Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

No, all the info I can get helps, thanks!<br />
<br />

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Wow!!!! In your 80s and you sound young in your posts that I have read. My<br />
mom is 77 yrs old and has always been a beautiful woman and also looked<br />
younger than she was. But lately she looks bad because of her Alzheimer's,<br />
she forgets to eat are bath. My fourth brother lives with her, but he's not<br />
in the best of shape because of the life style he lived all his life. We<br />
let him move in after I put him in rehab. He was on meth, we couldn't find<br />
him so I went looking and found him under a bridge, me and my sister<br />
brought him for help while we were going to rehab he told us that he tried<br />
to take his life and took so much meth that he felt his brain blow up and<br />
saw a bright light. He has been clean know for a year, but he has never<br />
been the same. My older brother helped him get a SSI and Medicare. I do my<br />
best to go to moms every other day to make sure the house is clean and they<br />
have bathed. My daughter works at the hospital and home health and if I<br />
can't get mom to bath she can, she has a compassion and a way with the<br />
elderly and they love her. I hope you get the best help that's out there,<br />
our elders have earned it. salena54<br />
<br />
salena<br />

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I'm so sorry that you are going through so much. I don't know how Lyrics<br />
and cymbalta makes you feel, I couldn't take it. It made me feel irritable<br />
and I would be snappy, my oldest granddaughter but like this, mowmow has an<br />
attitude of the worst kind and it just don't suit her. So they took me off.<br />
My Doctor has to keep trying different things because I can't take just<br />
anything. You might have to get you a lawyer to be awarded your disability.<br />
The lady that is doing my case told me to get a lawyer, because when they<br />
found out that I still do my job and go to the University when there's new<br />
research in psychology and counseling. They said if I can do school work<br />
I'm not disabled. She told me that they have people on SSI and disability<br />
that go to trade school, I'm not in school anymore, I just go to for what's<br />
new. I haven't found a lawyer yet, it get discouraging sometimes and they<br />
can make you feel really cheap and low class. Hope you get what you<br />
deserve, and what you have paid in. We need to fight for this because I<br />
fear it won't be an option before long, no one will be able to get it.<br />
<br />
salena<br />

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What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don't take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don't seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven't so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can't get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn't help the pain but --you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven't helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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@juneia

What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don't take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don't seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven't so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can't get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn't help the pain but --you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven't helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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Hi @juneia, and welcome to Connect. I’m glad you found the Managing fibromyalgia thread to connect with others who are experiencing similar pain and symptoms. Thanks for sharing some methods that help ease your pain, as this helps other members see what works for you and what doesn’t.

I’m tagging @oldgeezer81, @edriaragosin and @pheefoe – all members who have recently contributed to discussions around fibromyalgia.

You mentioned that rocking back and forth helps relieve some of your pain. Have you found any other exercises/movements that reduce the severity of the pain?

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@juneia

What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don't take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don't seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven't so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can't get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn't help the pain but --you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven't helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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I again recommend gabapentin. Star at 300mg 3 times a day and then increase<br />
as needed. I take 800mg 4 times a day and wish I could increase but my<br />
insurance company has a cap on it. It's an old seizure med but it sure<br />
helps Fibromyalgia and neuropathy. briansr<br />

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Hi, is this med the same as Lyrical because it is for the same thing. I tried it but for some reason it caused more pain and I could feel slight depression.I have Celexa which is supposed to relax muscles and helped pain. It did somewhat. It was supposed to just be an anti depressant but the researchers found that it also help with pain. Thanks for the answer. Sometimes some of those older medications are better than the new.One doctor said Elavil was still was the best anti depressant. Juneia

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@juneia

What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don't take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don't seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven't so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can't get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn't help the pain but --you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven't helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

Jump to this post

Hi, you asked if I had any other method for pain with Fibromyalgia. I started a very different type of what is called Therapeutic Yoga. I was referred to this person by friend who has MS. It has done wonders for him and it is hard to believe he is the same person of these past years.I thought I would try it and tho’ I wondered about it was anything that might help. It is very different, The therapist comes once a week.Like anything else, it is pricey. Also I have a massage every two weeks. I would like to afford more but that is how it is. Look up Therapeutic Yoga and see what you think Juneia<br>

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Couldn't afford it on a fixed income!!!<br>

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