Hepatocellular Carcinoma / Liver Cancer

Posted by tinasantos @tinasantos, May 28, 2018

Hi! My dad, who is 78, has already been treated for Hepatitis C (almost 20 years ago) and was diagnosed with this huge mass/tumor in Feb/18 after abdomen pain and loss of appetite. He was referred to a hepatologist who suggested the hepatectomy. The surgery was successful, on March,16th and the mass removed was around 13 pounds. At the end of the surgery, no cancerous cells were found at the biopsy. The doctor recommended another consultation after 3 months.

Before this, in the beginning of this month (about to complete 2 months os surgery) my dad made an appointment to an oncologist (just to check). He asked for some blood tests and triphasic MRI. In the next days my dad started feeling the symptons again (loss of appetite, weakness, fever, shivering, abdominal pains) and returned to the oncologist to show the results. The oncologist said the tumor had came back (multiple small nodules) and that he would not recommend another surgery (because tumor would come back again) and that he was not eligiible for transplant because of his age.

After all this, the oncologist recommended the treatment with Nexavar (Sorafenib) and my dad will start it this week.

I'd like to know how to get Mayo Clinic's doctors second opinion since we're in Brazil and there may be another approachs to this abroad.
Also, it would be great if someone in a similar situation could share info here. I`m really worried because my dad is 78, is weak and depressive because of this, and we don't know how aggressive and effective is Nexavar.

Thanks,
Tina

Interested in more discussions like this? Go to the Cancer group.

@gmc454mnazl35ashma

my father recently was diagnosed with hepatocellular carcinoma of the liver , and extreme cirrhosis , and the doctors asked several times before if he had hepatitis , and my father said no, since he also have fatty liver which caused cirrhosis that what the doctor said, we are in the middle of a treatment right now ,i just knew from my father that he had hepatitis a long time ago i dont which one , so my question is lets say that hepatitis caused the liver cancer is the treatment should be changed or the causes of the liver cancer doesn't matter?

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@gmc454mnazl35ashma @JustinMcClanahan I too had cirrhosis caused by fatty liver, and also hepatocellular carcinoma. Mine was eliminated with radio frequency ablation. I believe ablation was able to be used because the lesions were small. I think there are a number of ways to treat them, depending on some variables such as size.

It may not matter what the cause is once the carcinoma is present, at that point they are just interested in treating them. That is definitely a question for your father’s doctor though. As I said, my cirrhosis was also caused by fatty liver, but once I had it the cause was not a factor in treating it.
JK

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@JustinMcClanahan

Hello @gmc454mnazl35ashma, welcome to Connect. You may notice I moved your discussion and combined it with a another discussion titled, "Hepatocellular carcinoma / Liver cancer. If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the previous posts in this discussion.

Mayo Clinic Connect is driven by members and their experiences, unfortunately, medical advice is not something members can offer. However, in addition to the existing members of this discussion, I'd like to invite @bentrivercarla, @charicen, and @silverwoman who have also recently discussed hepatocellular carcinoma.

@gmc454mnazl35ashma, if you are comfortable sharing, is this a question you have discussed with your father's provider?

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The hospital doesn't know about the hepatitis. I will till them asap

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@contentandwell

@gmc454mnazl35ashma @JustinMcClanahan I too had cirrhosis caused by fatty liver, and also hepatocellular carcinoma. Mine was eliminated with radio frequency ablation. I believe ablation was able to be used because the lesions were small. I think there are a number of ways to treat them, depending on some variables such as size.

It may not matter what the cause is once the carcinoma is present, at that point they are just interested in treating them. That is definitely a question for your father’s doctor though. As I said, my cirrhosis was also caused by fatty liver, but once I had it the cause was not a factor in treating it.
JK

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I have a question about your cirrhosis , did the doctor told you how severe it was , they told my father that his is extreme and irreversible at this point .

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@JustinMcClanahan

Hello @gmc454mnazl35ashma, welcome to Connect. You may notice I moved your discussion and combined it with a another discussion titled, "Hepatocellular carcinoma / Liver cancer. If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the previous posts in this discussion.

