1. < Heart Rhythm Conditions

Heart Rhythm Conditions – Welcome to the group

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Feb 14, 2018

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

ronbee | @ronbee | Apr 29, 2018
In reply to @anniegk "I have had irregular heartbeat on and off since i was in my late 20's. Iam..." + (show)
@anniegk

I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.

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Get a new doctor.

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kenny48 | @kenny48 | Apr 30, 2018
In reply to @anniegk "I have had irregular heartbeat on and off since i was in my late 20's. Iam..." + (show)
@anniegk

I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.

Jump to this post

My experience is similar to yours. Doctors say " just don't let it bother you". It's hard to do that when you feel like you are about to keel over. If I walk, they almost always stop. I just noticed yesterday, that if I take both hands and press on my abdomen just below my ribs, they also stop. Have no idea what that's all about.

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miamom | @miamom | Apr 30, 2018
In reply to @anniegk "I have had irregular heartbeat on and off since i was in my late 20's. Iam..." + (show)
@anniegk

I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.

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Similar response on my end. "They're just benign palpitations", and the cardiologists covered under my insurance plan won't even see me. They're reviewed my echo, stress test, blood work and a 2 day holter monitor (which kept becoming unattached but did show some episodes of bradycardia and tachycardia). When I asked to consult with one of them, just for peace of mind (and to pay for it with my private insurance), they would not allow me to have an appointment with them saying, "they're just benign palpitations". Poor patient care, in my opinion. And, it sounds like it's not uncommon care, unfortunately....

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mommabyrd | @mommabyrd | Apr 30, 2018
In reply to @anniegk "I have had irregular heartbeat on and off since i was in my late 20's. Iam..." + (show)
@anniegk

I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.

Jump to this post

Maybe if several doctors experienced what we experience, they would be more serious about research to get answers. Thanks for the tip to press just below the ribs during an episode. Worth the try.

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Karenatmayo | @karenatmayo | Apr 30, 2018
In reply to @anniegk "I have had irregular heartbeat on and off since i was in my late 20's. Iam..." + (show)
@anniegk

I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.

Jump to this post

I notice that exercise and taking walks can temporarily relieve pvcs, even after going up 16 stairs. I am out of breath but pulse is regular after that for a while. My cardiologist is very sympathetic and listens to me. I will try the abdomen thing!

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anniegk | @anniegk | Apr 30, 2018
In reply to @anniegk "I have had irregular heartbeat on and off since i was in my late 20's. Iam..." + (show)
@anniegk

I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.

Jump to this post

Iam going to try the abdomen thing. Do you find when you are getting the palps that you have trouble getting a deep breath?

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jeannieg7 | @jeannieg7 | Apr 30, 2018
In reply to @jamienolson "Hello @jeannieg7 and @mommabyrd. Welcome to Mayo Clinic Connect! Thank you for posting! Jeannie, has the..." + (show)
@jamienolson

Hello @jeannieg7 and @mommabyrd. Welcome to Mayo Clinic Connect! Thank you for posting!

Jeannie, has the yoga and meditation helped? And Sonja, how are you controlling the blackouts?

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I am going to start & will keep you posted

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kenny48 | @kenny48 | Apr 30, 2018
In reply to @anniegk "I have had irregular heartbeat on and off since i was in my late 20's. Iam..." + (show)
@anniegk

I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.

Jump to this post

When I get my palps every other beat, then I feel a bit winded. It's more like an adrenalin rush for me. I feel it in my shoulders and the top of my head.

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anniegk | @anniegk | Apr 30, 2018

I am not winded but i keep trying to get a deep breath...does that make sense?

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1 reply
jigglejaws94 | @jigglejaws94 | Apr 30, 2018
In reply to @anniegk "I am not winded but i keep trying to get a deep breath...does that make sense?" + (show)
@anniegk

I am not winded but i keep trying to get a deep breath...does that make sense?

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That makes total sense to me. I've experienced that. Just wanting to get a deep breath and then not being able to.

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