Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

@beatricefay

What did your doctor give you for sleep? My sleep is awful after a knee replacement. Focusing on the pain with different meds (percoset, gabapentin, acetaminophen), but still up every 2 hours. Beatricefay

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In reply to beatricefay, who wrote – What did your doctor give you for sleep? My sleep is awful after a knee replacement. Focusing on the pain with different meds (percoset, gabapentin, acetaminophen), but still up every 2 hours.

I take three 15 mg. pills of temezapam about an hour before going to bed. My pain levels drop so I usually fall asleep without too much trouble and I stay asleep between four and seven hours.

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@cila

Hello, where did you find the Dr. that help you for sleeping? I myself have hard time sleeping, I only get 3 or 4 hrs.I have been taking sleeping pills for a long time and I don’t to use them anymore. Thanks for the info.

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In reply to cila, who wrote – Hello, where did you find the Dr. that help you for sleeping? I myself have hard time sleeping, I only get 3 or 4 hrs.I have been taking sleeping pills for a long time and I don’t to use them anymore. Thanks for the info.

There is really only one doctor in my area (Quad Cities – Iowa and Illinois) who handles sleep issues, usually sleep apnea. My GP referred me to him and he has been nothing short of excellent. If you can sleep without pills, so much the better. I wish I could and have tried to do so from time to time, but I can’t get to sleep and when I do it is very light.

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@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

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In reply o 1langla, who wrote – Thanks!Hopefully,that means praying 4 me 2.Huh?I do read&watch tv.

I will pray for you. I have a wide circle of friends who pray for me and I know God hears and answers prayer.

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@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

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I’ll pray 4 you 2.Thanks!Yes,He does.

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@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

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Yes, of course, I do many intellectual things all day long……I used to be able to do my art work but everything is too back breaking in every medium. ladyjane85

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@disgusted

I have concluded that most ailments that are diagnosed as being fibromyalgia are not autoimmune diseases at all and that rheumatologists are generally surprisingly inept at treating most forms of the disease. I got way better treatment from my general physician than anyone else. I made three trips to Mayo Clinic and the folks there never even were able to diagnose me properly, much less give me any effective treatment. One doctor glared at me and said, “Nobody every died of pain. Just go home and get over it.”

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Disgusting

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Now,I’ve a sprained ankle.Plz(thx)pray 4 me.

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That’s 2 bad.I know life’s hard @ times.

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@colleenyoung

@disgusted What did you GP do that helped? What is your diagnosis?

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I’m not sure what the discussion on fibromyalgia has been I’VE been down for a long time. I have had 8 spinal surgeries and after 20 + years opened my mouth to my rheumatologistt sometimes I hurt all over. I also have 4 immune diseases diagnosed at a two week stay at the best hospital in my state. My doctor worked me over for 30 minutes and sad add fibromyalgia to the list. He said prednisone would be best but to dangerous so he gave me soma which helps a lot. I’ll leave it at that for now. briansr.

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I have found bi-weekly full body massages to be extremely helpful in my overall general well being. I also find baths heavy with epsom salts and sea salts helpful. My doctor just prescribed Trazodone at bedtime this week, and I do believe I am waking more rested. I have chronic pressure urticaria (hives), chronic fatigue, fibromyalgia, degenerative osteoarthritis, chronic clinical depression, restless leg syndrome, obesity, hypertension and hyperlipidemia.

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Is there any group that discusses Fibro and chronic pain?

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Hi @tbeckys, and welcome to Connect. I moved your message over to this discussion on managing fibromyalgia. I’d like to introduce you to several members on Connect, including @ladyjane85, @disgusted, @robbinr and @1langla. I’d also like you to meet two of our mentors, @dawn_giacabazi and @johnwburns. There is also a Chronic Pain group that you may find resourceful: http://mayocl.in/2cBiRN5.

@tbeckys, can you tell us a little more about yourself?

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Hi everyone, my name is Jenn. I have been suffering chronic back and hip pain for a couple of years now and was recently diagnosed with fibromyalgia. I finally found a great pain Dr. Luckily, I am slowly finding some relief, but not as much as I want. It’s a process though, right? Some days I’m at my wit’s end and thought it best to find a community forum for support, motivation, and possible solutions etc.

I look forward to being a part of this community and interacting with everyone.

Thanks for reading,
~Jenn

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@mom2zacknwill

Hi everyone, my name is Jenn. I have been suffering chronic back and hip pain for a couple of years now and was recently diagnosed with fibromyalgia. I finally found a great pain Dr. Luckily, I am slowly finding some relief, but not as much as I want. It’s a process though, right? Some days I’m at my wit’s end and thought it best to find a community forum for support, motivation, and possible solutions etc.

I look forward to being a part of this community and interacting with everyone.

Thanks for reading,
~Jenn

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Welcome Jenn! So glad to hear you found a great pain doc and that you found Connect as your community for support, motivation and tips as you manage your new diagnosis – firbromyalgia.

@ladyjane85 @lamerex4 @beatricefay @disgusted @1langla @jyth @robbinr @jharsh @dlady and @juneia will you join me in welcoming @mom2zacknwill?

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@mom2zacknwill

Hi everyone, my name is Jenn. I have been suffering chronic back and hip pain for a couple of years now and was recently diagnosed with fibromyalgia. I finally found a great pain Dr. Luckily, I am slowly finding some relief, but not as much as I want. It’s a process though, right? Some days I’m at my wit’s end and thought it best to find a community forum for support, motivation, and possible solutions etc.

I look forward to being a part of this community and interacting with everyone.

Thanks for reading,
~Jenn

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Howdy there! I was diagnosed last year and doing much better since. It’d be great to share information with you.

I’ve been focusing on my diet and finding wheat and cow dairy don’t particularly help me. Been trying to get off of medication and it’s not going as quickly as I hoped. I changed to a part time job and that has been huge. I’m managing now.

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