Heat Intolerance: Symptom of Neuropathy?

Posted by kyc117 @kyc117, Sep 7, 2020

So I am waiting to get my diagnosis, but does anyone else feel odd after being out in the heat for a period of time? I love gardening this weekend was watering for about 20 minutes in the sun. I just felt weird afterwards, symptoms I can't explain. Sweat will just roll down my face, this never happened with me before.I love to take hot showers and one time I felt somewhat ill afterwards. I just feel I can't be out in the heat anymore.

@sunnyflower

John, I followed your links but do not see where I can start a new discussion. I know how now but don't see the option. The only option I see is to reply to a post on the Neuropathy Medications CBD posts. I don't see the little reddish field that the tutorial instructed to click on. Help! Thanks, Sunny

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Hi @sunnyflower — Scroll to the top of any discussion and click the group link. That takes you to the list of all of the discussions within a group. If this is the group that you want to create a new discussion under then click the START A DISCUSSION button under the group description. If you want to start a discussion in a different group, go to the Groups link at the top of any Connect page and select Group Directory to locate the group where you want to start a new discussion. Easy peasy, right? 🙂

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@johnbishop

Hi @sunnyflower — Scroll to the top of any discussion and click the group link. That takes you to the list of all of the discussions within a group. If this is the group that you want to create a new discussion under then click the START A DISCUSSION button under the group description. If you want to start a discussion in a different group, go to the Groups link at the top of any Connect page and select Group Directory to locate the group where you want to start a new discussion. Easy peasy, right? 🙂

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John, sit down. I actually got it! My phone however, does not have the capability. Moral of story, use my tablet. Now, I have to see if I can begin a new discussion in the subject I want such as CBD. Oy. Hope you're having a good day and that your eyes aren't burning from being online so often. How many hours and days would you say you're on Connect? I'm on way more than I should be for my eyes, body parts and time but am compelled to answer folks, welcome newbys, etc. I've had to cut back on that and know I'm behind on new people and a lot of people's stories. I feel awful about it but I really have to. Do you have any tips or suggestions for me as to achieve a good balance on a blog? I'm so new at this. Thanks so much John, you are the best! Blessings, Sunnyflower

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@johnbishop

Hi @sunnyflower, You did start a discussion on Neuropathy Medications here: https://connect.mayoclinic.org/discussion/neuropathy-medications/. There are many discussions on CBD that you may be interested in reading and posting any questions…

— CBD oil for pain: https://connect.mayoclinic.org/discussion/cbd/
— CBD Oil for Anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-3/
— CBD oil and depression/anxiety: https://connect.mayoclinic.org/discussion/cbd-oil-and-depression-anxiety/
— CBD Oil: https://connect.mayoclinic.org/discussion/cbd-oil-2/

How to Start a New Discussion — https://connect.mayoclinic.org/get-started-on-connect/#start-new-discussion

Hope you are having a good day!

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John, I went to the CBD oil for pain link. I don't see how to start a new discussion from there other than to scroll down and reply somewhere in the discussion thread that is already going on. Is this correct? Just try to pick one of the posts and reply? Thanks and sorry to have to ask another question.

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@sunnyflower

John, sit down. I actually got it! My phone however, does not have the capability. Moral of story, use my tablet. Now, I have to see if I can begin a new discussion in the subject I want such as CBD. Oy. Hope you're having a good day and that your eyes aren't burning from being online so often. How many hours and days would you say you're on Connect? I'm on way more than I should be for my eyes, body parts and time but am compelled to answer folks, welcome newbys, etc. I've had to cut back on that and know I'm behind on new people and a lot of people's stories. I feel awful about it but I really have to. Do you have any tips or suggestions for me as to achieve a good balance on a blog? I'm so new at this. Thanks so much John, you are the best! Blessings, Sunnyflower

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Tips, suggestions 🙂 I read Connect posts on my phone but that's about it. All my other Connect work is done on a computer, it's much easier. A tablet probably wouldn't be too bad if you had an attached keyboard. I have an iPad with a keyboard which works OK but a computer is still better hands down.

