I would like to hear from others who were on the waiting list for a donor heart to find out how long you waited before a Heart was available?
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Because I was waiting for a heart and a liver, my waiting time was more complicated, and I waited amost 2 years. Had it been a heart only, I think the waiting time would have been approximately 6-9 months. Be sure to ask your docs what your STATUS is; that is a key indicator.
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Thank you for contacting me. I’m still waiting for a heart. I am at home on Milranone 24/7 so I am stable. I understand they don’t want to admit me until I go downhill but the waiting can be a hassle as well. Into month 6 of the wait.
i'm surprised they haven't put you on viagra (no kidding here)! I imagine you have a pump at home. Do you live close to Mayo?
Don't be downcast about waiting for a heart. Mayo is extremely picky about the hearts they accept. I guess that's a good thing. If worst comes to worst they would put an LVAD (Left ventricular devise) in you. If it's the right side that is failing- I would myself stay away from the RVAD's.
Hang in there!
Danny- I have to wonder if I took care of you!! I’m glad you are doing well. Hugs to you!
I have a Bard ambulatory infusion pump, which runs on AA batteries so I can still get around. I am knowledgable of VAD’s since I spent 35 years selling to CVS and cardiologists. I will contact you by your email.
You can find wait times available on the SRTR website here:
I was on the list 1 month and when i relocated to Jacksonville i got my call in 4 days that was 8 yrs ago but not everyone is the same
Thanks for your response. I received my gift in June 22nd. This year at Mayo Jacksonville. I waited 1 year with 1 month in the hospital.
Congrats to you and good luck
My nephew waited from oct to feb
It has been over 5 yrs. and is doing great
He was about 50 yrs. old when he rec. it
I had my transplant 5/23/12 I was on the list for 1 month to the day.
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