Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@lingo1357

Hi,
I have been suffering from fibromyalgia for years and I have been to many doctors and done many tests.
The most important problem that torments me is muscle stiffness. Although I have taken and am taking many medicines, I still have this problem.

Now my question is, has a new drug been made for this problem that will reduce some of the problems of fibromyalgia patients?
Thanks,
Saeed

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I had to do Physical therapy for 2 day weekly after a bad hip operation and its follow ups. I am old and the workout didn;t feel like they were accomplishing anything for my muscles. The I found HMB and rebuilding became mush easier for my muscles. I gather the "old" part is where HMB is recommended so?????

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@rjmtwit

I had to do Physical therapy for 2 day weekly after a bad hip operation and its follow ups. I am old and the workout didn;t feel like they were accomplishing anything for my muscles. The I found HMB and rebuilding became mush easier for my muscles. I gather the "old" part is where HMB is recommended so?????

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Pay attention to your diet. Many comfort foods are processed and will cause you pain and/or "the slows" the next day or so. Avoid white potatoes and tomatoes (nightshades), sugar and aspartame, whole wheat (maybe old wheat varieties are ok for you), moderate dairy. I am leery of supplements but now take D3, B-12 sublingual (helps fog) and magnesium. Hydration is really important, but also include electrolytes through the day. Avoid resting all day when you hurt: muscle loss is pretty quick when you do not keep moving. A morning walk can loosen up tense muscles that are painful. Massages, PT can also help. I use topical creams, ice/heat, lidocaine patches, KT tape as needed and pay attention to ergonomics. I wear splints at night for painful joints, which aids circulation and keeps cramping at bay.

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Thanks for your info. I was offering the HMB idea as an extra possibility beyond the diet, hydration, vitamins anjd minerals like magnesium. HMB is not generally mentioned but it helped me significantly and is now hjelping me to get going again after all that COVID sitting around.

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@mrsflutterby

Hi,
I'm so sorry you have FM, I've had it since 1995. I worked very closely with a rheumatologist for three years to design a regimen that works for me. We are all individual and the 120+ potential issues that can affect those with fibromyalgia are different for everyone. Some need medication (or a combination of meds), others physical therapy and others need counseling (or a combination of all three!). I take a cocktail of meds that help with Restless Legs Syndrome, insomnia, pain and inflammation. I stay away from all opioid medications as they never helped me. I've also dealt with migraines, IBS, and various other issues but fibro can be managed. My main advice is to not let fibro run your life or use it as a label for your life. You have fibro, it does not have you!

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May I ask what your medication cocktail is?

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@breick

May I ask what your medication cocktail is?

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It is personalized for me specifically and the various sub-problems I have and may not work for others. It is important to identify your own triggers and have a doctor prescribe accordingly. I stopped throwing expensive supplements at my issues many years ago since most didn't work even though I really wanted them to work. Neurontin for nerve pain, a tiny spec of Klonopin for RLS, Soma for muscle pain, Mobic for inflammation (due to many ortho injuries), and Cymbalta for FM. Once we figured out tolerable doses, they have remained the same for over 20 years. It is a pretty standard combination and good for me but may not work for others. The dosages are all small.

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@mrsflutterby

It is personalized for me specifically and the various sub-problems I have and may not work for others. It is important to identify your own triggers and have a doctor prescribe accordingly. I stopped throwing expensive supplements at my issues many years ago since most didn't work even though I really wanted them to work. Neurontin for nerve pain, a tiny spec of Klonopin for RLS, Soma for muscle pain, Mobic for inflammation (due to many ortho injuries), and Cymbalta for FM. Once we figured out tolerable doses, they have remained the same for over 20 years. It is a pretty standard combination and good for me but may not work for others. The dosages are all small.

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I'm doing pretty much the same. It works fairly well for years also. Hugs to you!!

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I just got diagnosed but I know I’ve had it for years
I take aspirin and ibuprofen and Benadryl
I have an rx for Rona in muscle relaxer
Since January I have been very sick

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Mrs Artavia, I am sorry to read you have been diagnosed with Fibromyalgia. I’ve had it 22 Yrs - I wish I could tell you there is a cure but medical reports and drs say there is not. I got it because I had very hard fall onto a stone floor and 26 Yrs later had neck surgery which left me with some chronic pain. The nervous system can only handle just a certain amount of pain and then it begins to send out pain signals all over the body and that causes Fibromyalgia. One thing I can tell u is a fact and that is that every time you stump your toe, have anesthesia or any painful event, your Fibro will adopt that higher pain level and never go bk to the previous level. So be careful to not hurt yourself and don’t have any unnecessary surgery. My pain over the last 22 Yrs did grow and grow until it is now severe and I have to lower it with both Lyrica and Medical Marijuana. If u decide to try Lyrica, start at 25 mgs and stay on it 3 mos at least to give it a chance to work. If u don’t take it, Tramadol is the next thing to try. It is an opioid derivative. It will be somewhat constipating but u can deal with that by drinking Miralax in water. (I am allergic to opioids and opioid derivatives).
If u live in a city with cold winters, would be best to move to Fl or southern Texas bc the warmth and higher Barometric Pressure will calm down your aches and pains a great deal. Always remember with Fibro, the muscle, bone, ligament tissues and nerves are normal. The pain is caused by the brain sending pain messages to the nerves in your muscles causing the muscles to burn, sting, and tighten up. Sit in a tub of Magnesium powder (Epsom Salt - look up how much to use) and only 2-3 drops of Lavender essential oil. Getting gentle massages will help but the cost begins to add up. Move all your body limbs while u walk outside or on a gym track on a rainy day. Ditch foods that trigger pain; MSG spice (in Chinese foods and boxed groc store foods) sugary foods and beverages, capers, hot spiced foods, food dyes, soy, garlic, sauerkraut, alcoholic drinks, acidic or tart liquids, chocolate and caffeine sure will trigger pain. Get 35 grams of fiber each day through veggies and low sweetness fruits. Take these supplements: Alpha Lipoic Acid, Acetyl L Carnitine, omega 3 fish oil (if on a blood thinner, you won’t be able to take omega 3 fish oil); take a Multivitamin which has all the B Complex Vitamins and minerals. Drink half ur wt in ounces of filtered water each day. Avoid stress (as much as is possible) and toxic ppl. I hope all this helps you and I’m praying it will!

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@rjmtwit

I had to do Physical therapy for 2 day weekly after a bad hip operation and its follow ups. I am old and the workout didn;t feel like they were accomplishing anything for my muscles. The I found HMB and rebuilding became mush easier for my muscles. I gather the "old" part is where HMB is recommended so?????

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What is HMB??

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