Heat Intolerance: Symptom of Neuropathy?

Posted by kyc117 @kyc117, Sep 7 9:11am

So I am waiting to get my diagnosis, but does anyone else feel odd after being out in the heat for a period of time? I love gardening this weekend was watering for about 20 minutes in the sun. I just felt weird afterwards, symptoms I can't explain. Sweat will just roll down my face, this never happened with me before.I love to take hot showers and one time I felt somewhat ill afterwards. I just feel I can't be out in the heat anymore.

Liked by rwinney, sunnyflower

Hello @kyc117, You will notice I changed your discussion title a little so that members that have noticed the same symptoms can share their experience with you. I've always been sensitive to heat and sweating even before my neuropathy but I do notice that the Winter time bothers me the most with the cold temperatures affecting my legs. While we wait for other members to share their experience with heat intolerance and neuropathy, I did find an interesting article that discusses the topic.

"For example, some sensory nerve damage can cause patients to lose their senses of pain and temperature changes. This numbness can place patients at risk of contracting sunburn without being able to feel it. Other autonomic nerve symptoms may include heat intolerance and increased sweating.May 6, 2020"
— How Neuropathy Patients Can Manage the Return of Warm Weather: https://fapnewstoday.com/2020/05/06/neuropathy-warm-weather-hot/

You posted earlier that you had an EMG test and are waiting for results. Can you provide an update when you have a diagnosis?

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I too was out in the sun for about 40 minutes but I didn't feel uncomfortable. Then without warning, I felt I was starting to faint and get nauseous. My husband rushed to my side, put me in the car and was on the way to the ER. I was breathing heavily and fast.. heatstroke he said. We were not home but 40 min. from home. Before we got home, I was breathing all right, but still sick and headachy and chest pain. Is that what you suffered, kyc117? I think we may be more sensitive to the heat than we were before neuropathy.

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@kyc117 Hi. Sorry to hear you are experiencing difficulties with heat as a result of your neuropathy, I too have issues with the heat. I discovered it while I was cooking. Don’t forget we don’t have our full detection mechanisms(nerve cells) so our bodies are getting mixed signals and try to compensate. I too become sweaty and nauseous. Anytime I feel that way, constant deep breaths(like lamaze) seems to help me shortly before I take a break. Your body is telling you it can’t tolerate the conditions. I get the same feeling any time my body gets heated i.e. when I do housework like vacuum, or go outside. I plan my chores daily to make sure I get enough rest in between and not to over do it. Being here in Florida, I stay outdoors briefly(10 minutes) in the summer time and when I do I stay away from the sun. The rest of the months are fine for me especially winter. Luckily my husband likes cold temperatures too so we only turn on the heat in the winter for nights below freezing which rarely happens. I have 3 house rabbits which run loose in my living room. They prefer cold temperatures as well. I will be happy to answer any more questions. Best wishes to you!

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My thermostat is very off. I believe it's a combo of my diseases/conditions and medications. It's awful! Sorry you're going through this!!!!! Be well, Sunnyflower 😊

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@johnbishop

Hello @kyc117, You will notice I changed your discussion title a little so that members that have noticed the same symptoms can share their experience with you. I've always been sensitive to heat and sweating even before my neuropathy but I do notice that the Winter time bothers me the most with the cold temperatures affecting my legs. While we wait for other members to share their experience with heat intolerance and neuropathy, I did find an interesting article that discusses the topic.

"For example, some sensory nerve damage can cause patients to lose their senses of pain and temperature changes. This numbness can place patients at risk of contracting sunburn without being able to feel it. Other autonomic nerve symptoms may include heat intolerance and increased sweating.May 6, 2020"
— How Neuropathy Patients Can Manage the Return of Warm Weather: https://fapnewstoday.com/2020/05/06/neuropathy-warm-weather-hot/

You posted earlier that you had an EMG test and are waiting for results. Can you provide an update when you have a diagnosis?

