Has anyone one tried the HF10 Spinal Cord Stimulation Device?

Posted by patrick17 @patrick17, Nov 21, 2018

Has anyone tried a device called HF10 ? It’s a device which stimulates your spinal cord to help relieve back and leg pain. After a trial period of about a week, if the patient is achieving good results the device is implanted in the person. My pain management doctor has recommended it to me for arm and hand nerve pain. I would like to hear from anyone who has used this device and especially from anyone who has used it for arm and hand pain. Thank you.

@paulbklyn

Sept of 16 doctor implanted HF 10, to bad he place the leads on the wrong side of the spine and didn't put the leads high enough,,my pain is r/s neck & shoulder. Second stimulator implanted about 3 months ago, Medtronic after a few adjustments my pain is much lower, bearable except maybe 3 or 4x a month. Skin is still very sensitive but over all I'm happy

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After doing the required RESEARCH, I will not be getting ANY SCS,…..ever! Thank You for Your Honesty!!

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I have tried both Nevro and Medtronics no relief. The back surgeon said that there wasn't anything else he could do. Went to a pain management doctor that diagnosed it as arachnoiditis…low and behold he quit me as well. I have yet to find a doctor who hasn't asked to see "the spider bite…" I am a veteran and so I use TriWest insurance…any takers??

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Hoping this is the correct forum for me. I have had chronic abdominal pain since my cystectomy, and then the following year, 2015, my inguinal hernia repair. Just about everything has been tried on me so far, and barely managing with Vicodin 7.5 tid. My pain mgmt doc has brought up the Stim Wave intervention, and I have tried researching it, but most is from the company itself. Has anyone had this done?, know much about it? Thanx in advance. Quark

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@sallymagint

@patrick17 there is absolutely no doubt the devices had a positive outcome for pain management, especially with the damage I was left with following earlier Spinal trauma. In this respect I highly recommend them. It was just very unfortunate that it meant I could not have an MRI which would have picked up the other deficits I was suffering from earlier.
I can only hope that future developments in pain management come up with a similar device that is MRI compatiable because they really can be very beneficial.

In terms of the different types, the two brands were very different. The Medtronic ones I could feel the tingling in the areas the device was programmed to focus. The Nevro was a high frequency one so I couldn’t feel it working. In terms of the two different devices the Medtronic was good in the sense that each time the cycle stopped/started I would feel it kick in. Of course over time I became semi conscious of this happening so there was no thought process about it. If my pain was really bad I could use the remote to increase or change to another program to seek relief and would feel it tingle faster, stronger etc… The Nevro gave better pain relief for me overall even though I couldn’t actually feel it. Again I could increase or change the program to fit with the varied levels of pain. It really helped with nerve pain in legs/back and neuropathy in feet.
I do remember when it was suggested we try the Nevro and I read all the info, I thought ‘I’m not sure how this is going to work because if I can’t feel is working how is it going to change the pain?’ I was was pleasantly surprised how much it did help.

Whatever you decide make sure you research and ask questions of Drs and other patients who have used pain devices – good luck

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my Dr wants me to get a ABBOTT nerve stimulator implanted, and I am so undecided as all actions up till now have failed to help stop the pain, there is one that might last 10 years on low, and must have battery recharged each day with a belt, and the other with 5 year battery that must be replaced in 5 years, I use a tens unit now and it helps a little but they say the wires all the way to the spine is a lot better, I read up on i and they are ok for MRI, has anyone had a ABBOTT ProclaimXR implanted? Please let me know as I must make my decision soon…am 85, had this pain since surgery in 1983, cant be up more than about 12 minutes without terrible pain,, I do need help.

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If you're in so much pain you should try the stimulator especially, what are you got to lose. At your age just need to control your pain and have you tried the pain pump with morphine? Have you had surgery or a spinal leak in the past because you might have arachnoiditis. Did you ever have an MRI with contrast on your pelvic area as that's the only way to Tech with you have that disease which I have and it could be very painful. Let me know if you have that disease and I can help you with the right source to control your pain.

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@patrick17

Thanks again for all your good information! I really appreciate it. I’ve been reading as much as I can about it on the internet. MayfieldClinic.com has an excellent explanation of these devices. I still am unable to find any mention of this by someone who has been helped by this for arm and hand pain. It’s scary to me to have the wires and leads put in so near my spine. I don’t want to come home in worse condition. I trust my doctor and I will ask him a lot of questions when I see him. I may seek a second opinion from another doctor in the area who also implants Nevro devices.

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I’ve had a Medtronic SCS since 2011 and it’s been a god send for my leg pain following two back surgeries. You would be first given a trial to see if the device is effective for your pain before a permanent device would be implanted. If it doesn’t help your pain then you’ll know not to proceed with a permanent implant.

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Hello, what device are you talking about? I have chronic leg pain. Nor sure if it is from dystonia, Parkinsons, or sciatica. Would I be eligible if I have DBS?

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@leftylucy

Hello, what device are you talking about? I have chronic leg pain. Nor sure if it is from dystonia, Parkinsons, or sciatica. Would I be eligible if I have DBS?

