Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@colleenyoung

@disgusted What did you GP do that helped? What is your diagnosis?

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He did what no doctor at Mayo was capable or willing to do for me - he diagnosed me correctly with fibromyalgia.

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@disgusted

I have concluded that most ailments that are diagnosed as being fibromyalgia are not autoimmune diseases at all and that rheumatologists are generally surprisingly inept at treating most forms of the disease. I got way better treatment from my general physician than anyone else. I made three trips to Mayo Clinic and the folks there never even were able to diagnose me properly, much less give me any effective treatment. One doctor glared at me and said, "Nobody every died of pain. Just go home and get over it."

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If I had not been in such terrific pain I might have assaulted him. It got worse the next morning when I went in to the Clinic, at my mother's insistence, in the hope that the doctor assigned to my case might be willing to see me without an appointment. He actually did call me into his office where he spent half an hour berating and haranguing me for having dared to come to the great and famous Mayo Clinic and upsetting the divine balance of the Universe without an appointment.

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@ladyjane85

And I have had no relief at all from gabapentin - as is usual with most<br>meds. And it makes me drowsy all day and unable to sleep at<br>night. from ladyjane85<br><br>

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I have observed that what works for one person may not work for another. It seems to be mostly a process of trial and error - mostly error, it seems.

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I can definitely relate to that. My pain focuses primarily in my back. Meditation didn't help me. One thing, in case you haven't done it yet, that might help is finding a support group. The experiences of others can provide possibilities that might not have been suggested. However, what works for one may not work for you.

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Yes, I am really grateful that I found a sleep doctor who was able to give me back my sleep. I get 4 - 7 hours a night, but that is immensely better than nothing, which I was getting at my worst stage.

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My reply is to the post immediately above my reply. I wish it was possible to quote the question to which I am replying, but it seems the computer program is too basic to allow it.

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I'm sure you're grateful about that.How nice!i don't get any sometimes due 2 my pain.Challenging!I'm sure it's better than nothing!

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@colleenyoung

@disgusted What did you GP do that helped? What is your diagnosis?

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Can I ask,'Did you have 2 wait a long time for your diagnosis?'I don't remember how long I had 2 wait 4 that since it has been so long.

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How sad!I'm sorry.I've other types of pain besides the FM.So,it's challenging.Now,my chiro.'s office's a ways away since we moved recently.So,makes life sorta hard.I understand about meditating.I mean,4 anxiety.Sometimes I've 2 take med.4 it.Thx!

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@colleenyoung

@disgusted What did you GP do that helped? What is your diagnosis?

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This in reply to 1langla, who wrote - Can I ask,'Did you have 2 wait a long time for your diagnosis?'I don't remember how long I had 2 wait 4 that since it has been so long.

It took me about six months of agony, including three useless trips to Mayo Clinic, before I was diagnosed. Once I did find my doctor he got right on my case and had me diagnosed within a week.

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