Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

Interested in more discussions like this? Go to the Bones, Joints & Muscles group.

Wow!!!! In your 80s and you sound young in your posts that I have read. My
mom is 77 yrs old and has always been a beautiful woman and also looked
younger than she was. But lately she looks bad because of her Alzheimer’s,
she forgets to eat are bath. My fourth brother lives with her, but he’s not
in the best of shape because of the life style he lived all his life. We
let him move in after I put him in rehab. He was on meth, we couldn’t find
him so I went looking and found him under a bridge, me and my sister
brought him for help while we were going to rehab he told us that he tried
to take his life and took so much meth that he felt his brain blow up and
saw a bright light. He has been clean know for a year, but he has never
been the same. My older brother helped him get a SSI and Medicare. I do my
best to go to moms every other day to make sure the house is clean and they
have bathed. My daughter works at the hospital and home health and if I
can’t get mom to bath she can, she has a compassion and a way with the
elderly and they love her. I hope you get the best help that’s out there,
our elders have earned it. salena54

salena

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I’m so sorry that you are going through so much. I don’t know how Lyrics
and cymbalta makes you feel, I couldn’t take it. It made me feel irritable
and I would be snappy, my oldest granddaughter but like this, mowmow has an
attitude of the worst kind and it just don’t suit her. So they took me off.
My Doctor has to keep trying different things because I can’t take just
anything. You might have to get you a lawyer to be awarded your disability.
The lady that is doing my case told me to get a lawyer, because when they
found out that I still do my job and go to the University when there’s new
research in psychology and counseling. They said if I can do school work
I’m not disabled. She told me that they have people on SSI and disability
that go to trade school, I’m not in school anymore, I just go to for what’s
new. I haven’t found a lawyer yet, it get discouraging sometimes and they
can make you feel really cheap and low class. Hope you get what you
deserve, and what you have paid in. We need to fight for this because I
fear it won’t be an option before long, no one will be able to get it.

salena

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What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don’t take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don’t seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven’t so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can’t get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn’t help the pain but –you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven’t helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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@juneia

What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don’t take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don’t seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven’t so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can’t get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn’t help the pain but –you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven’t helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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Hi @juneia, and welcome to Connect. I’m glad you found the Managing fibromyalgia thread to connect with others who are experiencing similar pain and symptoms. Thanks for sharing some methods that help ease your pain, as this helps other members see what works for you and what doesn’t.

I’m tagging @oldgeezer81, @edriaragosin and @pheefoe – all members who have recently contributed to discussions around fibromyalgia.

You mentioned that rocking back and forth helps relieve some of your pain. Have you found any other exercises/movements that reduce the severity of the pain?

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@juneia

What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don’t take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don’t seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven’t so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can’t get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn’t help the pain but –you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven’t helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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I again recommend gabapentin. Star at 300mg 3 times a day and then increase
as needed. I take 800mg 4 times a day and wish I could increase but my
insurance company has a cap on it. It’s an old seizure med but it sure
helps Fibromyalgia and neuropathy. briansr

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Hi, is this med the same as Lyrical because it is for the same thing. I tried it but for some reason it caused more pain and I could feel slight depression.I have Celexa which is supposed to relax muscles and helped pain. It did somewhat. It was supposed to just be an anti depressant but the researchers found that it also help with pain. Thanks for the answer. Sometimes some of those older medications are better than the new.One doctor said Elavil was still was the best anti depressant. Juneia

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@juneia

What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don’t take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don’t seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven’t so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can’t get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn’t help the pain but –you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven’t helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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Hi, you asked if I had any other method for pain with Fibromyalgia. I started a very different type of what is called Therapeutic Yoga. I was referred to this person by friend who has MS. It has done wonders for him and it is hard to believe he is the same person of these past years.I thought I would try it and tho’ I wondered about it was anything that might help. It is very different, The therapist comes once a week.Like anything else, it is pricey. Also I have a massage every two weeks. I would like to afford more but that is how it is. Look up Therapeutic Yoga and see what you think Juneia

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Couldn’t afford it on a fixed income!!!

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@learningtolive2

I have been living with RA and Fibromyalgia for the past 3 years. I hate that I have to take a handful of meds everyday and sometimes I get very frustrated with it all. I see a Rheumatologist and I think the med mixture I am on is working pretty good. I take Cymbalta- if you have any bit of depression, these dx will make it worse, cymbalta helps with chronic pain- Plaquinil and Sulfasalzine for the RA, Gabapentin for the Fibro, of course then my BP went up and I had to go on a med for that as well. Now I have had to have a total hip replacement due to OA seems I can’t win.

