Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.
Some of us are very sensitive to weather changes, foods, and even a drop in water intake can bring on a flair of “flu-like” symptoms. Sometimes it remits, giving me hope that if I continue to eat mindfully, attend to my stress level, sleep enough each night (ha) and keep my water up, I will have good days.
Yoga, Thai Chi, walking – these are all things that I can do. I probably won’t ever take up white-water kayaking, but I can gather “Joy Points” throughout the day and enjoy what I can. The ONLY thing that ever sent my symptoms completely away was a small dose of HGH in the muscles. I cannot find a Doctor willing to prescribe that for me anymore:{
I think I’m sensitive 2 the weather.i do try 2 eat mindfully,drink enough water,sleep enough&attend 2 my stress.i walk 2 to 3 times a wk.2.Think I’ve heard of HGH.That’s 2 bad.But,when I get my Disability this weekend;I’ll buy some pot ointment.I’ve heard it’s suppose 2 be effective.Hopefully,so!get more sleep sometimes.
My initial symptoms for years were an electric fence feeling and extreme fatigue through my entire body. Diet, exercise as part of a low low level strict routine helps me most. Tai chi, yoga, swimming, walking all work for me. When I go for a walk as I find myself in pain I feel better. I also had to lower my expectations of myself I adjusted better. The mental challenge of denial and all associated to appear cyclically and the biggest challenge for me. Mayo docs encouraged self management and staying off of meds. After a couple of years I completely understand. I’m considering a class they offer to learn how to deal with pain. Maybe this would help you. I also continue to fight the urge to treat symptoms.
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I realize that I did not answer what CBD stands for. Cannabidoil is an extraction from a strain of Hemp plant that is very soothing to sore muscles and does not get one “high” at all. I have heard it is even being offered in main-stream body product stores, but I prefer to go to the “Pot” shop for it because I can be sure that they don’t use any harmful emulsifiers. Sometimes, I wish I could just bathe in it. It doesn’t have a smell, or a burn, it just stops the pain.
There are Fibromyalgia and Fatigue centers, but very expensive. It requires a lot of blood work. Many people who develop sudden onset of Fibro symptoms actually have Lyme disease. Most of us have “yuppie flu” that started showing up in the early 80s – I forget the clinical name for it, but it is related to chicken pox, works it way into your nervous system and is opportunistic when we become tired, eat badly, overstress, don’t sleep. Since most of us have a disrupted sleep pattern, it is hard to not be tired. I find that D-Ribose with magnesium malate can be very helpful.
Just beware, there is a lot of snake oil being sold as “cures”.
I have concluded that most ailments that are diagnosed as being fibromyalgia are not autoimmune diseases at all and that rheumatologists are generally surprisingly inept at treating most forms of the disease. I got way better treatment from my general physician than anyone else. I made three trips to Mayo Clinic and the folks there never even were able to diagnose me properly, much less give me any effective treatment. One doctor glared at me and said, “Nobody every died of pain. Just go home and get over it.”
You really need to find something that works for you. There are a lot of things out there. In my experience three trips to Mayo Clinic was a complete waste of my time and hard-earned money. A good local GP was much more effective and I have been able to function normally for the past nine years as a result.
How nice for you that you had a competent GP! That is often, in fact, rarely the case. First, they think you are a nut case, then they think you just want drugs. I have found over the course of my now 30 year journey with the diagnosis of Fibro – Drugs Rarely help. You have to find the thing that broke you in the first place, then fix it. I know it sounds harsh, but adding a plethora of chemicals to an already compromised system just confuses and be fuddles the brain. Pain is just pain…find the mantra to deal with it, and move on to a better state of health. Doctors often know shit about why some people hurt and others don’t. We all experience pain in an individual way.
Remembering that Pain is just a sensation that your mind can overcome with mindful attention is a powerful tool.
Liked by Colleen Young, Connect Director
@jyth
Hi! I’m so happy to hear from someone else who has these symptoms. i seem to feel worse with barometer changes, especially downward. I also get vertigo, nausea, irritable bowel and bladder along with all the symptoms you listed. I’ve been talking with my doctors for a year now about this. They just don’t seem to have any answers. From the research I’ve done it seems all they can do is treat the symptoms. I’ve been taking 2 prilosec every morning. It has reduced the stomach pain but not the nausea, which I have everyday. so PCP has finally agreed to send me to gastroenterologist. My sister who also has Fibro has stomach issues as well and her gastro doc gave her different meds that seem to work. She lives too far away for me to use her doctors. Fortunately for her, she doesn’t get the complete heavy flu symptoms but gets enough of it. Good luck!