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Managing fibromyalgia

Fibromyalgia | Last Active: Sep 9, 2023 | Replies (142)

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@juneia

What you describe I know very well. Just once I would like to wake up without pain and not feel I could do with more sleep. Thankfully my doctor tries his best. I have restless legs also with all the other things you have. My doctor prescribed Sinemet for my legs. It is a Parkinson medication-but I can still get where my legs jerk and the pain is terrific. So the best thing I have is a narcotic. If I don't take pain meds. to go to bed I am up trying to walk the feeling off and waiting for the pain meds. to take effect. Depression is a hard thing to manage so I have antidepressants too. My doctor feels that older people don't seem to get addicted as quickly younger people do. And what the heck at 86 what does it matter. Although I haven't so far. My children think I should try medical marijuana but my doctor says the pain killer I have is better for me.One thing I have found out when in pain rocking myself back and forth on the bed helps. Also I have knelt down as in prayer and put my head and shoulders well up on the bed and actually slept. I can't get in and out of a tub but before when I could use the tub I have found relief of pain just lying in the warm water. Fibromyalgia is a miserable thing and can be a handicap as far as having to work. I keep saying to myself I am glad it is not cancer.It doesn't help the pain but --you try anything when you have Fibromyalgia. It is the tiredness that beats you even if you have killed the pain. I just know some days I will have to sleep all day and then go to bed and sleep all night. I haven't helped much but it helped to talk about it. Take care. By the way Lyrica caused me more pain and I was really depressed. Scary.

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Replies to "What you describe I know very well. Just once I would like to wake up without..."

Hi @juneia, and welcome to Connect. I’m glad you found the Managing fibromyalgia thread to connect with others who are experiencing similar pain and symptoms. Thanks for sharing some methods that help ease your pain, as this helps other members see what works for you and what doesn’t.

I’m tagging @oldgeezer81, @edriaragosin and @pheefoe – all members who have recently contributed to discussions around fibromyalgia.

You mentioned that rocking back and forth helps relieve some of your pain. Have you found any other exercises/movements that reduce the severity of the pain?

I again recommend gabapentin. Star at 300mg 3 times a day and then increase<br />
as needed. I take 800mg 4 times a day and wish I could increase but my<br />
insurance company has a cap on it. It's an old seizure med but it sure<br />
helps Fibromyalgia and neuropathy. briansr<br />

Hi, you asked if I had any other method for pain with Fibromyalgia. I started a very different type of what is called Therapeutic Yoga. I was referred to this person by friend who has MS. It has done wonders for him and it is hard to believe he is the same person of these past years.I thought I would try it and tho’ I wondered about it was anything that might help. It is very different, The therapist comes once a week.Like anything else, it is pricey. Also I have a massage every two weeks. I would like to afford more but that is how it is. Look up Therapeutic Yoga and see what you think Juneia<br>

I second the recommendation for Therapeutic Yoga! I think that Yoga has enabled me to be more active, and although I often am sore, it feels like a good sore. But I caution you to never ignore a sharp pain that is persistent and keeps getting worse. I dislocated my shoulder one time, and thought it was just Fibro pain, until I finally went to a chiropractor and he put my arm in a sling for six weeks - at the beginning of gardening season!

I second your recommendation for gabapentin. It has made all the difference in the world for me. I am taking the same dosage as you.

Well,hubby takes it.I might try it in the future.It's overwhelming.Well,right now,I'm trying 2 recover from(ankle)bone bruising 2.Thx.

Duloxetine, an SNRI antidepressant, can help some folks with chronic pain of multiple origins. Fewer side effects than the old tricyclics but still some.