1. < Stroke & Cerebrovascular Diseases
Profile picture for samiam13

Hemorrhagic stroke: What have you experienced afterward?

Posted by samiam13 @samiam13, Jul 7 7:32pm

After a brain bleed stroke could anyone tell me what others are experiencing?

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

Profile picture for winjki
winjki | @winjki | 3 days ago
In reply to @barbaradh "Winjki, Glad you pulled through and are doing well. My brother is healthy as well before..." + (show)
Profile picture for barbaradh @barbaradh

Winjki, Glad you pulled through and are doing well. My brother is healthy as well before he had his stroke in October 2025 too. But he had several months of headaches leading up to it. Physician ordered a MRI which was normal. After the stroke, his PCP felt badly—perhaps he had missed something—but he truly followed normal protocol. Wondering if you had headaches before or after your stroke.

Jump to this post

@barbaradh now that I think of it....I had headaches before the stroke...but I took ibuprofen and kept going...no headaches after. One of the side effects of ibuprofen and aspirin are increased blood vessel permeability.....which is why person with this kind of stroke (a Brain bleed) should not take these drugs

REPLY
1 reply
Profile picture for winjki
winjki | @winjki | 3 days ago
In reply to @winjki "@barbaradh now that I think of it....I had headaches before the stroke...but I took ibuprofen and..." + (show)
Profile picture for winjki @winjki

@barbaradh now that I think of it....I had headaches before the stroke...but I took ibuprofen and kept going...no headaches after. One of the side effects of ibuprofen and aspirin are increased blood vessel permeability.....which is why person with this kind of stroke (a Brain bleed) should not take these drugs

Jump to this post

@winjki l was told that headaches after the stroke came from the Pons part of the brain. Apparently my Pons was not affected by the bleed. But your friend's may have been. He can take Tylenol for headaches because it is a different class of drug than ibuprofen and aspirin.
But check with Dr if it is Ok

REPLY
Profile picture for lindamangan13
lindamangan13 | @lindamangan13 | 2 days ago
In reply to @methel "@barbaradh Thank you for your kind thoughts. I had a hemorrhagic stroke because I had a..." + (show)
Profile picture for methel @methel

@barbaradh

Thank you for your kind thoughts.

I had a hemorrhagic stroke because I had a meningioma which bled. I was incredibly blessed that the neurosurgeon was able to extract the meningioma and the excess blood and stop the bleeding. But although I escaped with very little long term damage, the episode almost 10 years ago left me with epilepsy, which is controllable with Keppra.

Best wishes to your brother for a successful outcome.

Jump to this post

@methel , I also started having seizures are my stroke, and am on 760 mg of keppra, I initially was on 500 mg, but at the 2nd seizure, it was increased to 750, I’m feeling a bit more shaky and feel the increase of keppra may be causing this? What strength keppra are you taking?, is it agreeing with you? Linda,

REPLY
1 reply
Profile picture for methel
methel | @methel | 2 days ago
In reply to @lindamangan13 "@methel , I also started having seizures are my stroke, and am on 760 mg of..." + (show)
Profile picture for lindamangan13 @lindamangan13

@methel , I also started having seizures are my stroke, and am on 760 mg of keppra, I initially was on 500 mg, but at the 2nd seizure, it was increased to 750, I’m feeling a bit more shaky and feel the increase of keppra may be causing this? What strength keppra are you taking?, is it agreeing with you? Linda,

Jump to this post

@lindamangan13

I’m taking 1500 mg 2x a day. The neurologist started at a low dose and as I kept having seizures, he kept raising dosage. As the dose went up, the seizures became less severe. For example. The very first seizure generalized and I lost consciousness. The last one, only 1/2 of my tongue twitched for 10 seconds. ( I know it was a seizure. I can’t consciously twitch just the left side of my tongue 😛). He also changed me to extended release Keppra and it worked better.

Except for my being slightly more tired than normal, Keppra has worked very well for me. For which I’m very thankful.

Best wishes to you in your continuing recovery

REPLY
Profile picture for lindamangan13
lindamangan13 | @lindamangan13 | 1 day ago

I’m seeing the neurologist on Aug 10th, thankfully I was conscious for both seizures, but I am noticing twitches in the left side of my face, and did think they may have been very slight really mini seizures, I read about keppra xr and am hoping she will swop me to those, otherwise I’m fine and pg, I won’t have anymore seizures, thank you so much for sharing your information, I wish you all the best on your recovery, Linda

REPLY
Please sign in or register to post a reply.