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John, once again, you are a rockstar! You always have great resources. Thank you for your efforts!!! BTW, how does one begin a new discussion? I looked once and didn't see one on Neuropathy Medications. I would like to start one on CBD to tell others my experience w/ it which would be quite valuable and I have a great resource. I thought I had tried once but couldn't do it the other day. Would you please give me a step-by-step when time allows? Thanks so much and many, many blessings, Sunnyflower

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@avmcbellar

@kyc117 Hi. Sorry to hear you are experiencing difficulties with heat as a result of your neuropathy, I too have issues with the heat. I discovered it while I was cooking. Don’t forget we don’t have our full detection mechanisms(nerve cells) so our bodies are getting mixed signals and try to compensate. I too become sweaty and nauseous. Anytime I feel that way, constant deep breaths(like lamaze) seems to help me shortly before I take a break. Your body is telling you it can’t tolerate the conditions. I get the same feeling any time my body gets heated i.e. when I do housework like vacuum, or go outside. I plan my chores daily to make sure I get enough rest in between and not to over do it. Being here in Florida, I stay outdoors briefly(10 minutes) in the summer time and when I do I stay away from the sun. The rest of the months are fine for me especially winter. Luckily my husband likes cold temperatures too so we only turn on the heat in the winter for nights below freezing which rarely happens. I have 3 house rabbits which run loose in my living room. They prefer cold temperatures as well. I will be happy to answer any more questions. Best wishes to you!

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avmcbellar, I am so sorry to hear what you are going through w/ the heat!!!!! That must be a drag and a half, especially living in Florida! But even cooking would be horrible! I hope this is a transient thing and completely goes away. One can hope and pray so that's what I'll do. Warmest regards, Sunnyflower 😊

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@sunnyflower

John, once again, you are a rockstar! You always have great resources. Thank you for your efforts!!! BTW, how does one begin a new discussion? I looked once and didn't see one on Neuropathy Medications. I would like to start one on CBD to tell others my experience w/ it which would be quite valuable and I have a great resource. I thought I had tried once but couldn't do it the other day. Would you please give me a step-by-step when time allows? Thanks so much and many, many blessings, Sunnyflower

Jump to this post

Hi @sunnyflower, You did start a discussion on Neuropathy Medications here: https://connect.mayoclinic.org/discussion/neuropathy-medications/. There are many discussions on CBD that you may be interested in reading and posting any questions…

— CBD oil for pain: https://connect.mayoclinic.org/discussion/cbd/
— CBD Oil for Anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-3/
— CBD oil and depression/anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-and-depression-anxiety/
— CBD Oil: https://connect.mayoclinic.org/discussion/cbd-oil-2/

How to Start a New Discussion — https://connect.mayoclinic.org/get-started-on-connect/#start-new-discussion

Hope you are having a good day!

Liked by HankB, sunnyflower

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@johnbishop

Hi @sunnyflower, You did start a discussion on Neuropathy Medications here: https://connect.mayoclinic.org/discussion/neuropathy-medications/. There are many discussions on CBD that you may be interested in reading and posting any questions…

— CBD oil for pain: https://connect.mayoclinic.org/discussion/cbd/
— CBD Oil for Anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-3/
— CBD oil and depression/anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-and-depression-anxiety/
— CBD Oil: https://connect.mayoclinic.org/discussion/cbd-oil-2/

How to Start a New Discussion — https://connect.mayoclinic.org/get-started-on-connect/#start-new-discussion

Hope you are having a good day!

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Thanks John. I'm so uniquely talented that I have problems just getting to the main Connect home page! I KNOW it's the Gabapentin that is doing this to my brain! I thought I had started a new conversation but couldn't remeber how and I couldn't find it! John I would be lost without you here on Connect! You are very patient with me and it means the world to me! I wish the very best for you John, I really do! Many blessings, Sunnyflower 😊

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@sunnyflower

Thanks John. I'm so uniquely talented that I have problems just getting to the main Connect home page! I KNOW it's the Gabapentin that is doing this to my brain! I thought I had started a new conversation but couldn't remeber how and I couldn't find it! John I would be lost without you here on Connect! You are very patient with me and it means the world to me! I wish the very best for you John, I really do! Many blessings, Sunnyflower 😊

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Aww…thanks @sunnyflower 🤗

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@sunnyflower

avmcbellar, I am so sorry to hear what you are going through w/ the heat!!!!! That must be a drag and a half, especially living in Florida! But even cooking would be horrible! I hope this is a transient thing and completely goes away. One can hope and pray so that's what I'll do. Warmest regards, Sunnyflower 😊

Jump to this post

@sunnyflower thank you for the prayers and well wishes. The disability has certainly been an eye opener. Throughout all my life, I have been a person to help others especially the elderly. Now I understand more about health issues and can offer people help through my experiences. Wish you well!

