Hemorrhagic stroke: What have you experienced afterward?

Posted by samiam13 @samiam13, Jul 7 7:32pm

After a brain bleed stroke could anyone tell me what others are experiencing?

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Hi, @samiam13. Welcome to Mayo Clinic Connect. I moved your post here to a new discussion so others can find your query and join in.

My understanding is that you are talking about a hemorrhagic stroke? Is this accurate? Have you or someone you care about experienced this? If so, what happened?

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My brother had a bleed deep in his brain in October. The neurologist in the neuro ICU told him he would probably have headaches for several months until the blood matter dissolved. He had a MRI in January and it showed the blood gone. However, now he finds himself having bad headaches again. He will see neurologist this week.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @samiam13. Welcome to Mayo Clinic Connect. I moved your post here to a new discussion so others can find your query and join in.

My understanding is that you are talking about a hemorrhagic stroke? Is this accurate? Have you or someone you care about experienced this? If so, what happened?

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@lisalucier

I learned in a hospital stroke survivors support group that hemorrhagic strokes are more likely to kill you and overall much less common, but if you live, your recovery is likely to be more complete than from the more common kind of stroke.

For my personal experience. I recovered almost completely, with very little effort, from a hemorrhagic stroke which almost killed me.

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Profile picture for methel @methel

@lisalucier

I learned in a hospital stroke survivors support group that hemorrhagic strokes are more likely to kill you and overall much less common, but if you live, your recovery is likely to be more complete than from the more common kind of stroke.

For my personal experience. I recovered almost completely, with very little effort, from a hemorrhagic stroke which almost killed me.

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Methel. Glad you are doing well. Except for the chronic headaches, my brother seems to have had no lasting damage from his hemorrhagic stroke. But the debilitating headaches are stalling a return to his very active retirement. I should add that he had bad headaches months leading up to the stoke. A MRI was ordered and nothing unordinary showed up. Then, one day in October he had a headache so bad he BEGGED to be brought to the hospital. They put him in MRI, and a blood clot was visible. Neurosurgeon said that because of its location, intervention was impossible. He had a neurologist treating him in the Neuro ICU hospital who had done a stroke fellowship, so he got great care. (He is of normal weight, non-smoker, and has normal BP.)

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Profile picture for barbaradh @barbaradh

Methel. Glad you are doing well. Except for the chronic headaches, my brother seems to have had no lasting damage from his hemorrhagic stroke. But the debilitating headaches are stalling a return to his very active retirement. I should add that he had bad headaches months leading up to the stoke. A MRI was ordered and nothing unordinary showed up. Then, one day in October he had a headache so bad he BEGGED to be brought to the hospital. They put him in MRI, and a blood clot was visible. Neurosurgeon said that because of its location, intervention was impossible. He had a neurologist treating him in the Neuro ICU hospital who had done a stroke fellowship, so he got great care. (He is of normal weight, non-smoker, and has normal BP.)

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@barbaradh

Thank you for your kind thoughts.

I had a hemorrhagic stroke because I had a meningioma which bled. I was incredibly blessed that the neurosurgeon was able to extract the meningioma and the excess blood and stop the bleeding. But although I escaped with very little long term damage, the episode almost 10 years ago left me with epilepsy, which is controllable with Keppra.

Best wishes to your brother for a successful outcome.

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Methel, You were blessed that your neurosurgeon was able to treat you. I am so happy that there are drugs that can control your epilepsy. I am hoping that the neurologist can prescribe something to help these migraines.

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Profile picture for methel @methel

@lisalucier

I learned in a hospital stroke survivors support group that hemorrhagic strokes are more likely to kill you and overall much less common, but if you live, your recovery is likely to be more complete than from the more common kind of stroke.

For my personal experience. I recovered almost completely, with very little effort, from a hemorrhagic stroke which almost killed me.

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I also suffered a hemorrhagic stoke and almost died. I was in very good shape at the time of the stroke and am almost fully recovered. The stroke happened in another country and PT was non existent. Ive found dizziness and shakiness to be my worst problem. The stroke happened in October 2025

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Winjki, Glad you pulled through and are doing well. My brother is healthy as well before he had his stroke in October 2025 too. But he had several months of headaches leading up to it. Physician ordered a MRI which was normal. After the stroke, his PCP felt badly—perhaps he had missed something—but he truly followed normal protocol. Wondering if you had headaches before or after your stroke.

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Profile picture for winjki @winjki

I also suffered a hemorrhagic stoke and almost died. I was in very good shape at the time of the stroke and am almost fully recovered. The stroke happened in another country and PT was non existent. Ive found dizziness and shakiness to be my worst problem. The stroke happened in October 2025

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@winjki I had a stroke in Feb ‘25, I’m finding lately that I am experiencing shakiness, inside, it’s not visible to others as they keep saying “you look perfect”

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Yes. Shakiness here too. Oct is my date of stroke. Jerky thoughts and movements not smooth and fluid like before....our language does not convey the meaning of what we are feeling. Words like skakey and dizzy and numb are different than what they mean...(non- stroke persons) our feelings come from nerve re- growth they do not have and are different

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