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@sunnyflower

John, I went to the CBD oil for pain link. I don't see how to start a new discussion from there other than to scroll down and reply somewhere in the discussion thread that is already going on. Is this correct? Just try to pick one of the posts and reply? Thanks and sorry to have to ask another question.

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Hi @sunnyflower, you can't create a discussion within a discussion. You have to go to a Groups main page where it lists all of the discussions within the specific group like Neuropathy, Chronic Pain, etc. Here's the Groups Directory page – https://connect.mayoclinic.org/groups/. Also, it's probably a good idea to look through the list of groups to make sure you aren't creating a duplicate which will make it more confusing and harder to bring everyone together for a single topic.

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@johnbishop

Tips, suggestions 🙂 I read Connect posts on my phone but that's about it. All my other Connect work is done on a computer, it's much easier. A tablet probably wouldn't be too bad if you had an attached keyboard. I have an iPad with a keyboard which works OK but a computer is still better hands down.

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Thx John. I'm in bed so much that my computer, Gladys, is too heavy and takes up my entire bed tray. My MS Surface Tablet, Mildred, is what I use mostly. But, the tip I was mainly talking about is how to achieve a balance on the blog. I have come to recognize I can't be as active as I want and need to quit worrying that I'm neglecting anyone or their posts. It's impossible not to! Again, trying to be perfect. That gets me in so much trouble! I'm just compelled to fluff up everyone's world and make them feel validated, cared about and comforted. My limitations are so great. I have to RELINQUISH. Maybe this should be in the mental health section. Oh my. So yes, if you have any tips that way, b/c you are really present for everyone, please send them my way! Balance on a blog that is. Again, thanks so much John. Your input is so valuable. Forgive if you've already commented on this aspect of my request. I've heard I'm getting quite a few emails since beginning to type this. Talk later, Sunnyflower

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@johnbishop

Hi @sunnyflower, you can't create a discussion within a discussion. You have to go to a Groups main page where it lists all of the discussions within the specific group like Neuropathy, Chronic Pain, etc. Here's the Groups Directory page – https://connect.mayoclinic.org/groups/. Also, it's probably a good idea to look through the list of groups to make sure you aren't creating a duplicate which will make it more confusing and harder to bring everyone together for a single topic.

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Yes, I get that and agree. However, I don't know where to post my experience w/ CBD. I do not see an option to begin a new discussion in the existing thread of posts. That appears to be my only option. To pick a post that is closest to what I would say. Yes??? Sunnyflower

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@sunnyflower

Thx John. I'm in bed so much that my computer, Gladys, is too heavy and takes up my entire bed tray. My MS Surface Tablet, Mildred, is what I use mostly. But, the tip I was mainly talking about is how to achieve a balance on the blog. I have come to recognize I can't be as active as I want and need to quit worrying that I'm neglecting anyone or their posts. It's impossible not to! Again, trying to be perfect. That gets me in so much trouble! I'm just compelled to fluff up everyone's world and make them feel validated, cared about and comforted. My limitations are so great. I have to RELINQUISH. Maybe this should be in the mental health section. Oh my. So yes, if you have any tips that way, b/c you are really present for everyone, please send them my way! Balance on a blog that is. Again, thanks so much John. Your input is so valuable. Forgive if you've already commented on this aspect of my request. I've heard I'm getting quite a few emails since beginning to type this. Talk later, Sunnyflower

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In my 30 years of mgt I learned a mantra I tried to live by. Assume Good Intent. If someone doesn’t respond (or whatever the scenario might be is) I reach out again with good intent. Who knows what anyone might be going through in there lives. Thanks for trying to achieve the best you you can be!

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@johnbishop

Hello @kyc117, You will notice I changed your discussion title a little so that members that have noticed the same symptoms can share their experience with you. I've always been sensitive to heat and sweating even before my neuropathy but I do notice that the Winter time bothers me the most with the cold temperatures affecting my legs. While we wait for other members to share their experience with heat intolerance and neuropathy, I did find an interesting article that discusses the topic.

