Hi-I am new to the HCM/HOCM diagnosis. Just wondering if anyone experiences headrush sensations or pressure in head on exertion?? Should I be concerned or is this normal? Didnt used to experience this. Any input would be appreciated.
Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) group.
My husband experiences dizziness (like. Vertigo) and shortness of breath during exertion
I had a lot of that before finding out I had HCM. Dr's thought it was vertigo….I thought it was low blood pressure. Tests showed I did NOT have vertigo. Once diagnosed with HOCM I did a TON of reading….as you probably will. Disopyramide did help some but over all did not ….resulting in the Myectomy.
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My husband had dizziness on exertion which led to syncope (we live at 4500 ft ) for a few months prior to surgery and on max dose of drugs eg Disopyramide and Atenolol he was not allowed to go out for a walk by himself, surgery made an amazing difference. Wishing you all the very best
I just saw your post. I was recently diagnosed with HOCM and I was very active before January 14, 2020. I experience dizziness, ringing in ears, legs get wobbly, HR and Blood pressure goes up and down for hours and I feel as if I'm on a roller coaster ride and it makes me feel like having motion sickness. Medications are not working and now discussing Septum myectomy to relieve symptoms. Are my symptoms similar to anyone else's?
Yes. I was dizzy, had palpations sometimes, short of breath, pressure and pain in my chest, felt really crappy if dehydrated a bit and seemed to get worse after a meal or when I laid down. Got the myectomy and feel much better . Don't feel 100%, but feel better than before. Had a significant murmur before and now my cardiologist said the murmur is hardly noticable now.
Thanks for replying. How many times a day did you feel dizzy, SOB, pain in chest, etc? What did you do to relieve symptoms? How long did you suffer with symptoms before having surgery? What foods would you recommend to avoid having worsening of symptoms? Sorry so many questions but have nobody to ask and have been dealing with symptoms for 4.5 months and my local doctors haven't a clue what I am even talking about. They refer to them as episodes. " Are you still having episodes they will ask. Maybe you are just anxious, stressed today". I try to explain, can happen anywhere, anytime. So glad you have relief. Gives me hope!!
—My symptoms are the same as badmac's. But they are intermittent. The slight chest pain is almost daily, and dizziness is several times per week. Lying on my back has now become very uncomfortable. Worst for me is increasing fatigue; great energy in the morning, but sapped in the afternoon. Even in the morning, any project becomes tiring after a short while. My meds — metoprolol and losartan — do help, but not as well as earlier. It seems the essential one, metoprolol, should be increased (currently 50mg morn and 50mg evening). BTW, does anyone take more than this? With good results?
—Another point, my symptoms seem to appear a few days after a heavy meal that includes some drinking. Alcohol is surely a factor.
I am currently on Metoprolol 100 mg twice a day and Cardizem 360 mg once a day. I experience dizziness, feel lightheaded, like a head rush of getting off a carnival ride, legs wobbly legs, shaky. Sometimes will last an hour send a half or so after eating meals. There are days, like yesterday, where these symptoms lasted four over 5 hours. I have started writing down everything I eat to see if my diet is causing symptoms to last longer and take over my day and me. Before being diagnosed with HOCM in January 2020, I always enjoyed a glass of red wine a couple times a week but have not had any alcohol since then, mostly due to fear of an episode of symptoms could come anytime and supposed to avoid alcohol with metoprolol ( which interacts with many, many things) and being on blood thinner for A- fib is not recommended due to alcohol will make blood thin also. Would love to hear what others have for breakfast, lunch, and dinner that lessens symptoms. Also, while having symptoms what do you do during them that helps? How does your family handle things when you ate not feeling well?
My dizziness occurs when putting on glasses and reading. I have had many tests without results.
Recently diagnosed with AHCM. Have appt. at Mayo Sept. Have lightheadedness off and on. Is this dangerous before my appt. in Sept. Am 78 and thought I was in excellent health. This was a total shock. Walk about 3 miles a day and do anything I want to do. Was having palpitations and wanted it checked out. After ekg, holter, echo and mri, was diagnosed with AHCM. Was lucky enough to be able to head to Mayo, but the waiting is difficult.
Welcome, @emo44. I'm excited for you that you have an appointment for apical hypertrophic cardiomyopathy in September.
I moved your question about feeling lightheaded off and on and your concern about this being dangerous to this existing discussion:
– HCM and Head rush sensations https://connect.mayoclinic.org/discussion/head-rush-sensations/
I did this so you can read what others have posted and connect with members like @Sensation @onewholovesrock @mistymopps3 @sheim @rrowner2 @angiev18 @archer and more.
If this symptom of lightheadedness is new and concerns you, you may wish to contact Mayo Clinic through the patient portal. Have you created an account on the portal called Patient Online Services?
I have not created an account on Patient Online Services yet. I tried to do that, but have not yet received the information I need from Mayo. Will do as soon as I can.
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