patrick17
@patrick17
@patrick17
Posts: 58
Joined: Jun 02, 2018
HF 10 Spinal Cord Stimulation Device (Relieves back and leg pain)
Has anyone tried a device called HF 10 ? It’s a device which stimulates your spinal cord to help relieve back and leg pain. After a trial period of about a week, if the patient is achieving good results the device is implanted in the person. My pain management doctor has recommended it to me for arm and hand nerve pain. I would like to hear from anyone who has used this device and especially from anyone who has used it for arm and hand pain. Thank you.
Liked by lola17, fishinlady1953
Thanks for asking about this When I had knee replacement surgery I was required to see the pain specialists at that hospital because I survive on pain meds and couldn't go off them prior to surgery which was one of their requirements. They recommend something like you asked about. I don't remember the name. I felt like I was dealing with aggressive car dealers and didn't probably give them a fair opportunity.
I asked a pain doctor about a Medtronic pain device I read about for my phantom pain some years back but he said as long as I can manage with the pain meds I wouldn't want to put a foreign device into my body.
I do ok on the meds but I am always tired and I think they effect my brain/memory. But that might be Aging or something else.
I am sorry I don't have an answer. I am hoping others will contribute to the conversation.
lorirenee1
@lorirenee1
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Posts: 441
Joined: Feb 05, 2019
Hi, over the years I’ve had 3 dorsal column Stimulators (2 made by Medtronic the other by Nevro). I found them to be quite affective however please be very stringent in researching any kind of implanted pain device because many of them are not MRI Compatable. I ended up having emergency surgery to have my all my devices and leads removed so I could receive treatment for severe spinal instability.
I’d been complaining of my back feeling like a concertina that was going to collapse at any time. Of course I didn’t know at the time but that was exactly what was happening. One day I lost bowel/bladder control and it suddenly became a medical emergency. The devices were removed, MRI performed and before I knew it I was having a 6 level spinal fusion.
Even if you are told the device is MEI Compatable ring a few radiology/imaging places and ask then if they do MRI’s with pain devices. Many won’t even though some device company’s approve them. 9 mths prior to my back surgery I had brain surgery across the other side of Australia because no radiology would do a Cranial MRI where I live. Over 4000 to be able to have an MRI.
My pain specialist who put the stimulator in was hesitant to remove it because it was so difficult to put in in the first place. Perhaps if it had been removed earlier I wouldn’t have ended up with such complex circumstances surrounding both brain and spinal surgery. It’s important to remember that if you need one of these devices you probably have chronic pain and your condition may require ongoing imaging to monitor whatever condition it. Please check and double check the information you’re given, I would hate anyone to have to go through what I did
@sallymagint First, Sally, I am so sorry what you have gone through. I cannot even imagine. Just too much. I have severe neuropathy in my feet, and I go to a new pain doc. He upped my Duloxetine, which is helping a lot, but I still hurt. In about a week, I will try low dose naltrexone. After these two changes, I am contemplating a Dorsal Root Ganglion Stimulator, but I know definitely, that you cannot get an MRI if you need one. I really am scared of this, so I am hoping my drug changes help. Thank you so much for letting me know your story with the implanted stimulators. Getting one will be my very last choice. God bless. Thanks for sharing. Lori Renee
@papawheelie Thanks for your response. I’m so sorry you have been through so many surgeries. You sound like you may be a good candidate for a spinal cord stimulator. I would like very much to hear how you make out.
After nearly a year I’m going to see the doctor who recommended a scs and will decide if I will go ahead with a trial. I don’t want to go ahead with the surgery if the doctor is not confident that it will help me. I’ll let you know if I do have a trial.
A couple years ago I decided on a scs, Boston scientific. Trial was with one type device, went well but trial was only for a few days. I had the Boston Scientific with paddle leads placed. No relief in the area I had back pain. After many adjustments and a year later, I had the thing removed. It may help some but I’ve heard of more people having it removed, unsatisfied with the lack of pain control expected. Just because it didn’t work out for me doesn’t mean it won’t for you. Personally, I think it’s more about the company making money and the doctor more than willing to place them.