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@johnbishop

Hi @sunnyflower, You did start a discussion on Neuropathy Medications here: https://connect.mayoclinic.org/discussion/neuropathy-medications/. There are many discussions on CBD that you may be interested in reading and posting any questions…

— CBD oil for pain: https://connect.mayoclinic.org/discussion/cbd/
— CBD Oil for Anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-3/
— CBD oil and depression/anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-and-depression-anxiety/
— CBD Oil: https://connect.mayoclinic.org/discussion/cbd-oil-2/

How to Start a New Discussion — https://connect.mayoclinic.org/get-started-on-connect/#start-new-discussion

Hope you are having a good day!

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Hi John, I used CBD for about a year and a half under the Tx plan of Dr. Alan Frankel. I made my own caps. I want to tell my experience so will asap. Hope you're well and on top of your pain. All the best, Sunnyflower

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@johnbishop

Hi @sunnyflower, You did start a discussion on Neuropathy Medications here: https://connect.mayoclinic.org/discussion/neuropathy-medications/. There are many discussions on CBD that you may be interested in reading and posting any questions…

— CBD oil for pain: https://connect.mayoclinic.org/discussion/cbd/
— CBD Oil for Anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-3/
— CBD oil and depression/anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-and-depression-anxiety/
— CBD Oil: https://connect.mayoclinic.org/discussion/cbd-oil-2/

How to Start a New Discussion — https://connect.mayoclinic.org/get-started-on-connect/#start-new-discussion

Hope you are having a good day!

Jump to this post

John, I followed your links but do not see where I can start a new discussion. I know how now but don't see the option. The only option I see is to reply to a post on the Neuropathy Medications CBD posts. I don't see the little reddish field that the tutorial instructed to click on. Help! Thanks, Sunny

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@sunnyflower

John, I followed your links but do not see where I can start a new discussion. I know how now but don't see the option. The only option I see is to reply to a post on the Neuropathy Medications CBD posts. I don't see the little reddish field that the tutorial instructed to click on. Help! Thanks, Sunny

Jump to this post

Hi @sunnyflower — Scroll to the top of any discussion and click the group link. That takes you to the list of all of the discussions within a group. If this is the group that you want to create a new discussion under then click the START A DISCUSSION button under the group description. If you want to start a discussion in a different group, go to the Groups link at the top of any Connect page and select Group Directory to locate the group where you want to start a new discussion. Easy peasy, right? 🙂

Capture

Capture2

Liked by HankB, sunnyflower

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@johnbishop

Hi @sunnyflower — Scroll to the top of any discussion and click the group link. That takes you to the list of all of the discussions within a group. If this is the group that you want to create a new discussion under then click the START A DISCUSSION button under the group description. If you want to start a discussion in a different group, go to the Groups link at the top of any Connect page and select Group Directory to locate the group where you want to start a new discussion. Easy peasy, right? 🙂

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John, sit down. I actually got it! My phone however, does not have the capability. Moral of story, use my tablet. Now, I have to see if I can begin a new discussion in the subject I want such as CBD. Oy. Hope you're having a good day and that your eyes aren't burning from being online so often. How many hours and days would you say you're on Connect? I'm on way more than I should be for my eyes, body parts and time but am compelled to answer folks, welcome newbys, etc. I've had to cut back on that and know I'm behind on new people and a lot of people's stories. I feel awful about it but I really have to. Do you have any tips or suggestions for me as to achieve a good balance on a blog? I'm so new at this. Thanks so much John, you are the best! Blessings, Sunnyflower

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@johnbishop

Hi @sunnyflower, You did start a discussion on Neuropathy Medications here: https://connect.mayoclinic.org/discussion/neuropathy-medications/. There are many discussions on CBD that you may be interested in reading and posting any questions…

— CBD oil for pain: https://connect.mayoclinic.org/discussion/cbd/
— CBD Oil for Anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-3/
— CBD oil and depression/anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-and-depression-anxiety/
— CBD Oil: https://connect.mayoclinic.org/discussion/cbd-oil-2/

How to Start a New Discussion — https://connect.mayoclinic.org/get-started-on-connect/#start-new-discussion

Hope you are having a good day!

Jump to this post

John, I went to the CBD oil for pain link. I don't see how to start a new discussion from there other than to scroll down and reply somewhere in the discussion thread that is already going on. Is this correct? Just try to pick one of the posts and reply? Thanks and sorry to have to ask another question.

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