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Not sure what dubs is? And it’s an implantable device, but not a spinal cord stimulator. It’s called Stim Wave, and it’s relatively new. Check with your pain dr, and I am having a trial with it beginning of April.

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@pattivi330

I’ve had a Medtronic SCS since 2011 and it’s been a god send for my leg pain following two back surgeries. You would be first given a trial to see if the device is effective for your pain before a permanent device would be implanted. If it doesn’t help your pain then you’ll know not to proceed with a permanent implant.

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Thanx patti, and I had the trial with the Boston one a couple of years ago and didn’t help my abdominal pain. Am trying what they call Stim Wave beginning of April for my pain

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@sallymagint

Hi, over the years I’ve had 3 dorsal column Stimulators (2 made by Medtronic the other by Nevro). I found them to be quite affective however please be very stringent in researching any kind of implanted pain device because many of them are not MRI Compatable. I ended up having emergency surgery to have my all my devices and leads removed so I could receive treatment for severe spinal instability.
I’d been complaining of my back feeling like a concertina that was going to collapse at any time. Of course I didn’t know at the time but that was exactly what was happening. One day I lost bowel/bladder control and it suddenly became a medical emergency. The devices were removed, MRI performed and before I knew it I was having a 6 level spinal fusion.
Even if you are told the device is MEI Compatable ring a few radiology/imaging places and ask then if they do MRI’s with pain devices. Many won’t even though some device company’s approve them. 9 mths prior to my back surgery I had brain surgery across the other side of Australia because no radiology would do a Cranial MRI where I live. Over 4000 to be able to have an MRI.

My pain specialist who put the stimulator in was hesitant to remove it because it was so difficult to put in in the first place. Perhaps if it had been removed earlier I wouldn’t have ended up with such complex circumstances surrounding both brain and spinal surgery. It’s important to remember that if you need one of these devices you probably have chronic pain and your condition may require ongoing imaging to monitor whatever condition it. Please check and double check the information you’re given, I would hate anyone to have to go through what I did

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Goof Advice

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In reply to @bill54321 "Goof Advice" + (show)
@bill54321

Goof Advice

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I asked my pain magma doc and with the Stim wave was no problem with mri , or taking out if necessary. But, I will double check on both aspects anyway,and thanx for the good advice. Hope you are doing better and sounds like you went through hell.

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I recently talked with my surgeon at my 8 month post operation appointment. of my 2 level lumbar spinal fusion surgery. Everything looks good and my bones are fusing. However, my pain continues and is probably worse or as bad as before surgery. He as suggested a Nevro spinal cord stimulator. So, I would like to know how successful it has been. If it would take care of continued post operation pain? I could not find any current independent data, only manufacture data. I am a little skeptical as this seems a billion dollars business. Sometimes money gets in the way of truthful information. Any help will be appreciated. Thanks

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@ceceilia

I recently talked with my surgeon at my 8 month post operation appointment. of my 2 level lumbar spinal fusion surgery. Everything looks good and my bones are fusing. However, my pain continues and is probably worse or as bad as before surgery. He as suggested a Nevro spinal cord stimulator. So, I would like to know how successful it has been. If it would take care of continued post operation pain? I could not find any current independent data, only manufacture data. I am a little skeptical as this seems a billion dollars business. Sometimes money gets in the way of truthful information. Any help will be appreciated. Thanks

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Hi @ceceilia, I moved your message and question to this existing discussion about Nevro spinal cord stimulator so you can read what members like @sallymagint @patrick17 @nighthawk50 @bkruppa @jwhite59 @kthychrls11 @scruffy1 @sandytoes14 @paulbklyn

Cecelia, you may be interested in reading this blog post
– New Developments in Spinal Stimulation for Pain Management https://connect.mayoclinic.org/page/adult-pain-medicine/newsfeed/new-developments-in-spinal-stimulation/

And this related discussion:
– Spinal cord stimulation: Will Nevro help when Medtronic didn't? https://connect.mayoclinic.org/discussion/nevro/

I think you are wise to do your research about medical devices. It must be such a disappointment to still have pain after the spinal fusion surgery. Have you ever considered pain rehab?

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@quark

I asked my pain magma doc and with the Stim wave was no problem with mri , or taking out if necessary. But, I will double check on both aspects anyway,and thanx for the good advice. Hope you are doing better and sounds like you went through hell.

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Sadly I have never met anyone that underwent a fusion and especially at the lumbar levels that was relieved from pain. Just made them worse. I handled workers compensation claims for over 20 years….never had a complaint get better but ended up with a spinal cord stimulator and eventually removed because the people complained of more pain and some developed infections. The doctors termed them with “Failed back syndrome. Hopefully you can get relief and find a doctor that cares and knows what they are doing. Money is the driving force for many of these surgeries and devices.

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@fatsfat

Sadly I have never met anyone that underwent a fusion and especially at the lumbar levels that was relieved from pain. Just made them worse. I handled workers compensation claims for over 20 years….never had a complaint get better but ended up with a spinal cord stimulator and eventually removed because the people complained of more pain and some developed infections. The doctors termed them with “Failed back syndrome. Hopefully you can get relief and find a doctor that cares and knows what they are doing. Money is the driving force for many of these surgeries and devices.

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THANK YOU!

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