I went through the 7-day trial with the HF10 Spinal Cord Stimulator mid-October. I have had back issues since 1976, and spinal fusion (L2-S1) in 2009, and 2 compression fractures following the fusion. I have dealt with chronic nerve pain (neuropathy and radiculopathy) ever since. The CF10 trial was a complete success for me, and am still waiting for the permanent implant. This device is MRI compatible. Just frustrated with the unrealistic time lag between trial and permanent implant. Surgeon's schedule is booked into end of Feb, possibly March 2020.
Liked by Jen, Alumna Mentor
scruffy1
@scruffy1
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Posts: 57
Joined: Jul 13, 2018
@kthychrls11 I got mine 2 weeks after my trial. I live in SE GA and know 5 other people who have gotten them that quickly. Isn't another surgeon available?
Jen, Alumna Mentor
@sandytoes14
@sandytoes14
Posts: 612
Joined: Mar 22, 2016
I went through the 7-day trial with the HF10 Spinal Cord Stimulator mid-October. I have had back issues since 1976, and spinal fusion (L2-S1) in 2009, and 2 compression fractures following the fusion. I have dealt with chronic nerve pain (neuropathy and radiculopathy) ever since. The CF10 trial was a complete success for me, and am still waiting for the permanent implant. This device is MRI compatible. Just frustrated with the unrealistic time lag between trial and permanent implant. Surgeon's schedule is booked into end of Feb, possibly March 2020.
@kthychrls11 Goodness that’s a long time! Is the pain doctor doing the procedure? My husband hand his done the next month. He is continuing to have relief with the permanent device.
Liked by John, Volunteer Mentor, scruffy1
I went through the 7-day trial with the HF10 Spinal Cord Stimulator mid-October. I have had back issues since 1976, and spinal fusion (L2-S1) in 2009, and 2 compression fractures following the fusion. I have dealt with chronic nerve pain (neuropathy and radiculopathy) ever since. The CF10 trial was a complete success for me, and am still waiting for the permanent implant. This device is MRI compatible. Just frustrated with the unrealistic time lag between trial and permanent implant. Surgeon's schedule is booked into end of Feb, possibly March 2020.
Can you explain how the trial device worked? Were the leads implanted into your body for the trial? I really appreciate any information. I may be a candidate for this device. Thanks !
@sallymagint First, Sally, I am so sorry what you have gone through. I cannot even imagine. Just too much. I have severe neuropathy in my feet, and I go to a new pain doc. He upped my Duloxetine, which is helping a lot, but I still hurt. In about a week, I will try low dose naltrexone. After these two changes, I am contemplating a Dorsal Root Ganglion Stimulator, but I know definitely, that you cannot get an MRI if you need one. I really am scared of this, so I am hoping my drug changes help. Thank you so much for letting me know your story with the implanted stimulators. Getting one will be my very last choice. God bless. Thanks for sharing. Lori Renee
Hello, I had extensive back surgery back in 2009 but it did not address my lower back pain which affects both legs. I had a StimWave STS implanted back in April. At first it seemed to reduce my pain levels but a month after the implant I fell and then everything seemed to have regress back to where I was in the begging. There are several adjustments that can still be made and perhaps we'll hit the right mix. Has anyone in this group had experience with StimWave? I would love to exchange information with respect to the results you are experiencing with this product.
Thanks for Sharing. Bill Coombs – Miami
Can you explain how the trial device worked? Were the leads implanted into your body for the trial? I really appreciate any information. I may be a candidate for this device. Thanks !
