HCM and Head rush sensations
Hi-I am new to the HCM/HOCM diagnosis. Just wondering if anyone experiences headrush sensations or pressure in head on exertion?? Should I be concerned or is this normal? Didnt used to experience this. Any input would be appreciated.
Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
My dizziness occurs when putting on glasses and reading. I have had many tests without results.
Recently diagnosed with AHCM. Have appt. at Mayo Sept. Have lightheadedness off and on. Is this dangerous before my appt. in Sept. Am 78 and thought I was in excellent health. This was a total shock. Walk about 3 miles a day and do anything I want to do. Was having palpitations and wanted it checked out. After ekg, holter, echo and mri, was diagnosed with AHCM. Was lucky enough to be able to head to Mayo, but the waiting is difficult.
Welcome, @emo44. I'm excited for you that you have an appointment for apical hypertrophic cardiomyopathy in September.
I moved your question about feeling lightheaded off and on and your concern about this being dangerous to this existing discussion:
– HCM and Head rush sensations https://connect.mayoclinic.org/discussion/head-rush-sensations/
I did this so you can read what others have posted and connect with members like @Sensation @onewholovesrock @mistymopps3 @sheim @rrowner2 @angiev18 @archer and more.
If this symptom of lightheadedness is new and concerns you, you may wish to contact Mayo Clinic through the patient portal. Have you created an account on the portal called Patient Online Services?
I have not created an account on Patient Online Services yet. I tried to do that, but have not yet received the information I need from Mayo. Will do as soon as I can.
Don't hesitate to contact Concierge Services if you need help setting up your account. They will walk you through it. https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
They can also help you prepare for your visit to Mayo in September. Also check out the discussions in the Visiting Mayo Clinic group here: https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/
If you need answers about the lightheadedness, don't hesitate to contact your cardiac team as we wait to hear from others on the forum.