Hemorrhagic stroke: What have you experienced afterward?

@lindamangan13

I’m taking 1500 mg 2x a day. The neurologist started at a low dose and as I kept having seizures, he kept raising dosage. As the dose went up, the seizures became less severe. For example. The very first seizure generalized and I lost consciousness. The last one, only 1/2 of my tongue twitched for 10 seconds. ( I know it was a seizure. I can’t consciously twitch just the left side of my tongue 😛). He also changed me to extended release Keppra and it worked better.

Except for my being slightly more tired than normal, Keppra has worked very well for me. For which I’m very thankful.

Best wishes to you in your continuing recovery

@methel , I also started having seizures are my stroke, and am on 760 mg of keppra, I initially was on 500 mg, but at the 2nd seizure, it was increased to 750, I’m feeling a bit more shaky and feel the increase of keppra may be causing this? What strength keppra are you taking?, is it agreeing with you? Linda,

@winjki l was told that headaches after the stroke came from the Pons part of the brain. Apparently my Pons was not affected by the bleed. But your friend's may have been. He can take Tylenol for headaches because it is a different class of drug than ibuprofen and aspirin.
But check with Dr if it is Ok

@barbaradh now that I think of it....I had headaches before the stroke...but I took ibuprofen and kept going...no headaches after. One of the side effects of ibuprofen and aspirin are increased blood vessel permeability.....which is why person with this kind of stroke (a Brain bleed) should not take these drugs

Yes. Shakiness here too. Oct is my date of stroke. Jerky thoughts and movements not smooth and fluid like before....our language does not convey the meaning of what we are feeling. Words like skakey and dizzy and numb are different than what they mean...(non- stroke persons) our feelings come from nerve re- growth they do not have and are different

@winjki I had a stroke in Feb ‘25, I’m finding lately that I am experiencing shakiness, inside, it’s not visible to others as they keep saying “you look perfect”

Winjki, Glad you pulled through and are doing well. My brother is healthy as well before he had his stroke in October 2025 too. But he had several months of headaches leading up to it. Physician ordered a MRI which was normal. After the stroke, his PCP felt badly—perhaps he had missed something—but he truly followed normal protocol. Wondering if you had headaches before or after your stroke.

I also suffered a hemorrhagic stoke and almost died. I was in very good shape at the time of the stroke and am almost fully recovered. The stroke happened in another country and PT was non existent. Ive found dizziness and shakiness to be my worst problem. The stroke happened in October 2025

Methel, You were blessed that your neurosurgeon was able to treat you. I am so happy that there are drugs that can control your epilepsy. I am hoping that the neurologist can prescribe something to help these migraines.

@barbaradh

Thank you for your kind thoughts.

I had a hemorrhagic stroke because I had a meningioma which bled. I was incredibly blessed that the neurosurgeon was able to extract the meningioma and the excess blood and stop the bleeding. But although I escaped with very little long term damage, the episode almost 10 years ago left me with epilepsy, which is controllable with Keppra.

Best wishes to your brother for a successful outcome.