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Hi, I too suffer from Fibromyalgia for the past 20 years plus. You mentioned the drug Gabapentin, this name came up recently somewhere ( I’m not sure if it was while I was in hospital recently or maybe online I really don’t remember where, my memory is terrible!), anyway- next you mentioned high blood pressure….
Was the high blood pressure in relation to the Gabapentin?

I’ve never been offered anything for my Fibromyalgia ( docs don’t seem to care about it around here where I live:/), and I desperately need something to ease the pain as I also have a bucket load of other medical probs including several auto-immune plus other medical conditiions and diseases which mostly all cause me pain.
I’m on morphine meds ( oxycontin and ordine- liquid morphine, but not prescribed for fibro of course). I just don’t know where to turn or what to even ask for so I thought that depending on your reply to my question that maybe gabapentin might be a good place to start?
By the way, I’m in Australia and Fibro isn’t given the attention that its given in the US:/
Soft, gentle hugs for you and for all of us who suffer pain, ,
MiriG

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@learningtolive2

I have been living with RA and Fibromyalgia for the past 3 years. I hate that I have to take a handful of meds everyday and sometimes I get very frustrated with it all. I see a Rheumatologist and I think the med mixture I am on is working pretty good. I take Cymbalta- if you have any bit of depression, these dx will make it worse, cymbalta helps with chronic pain- Plaquinil and Sulfasalzine for the RA, Gabapentin for the Fibro, of course then my BP went up and I had to go on a med for that as well. Now I have had to have a total hip replacement due to OA seems I can’t win.

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My Rheumatologist gives me soma 350 mg 3 a day if needed. The generic name
is carisoprodol an is for muscle pain. Narcotics will not help a
fibromyalgia attack but this will. But be careful taking it. The less the
better. You system gets very used to it then it won’t work. Gabapentin is
really good in combination for overall pain and Fibromyalgia. Your on some
really strong narcs and I would think you would have to cut back on those
some before adding more meds. Just my opinion. briansr

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@jyth

I have also been diagnosed with Fibromyalgia. My dr sent me to a pain management program for Fibro and there we were taught to deal with stress via mindful meditation and were strongly encouraged to stay active and exercise. I too wake up most morning feeling like I have the flu…headache, stomach ache and nausea, body aches, irritated bowels and bladder, weak, fatigued, etc. It’s hard enough to cope with the fibro pain..mostly in my arms and back…but feeling so sick so much of the time is really depressing. The fatigue is what we have been addressing lately. I’m using a bi-pap machine and have just switched to a hospital bed with a cushy thick foam mattress and am now getting a good 8 hour sleep. But I still fall back to sleep within the first hour i get up and need a nap later on in the day as well. I used to be hyper-active, always on the go…hard to deal with the changes. Now my dr gave me a stimulant to help with the fatigue and it seemed to help for about a week, now I’m not so sure as I’ve been so tired these last couple days. Of course living in the northeast, the weather changes have been brutal this winter. I’m very affected by the barometer. I tried Cymbalta…it didn’t help and I only gained weight on it. Not willing to try Lyrica as it also contributes to weight gain. I’ve gained so much this past year due to inactivity and now my pre-diabetes has developed into diabetes. It just seems to never end.

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Hi everyone,
My docs haven’t mentioned Gabapentin, but I think my sister takes it for fibro. I’m staying away from the narcs so does this really help? Web searches I’ve done don’t really mention fibro as a condition they prescribe this for but they do mention nerve pain. The stimulant I mentioned..Modafinil…is helping a little, i’ve asked my doc to increase the dosage and we’ll see how that helps. It helps with the fatigue and helps keeping me awake and functioning at a higher level which I’m very grateful for. I’m working hard at addressing my sleep issues so I can help reduce the fatigue. Now if we could only find something that could treat the flu sick symptoms that seem to go along with barometer changes in the weather. Does anyone else have these issues?
I’m also walking with a knee brace on my left knee and use a walker as i have an inflamed IT band on my right side. This is really a drag for a once very active “jock” personality!
I’m also realizing how much stress affects the level of pain I’m experiencing! A few stressful events over the last couple weeks really put me into a well of pain, sick, unable to think straight. I’m giving the mindful meditation a more serious consideration as a combatant to this. has anyone else tried mindful meditation? I was taught to do this at the pain management clinic I attended.

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I too am on a fixed income and I guess I am so very lucky to have my three children who can help me out .My blue cross helps somewhat..

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