I am currently in a trial right now with my Dr and the NEVRO HF10 Spinal Cored Stimulator. The leads are placed under the skin and up my spine from my surgical sight L4-L5 to L5-S1 (bilateral 2 level fusion in 2003). The controller is exterior as is wires to the controller. The majority of my back is taped to make sure nothing comes loose. I was also given extension wires when I sleep, so I do not have to keep the controller around my waist (the controller is on Velcro long enough to wrap around your waist.) It takes about 48 hours for the system to start working, and you are not allowed to take a shower (sponge bath only) until the trial is over.
patrick17
@patrick17
@patrick17
Posts: 58
Joined: Jun 02, 2018
I am currently in a trial right now with my Dr and the NEVRO HF10 Spinal Cored Stimulator. The leads are placed under the skin and up my spine from my surgical sight L4-L5 to L5-S1 (bilateral 2 level fusion in 2003). The controller is exterior as is wires to the controller. The majority of my back is taped to make sure nothing comes loose. I was also given extension wires when I sleep, so I do not have to keep the controller around my waist (the controller is on Velcro long enough to wrap around your waist.) It takes about 48 hours for the system to start working, and you are not allowed to take a shower (sponge bath only) until the trial is over.
Good luck! I hope the trial is successful for you!
I am currently in a trial right now with my Dr and the NEVRO HF10 Spinal Cored Stimulator. The leads are placed under the skin and up my spine from my surgical sight L4-L5 to L5-S1 (bilateral 2 level fusion in 2003). The controller is exterior as is wires to the controller. The majority of my back is taped to make sure nothing comes loose. I was also given extension wires when I sleep, so I do not have to keep the controller around my waist (the controller is on Velcro long enough to wrap around your waist.) It takes about 48 hours for the system to start working, and you are not allowed to take a shower (sponge bath only) until the trial is over.
Good luck with that. I'm interested in how you do n why you had it done. I have AA , Adhesive arachnoiditis n at first they thought I would be a candidate but last visit Dr. Is saying he doesn't think it would help? Prayers are with you!
scruffy1
@scruffy1
@scruffy1
Posts: 57
Joined: Jul 13, 2018
I am currently in a trial right now with my Dr and the NEVRO HF10 Spinal Cored Stimulator. The leads are placed under the skin and up my spine from my surgical sight L4-L5 to L5-S1 (bilateral 2 level fusion in 2003). The controller is exterior as is wires to the controller. The majority of my back is taped to make sure nothing comes loose. I was also given extension wires when I sleep, so I do not have to keep the controller around my waist (the controller is on Velcro long enough to wrap around your waist.) It takes about 48 hours for the system to start working, and you are not allowed to take a shower (sponge bath only) until the trial is over.
@jujumars Good luck with your trial. Ask the Nevro rep about the battery life! I have a battery that is the generation older than yours will be. A friend and I had the Nevro implanted the same day less than 2 1/2 yr. ago. He already had to replace his battery. Mine takes twice as long, if not more, to charge than it did when first implanted. For example, I charged it about 14 hours ago and just checked it and it's more than half depleted. I fear I'll need surgery in the next year, also. To be fair, he left his in the "on" position after it discharged and didn't use it for more than 4 months (long story). I don't know if not turning it off when he was no longer charging it damaged the battery as opposed to turning it off and then not charging it. Anyway, the battery life is something to ask of the Nevro rep, if you haven't already.
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Sept of 16 doctor implanted HF 10, to bad he place the leads on the wrong side of the spine and didn't put the leads high enough,,my pain is r/s neck & shoulder. Second stimulator implanted about 3 months ago, Medtronic after a few adjustments my pain is much lower, bearable except maybe 3 or 4x a month. Skin is still very sensitive but over all I'm happy
@donfeld
Dr. Forest Tennant in CA who has been doing research and treatment to many individuals with. Arachnoititis says do not do stimulator unless all preventive care has been tried first. He is now 78 but he still help you with his ideas of preventing our disease from progressing.. He has helped me and his method is out of the box which is what you need to do. Get proactive! Don