didn't get that one test done with Contrast MRI on my lumbar I would have never known I had it. Surgeons try to discourage me from getting the MRI as I know they were trying to cover up or hopefully I would never find out about it. There are people on The Forum with that conditioned and if you talk to them it's amazing how much they're suffering and how little help it can get. Sorry to hear about your issues I wish you all the best and we are living in very tough times. Where are the opioids!

Thx will look into my mris that I have but not sure what to look for. As to your comment on where’s the Opiods? Florida is and was the pain pill mill of the United States and as a result of doctors giving them out to people that really didn’t need them or maybe a few pills after a procedure they was given 90 pills and they were abused and some became addicted. Government cracked down on it due to all the overdoses that had other factors involved in the overdoses. So us with chronic pain was not suppose to be lumped into the serious crackdown but doctors was scared and basically stopped writing scripts for us. They will at times give you maybe 3 to 5 pills and usually only after a surgical procedure. Many have been trying to fight this including many military members that have and are suffering from chronic pain due to injuries sustained fighting in the war.

I too have it in both hands and entire right arm, underarm across breast and neck..
I opt to try the HF10...
After almost 2 hr surgery, after waking was told they could not place it....
Then ended up back 6 hrs later in emergency surgery due to my spinal fluid bleeding...
I can not force myself to attempt again..
This disease has changed me...I DO NOT LIKE WHO I SEE IN THE MIRROR...
I DON'T REMEMBER HOW IT FEELS TO MOT HURT...

I have one. It was implanted in December 2018. Started to work great in March of 19. In June of 19 the pain came back and Nevro technicians still have not been able to get it to work again over a year later. Mine is for stomach pain. Very frustrated.

I’m so sorry your surgery didn’t go well and for the pain you are experiencing. The one thing that has helped me the most with my pain are compression gloves. My pain would be unbearable without them. I hope you will find something which will reduce your pain.

Dear Patrick: I have lived with chronic leg and foot pain for more than 10 years. It began after a failed back surgery. I finally reached the point where I was ready to try a Spinal Cord Stimulator. I did a great deal of research about the options available re SCS manufacturers and devices. Based on that research, I chose to trial Nevro's HF-10. I was disappointed when the Nevro trial was a failure. Subsequently, my doctor was able to get a rep from Boston Scientific to come to the clinic the morning the Nevro trial ended, and so I was connected to the Boston Scientific device for another 5 days. I had much better results with the Boston Scientific stimulator. To give you the numbers: The Nevro trial resulted in a 30% reduction in pain while the Boston Scientific trial resulted in a 50% reduction in pain. Both of these devices are "MRI Compatible" but in both the MRI has to be set at 1.5 Teslas which is one-half of the usual 3.0 Teslas. The MRI will still be a usable image just at a lower resolution than at 3.0 Teslas.
I have MS so being able to still get an MRI is very important. If getting future MRIs is important to you, do be sure to verify a devce's capability to be safely scanned in an MRI.
Wishing you the best,
--Elsa