"For example, some sensory nerve damage can cause patients to lose their senses of pain and temperature changes. This numbness can place patients at risk of contracting sunburn without being able to feel it. Other autonomic nerve symptoms may include heat intolerance and increased sweating.May 6, 2020"
— How Neuropathy Patients Can Manage the Return of Warm Weather: https://fapnewstoday.com/2020/05/06/neuropathy-warm-weather-hot/

You posted earlier that you had an EMG test and are waiting for results. Can you provide an update when you have a diagnosis?

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Thank you so much John, I will do that and thank you for the article.

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@maryflorida

I too was out in the sun for about 40 minutes but I didn't feel uncomfortable. Then without warning, I felt I was starting to faint and get nauseous. My husband rushed to my side, put me in the car and was on the way to the ER. I was breathing heavily and fast.. heatstroke he said. We were not home but 40 min. from home. Before we got home, I was breathing all right, but still sick and headachy and chest pain. Is that what you suffered, kyc117? I think we may be more sensitive to the heat than we were before neuropathy.

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I do feel a bit nauseous and slightly dizzy, none of the breathing heavy though. I just have to lay down for a bit and then feel better. Thank you for responding.

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@avmcbellar

@kyc117 Hi. Sorry to hear you are experiencing difficulties with heat as a result of your neuropathy, I too have issues with the heat. I discovered it while I was cooking. Don’t forget we don’t have our full detection mechanisms(nerve cells) so our bodies are getting mixed signals and try to compensate. I too become sweaty and nauseous. Anytime I feel that way, constant deep breaths(like lamaze) seems to help me shortly before I take a break. Your body is telling you it can’t tolerate the conditions. I get the same feeling any time my body gets heated i.e. when I do housework like vacuum, or go outside. I plan my chores daily to make sure I get enough rest in between and not to over do it. Being here in Florida, I stay outdoors briefly(10 minutes) in the summer time and when I do I stay away from the sun. The rest of the months are fine for me especially winter. Luckily my husband likes cold temperatures too so we only turn on the heat in the winter for nights below freezing which rarely happens. I have 3 house rabbits which run loose in my living room. They prefer cold temperatures as well. I will be happy to answer any more questions. Best wishes to you!

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That must be hard to deal with in Florida! I’m from northwest Indiana, so it will be cooling off very soon. Thanks so much!

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@sunnyflower

Thx John. I'm in bed so much that my computer, Gladys, is too heavy and takes up my entire bed tray. My MS Surface Tablet, Mildred, is what I use mostly. But, the tip I was mainly talking about is how to achieve a balance on the blog. I have come to recognize I can't be as active as I want and need to quit worrying that I'm neglecting anyone or their posts. It's impossible not to! Again, trying to be perfect. That gets me in so much trouble! I'm just compelled to fluff up everyone's world and make them feel validated, cared about and comforted. My limitations are so great. I have to RELINQUISH. Maybe this should be in the mental health section. Oh my. So yes, if you have any tips that way, b/c you are really present for everyone, please send them my way! Balance on a blog that is. Again, thanks so much John. Your input is so valuable. Forgive if you've already commented on this aspect of my request. I've heard I'm getting quite a few emails since beginning to type this. Talk later, Sunnyflower

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@sunnyflower
Sunny, I have the same problem. There are way more lovable people here than there are hours in the day.

I am trying to organize my time here on Connect. Here is what I think I want to do:

1. Schedule a certain time (or set of different times) each day to do Connect. Try to stick to those times if possible.
2. Try to get to the point a little quicker. That is HARD.
3. Follow @bustrbrwn22 brown's extremely wise advice, "Assume Good Intent". And do not feel others are assuming anything different about me. If I don't get to everyone's posts, I don't. It's all in God's hands, not ours, ultimately.
4. Oh and here is a REALLY good one: don't respond to a post until I have read the responses other people have already written to that post. Good chance someone else has already given a great answer to that person and there is no need for me to.

OK, not going to let myself write another book. Maybe my list will help you, I sure hope it helps me!

Best to you Sunny, Hank

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