Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

Interested in more discussions like this? Go to the Bones, Joints & Muscles group.

@mom2zacknwill

Hi everyone, my name is Jenn. I have been suffering chronic back and hip pain for a couple of years now and was recently diagnosed with fibromyalgia. I finally found a great pain Dr. Luckily, I am slowly finding some relief, but not as much as I want. It’s a process though, right? Some days I’m at my wit’s end and thought it best to find a community forum for support, motivation, and possible solutions etc.

I look forward to being a part of this community and interacting with everyone.

Thanks for reading,
~Jenn

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Welcome Jenn, that’s great you found a good pain dr, I haven’t been that lucky todate. My PT ordered a walker and as a 67 year old I really didn’t want to use it but It really helps with the back pain. i can walk much further and when it hurts my walker has a seat so I can sit. once the pain eases I can walk again for a short distance. I’m with you on the flu like symptoms and stomach pain. I just had a bunch of tests done on my gastrointestinal tract to be sure there wasn’t something else going on. Lucky or not, everything looks normal so it’s most likely the fibro. I have a sister who died of pancreatic cancer about 1 1/2 years ago so they wanted to be sure that wasn’t the issue. The weather brings on my flu symptoms and since I live in the northeast, we get lots of weather!
Good luck

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@anupma

I think different food have different effects on body and mind. I have noticed a combination of yogurt and rice makes my pain worst. I have tried gluten free food which has helped me with my pain. I also use steam room, spa and do water aerobic in warm water which helps to reduce pain and tiredness. I do take turmeric in hot milk before bed that helps with sleep.

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Welcome @anupma, You may also be interested in this discussion:
– Tumeric http://mayocl.in/2dHSGUS

Great food and exercise tips. Thank you.

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I’ve had Fibro for 25+ years and what I do faithfully summer,fall,string or winter…. I use a heating throw blanket and a heating pad. Showers hurt when the water touches my skin and baths are out of the question due to medical problems, so a shower just long enough to get clean and wash my hair. The heat helps my joints and when I’m sitting in my recliner that throw is turned on and I put the heating pad on my neck.
I’ve also started trying Acupuncture and I was skeptical but I can tell a difference! Also everyday I take a Probiotic once a day and it has tamed my gut down where I have Irritabl Bowel Syndrome and it helps me stay regular. I also use a wheelchair as I can’t walk far due to swelling in feet.
I hope this helps! Best of luck to you!

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Hot water bath for 1 hour helps a lot, massage also helps and yoga
Physiotherapy for the fibrozed joints

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I was diagnosed with sleep apnea in 2004 and was prescribed 15 mg zopiclone nightly and a Cpap unit. In 2009, I was tested again and no longer had sleep apnea but was diagnosed with chronic insomnia. Since 2010, I have been prescribed at bedtime: 15 mg zopiclone, 100 mg Trazodone, 50 mg Quetiapine, and 50 mg Elavil. In 2011, It was discovered that I developed left bundle branch block. I began showing symptoms in 2018 of shortness of breath, fainting, dizziness, fatigue and muscle weakness. I am now wondering if all the medication that I am taking for insomnia has contributed to my heart problems. Any thoughts on this would be welcomed.

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@kenbalacko

I was diagnosed with sleep apnea in 2004 and was prescribed 15 mg zopiclone nightly and a Cpap unit. In 2009, I was tested again and no longer had sleep apnea but was diagnosed with chronic insomnia. Since 2010, I have been prescribed at bedtime: 15 mg zopiclone, 100 mg Trazodone, 50 mg Quetiapine, and 50 mg Elavil. In 2011, It was discovered that I developed left bundle branch block. I began showing symptoms in 2018 of shortness of breath, fainting, dizziness, fatigue and muscle weakness. I am now wondering if all the medication that I am taking for insomnia has contributed to my heart problems. Any thoughts on this would be welcomed.

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Hi Ken, it sure sounds like you might need a review of your medications with your doctor and/or cardiologist. I'm not a medical professional and therefore not in a position to weigh in on the cause of the left bundle branch block. However, you do want to make sure that it is being treated appropriately and that the medications you are currently on are not worsening your cardiovascular issues.

Is your cardiologist aware of the current drugs you take and the history of diagnoses and treatments? I'm also curious that you posted your message to a discussion about fibromyalgia. Do you also have fibromyalgia?

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@colleenyoung

Hi Ken, it sure sounds like you might need a review of your medications with your doctor and/or cardiologist. I'm not a medical professional and therefore not in a position to weigh in on the cause of the left bundle branch block. However, you do want to make sure that it is being treated appropriately and that the medications you are currently on are not worsening your cardiovascular issues.

Is your cardiologist aware of the current drugs you take and the history of diagnoses and treatments? I'm also curious that you posted your message to a discussion about fibromyalgia. Do you also have fibromyalgia?

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I was just curious about fibromyalgia and the symptoms, some of what I’m feeling. Thanks for replying to my email.
I obtained my health records through the “freedom of information act” and looking through the letters from doctors is certainly enlightening. Some phrases such as: wide QRS complex, subclinical atherosclerosis, nonischemic cardiomyopathy, left bundle branch block, inflammatory arthritis, osteoporosis, chronic insomnia. Amazing why the doctors involved failed to mention many of these results. I have an appointment with a cardio internist this week and will be asking many questions, including about medications. Thank you for your comments. I will keep you updated.

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@kenbalacko

I was just curious about fibromyalgia and the symptoms, some of what I’m feeling. Thanks for replying to my email.
I obtained my health records through the “freedom of information act” and looking through the letters from doctors is certainly enlightening. Some phrases such as: wide QRS complex, subclinical atherosclerosis, nonischemic cardiomyopathy, left bundle branch block, inflammatory arthritis, osteoporosis, chronic insomnia. Amazing why the doctors involved failed to mention many of these results. I have an appointment with a cardio internist this week and will be asking many questions, including about medications. Thank you for your comments. I will keep you updated.

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Did you meet with the cardio internist? What did you learn?

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Runners with fibromyalgia: 1. Is running up hills extremely painful? And 2. When I stop running, I have an overwhelming pain that runs through my calves for about 10 seconds to a minute. It is excruciating and worse than the pain running up hills. Does this happen to anyone else.

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