Mayo Clinic Connect is driven by members and their experiences, unfortunately, medical advice is not something members can offer. However, in addition to the existing members of this discussion, I'd like to invite @bentrivercarla, @charicen, and @silverwoman who have also recently discussed hepatocellular carcinoma.

@gmc454mnazl35ashma, if you are comfortable sharing, is this a question you have discussed with your father's provider?

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Hi Justin – @bentrivercarla here. This is exactly the discussion group I was looking for – I would like to continue to be included and to receive updates from this group. How do I join to assure that? I did have proton beam and six months out so far so good with reduction of my tumor and dramatic improvement of my AFP. Unfortunately my lung cancer of six years ago may have returned in the midst of some inflammatory response to the liver radiation. It is pretty confusing. I have a re-scan in a couple of weeks and I will post then. Thank You for thinking of me.

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@gmc454mnazl35ashma

I have a question about your cirrhosis , did the doctor told you how severe it was , they told my father that his is extreme and irreversible at this point .

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@gmc454mnazl35ashma I don’t recall exactly, it took me by such surprise, I was reeling. I did know that the only option was getting a liver transplant, so that would indicate it was severe..
My cirrhosis was diagnosed in March, 2015. I had a transplant in September 2016.
It took almost a year and a half to get a diagnosis despite having what I discovered were very typical symptoms of cirrhosis.
JK

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@bentrivercarla

Hi Justin – @bentrivercarla here. This is exactly the discussion group I was looking for – I would like to continue to be included and to receive updates from this group. How do I join to assure that? I did have proton beam and six months out so far so good with reduction of my tumor and dramatic improvement of my AFP. Unfortunately my lung cancer of six years ago may have returned in the midst of some inflammatory response to the liver radiation. It is pretty confusing. I have a re-scan in a couple of weeks and I will post then. Thank You for thinking of me.

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@bentrivercarla, by responding to my tagging of you in this discussion, you will be "subscribed" to receive updates of each post. This is true for all discussions on Connect. If you are replying primarily by email, don't forget you can always click on VIEW & REPLY to be brought to the full discussion in order as that is sometimes easier to understand the full discussion in order.

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Thank You – I am already getting post – do appreciate!

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Besides cancer, i have cirosis of the liver, hepatitis C, during one of my MRI's they found 3 tumors (all actively growing)..in my liver..i go in on the 16th of August to have radiation injected into them..Also during one of my visits they found that i have a slight heart murmur..is that a full plate or what…..

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@chazhankel

Besides cancer, i have cirosis of the liver, hepatitis C, during one of my MRI's they found 3 tumors (all actively growing)..in my liver..i go in on the 16th of August to have radiation injected into them..Also during one of my visits they found that i have a slight heart murmur..is that a full plate or what…..

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Hi @chazhankel, and welcome to Connect. You'll notice that I moved your message about stage 2 liver cancer to this discussion called
Hepatocellular Carcinoma / Liver Cancer (https://connect.mayoclinic.org/discussion/hepatocellular-carcinoma-liver-cancer/) I did this so that you can connect with other members like @japv2001 @gmc454mnazl35ashma @padovani @bentrivercarla and @contentandwell, who have or have had liver cancer/lesions.

Chaz, it does sound like you have a full plate. My dad's heart murmur was also discovered as he prepared for colon cancer surgery. What precautions do they have to take due to the heart issue? How have you tolerated the radiation so far?

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I am new here snd would like to
Connect with others having similar diagnosis of Stage 4 Liver Cancer with Mets Dx 11/2016
Hasi

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Hi @malaysiamiri welcome to Connect. You may have noticed I moved your post to this existing discussion on liver cancer so that you can connect with others who have similar diagnoses. Simply click VIEW & REPLY in your email notification to get your post.

I'd like to introduce you to fellow Connect members @japv2001 @gmc454mnazl35ashma @bentrivercarla and @contentandwell, who have or have had liver cancer/lesions.

Back to you @malaysiamiri are you comfortable sharing more of your story?

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Ovarian cancer been treated past 3 years
I wonder how are they treated for the liver lesions

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