Help needed! What could my symptoms possibly mean?!
So I´ll post my long story in short. My symptoms are tremors (muscular twitching or involuntary jerky movements in the body), heart palpitations, (vision issues, such as) light sensitivity, constant movements in the body - the tics, that is to say - insomnia, severe, a severe kind of abdominal gas present all the time, muscle contraction in the whole body - as if I´m being held or tied to something by someone. Additionally, I´ve a shaky voice, and I can´t consume even a sip of caffeine, as it causes me a severe attack of this inner restlessness.
As expected, I saw a cardiologist, but every test showed up as negative. Nothing from gastroenterology, neurology or endocrinology either, as all the tests showed no damage done. Then of course I was asked again to see a psychiatrist (I say again because, given the symptoms, I myself fixed an appointment with two different psychiatrist before with any other specialist). Now, for the third time, the psychiatrist says these symptoms have nothing to do with psychiatry, given the absence of depression and anxiety itself. She´s baffled and has no idea, and that because.....
... any antidepressants, anti-psychotics or sedatives worsen my symptoms to the extremes, and also that nothing helps for sleep. Even Benzodiapines put me to a forced very short sleep where the body continues to stay jerky and restless, and Benzodiapines worsen my symptoms the next day!
She´s firmly of the opinion that the issue is a neurological one. However, my EEG and MRI scans showed nothing when I saw a neurologist!
However, the psychiatrist has still fixed me an appointment with a neurologist once again. I´ve now idea what to say to the specialist! Does anyone over here any idea as to what this could mean?
Any help will be hugely valued. I´m actually going through horrible times.....
Interested in more discussions like this? Go to the Brain & Nervous System Support Group.
@romeo2020,
My Parkinson's (PD) symptoms included foot-dragging, balance problems (these first two were especially pronounced when I was tired) lack of facial expressions, and a very soft voice. These are all typical PD signs.
I certainly do feel for you that your symptoms seem to be relegated to the "psychiatric" label. That just is not fair to the patients. It is often an easier way to approach a problem if the doctors cannot find the real reason. Hence, we have to take responsibility to seek out answers on our own.
One more question, if you will. When you saw the endocrinologist was your Vitamin D level checked, calcium level, parathyroid hormone level? These can all point to hyperparathyroidism which is a rather rare diagnostic label. Here is some information on the symptoms of hyperparathyroidism from Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194.
As you reside in Germany, is there any other country where you might seek medical attention?