HCM-ers: Introduce yourself or just say hi

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for bbonchek @bbonchek

A small specialty group in Indiana
Midwest Center for Joint Replacement
There are many good docs that work from big hospitals
I just had a septal myectomy at Cleveland Clinic
You may want to go somewhere like that
I would love to personally talk to you if you want

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Ps I am from southern Indiana

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Profile picture for riderwayne @riderwayne

Thank you. Where did you get yours done?

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A small specialty group in Indiana
Midwest Center for Joint Replacement
There are many good docs that work from big hospitals
I just had a septal myectomy at Cleveland Clinic
You may want to go somewhere like that
I would love to personally talk to you if you want

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Profile picture for bbonchek @bbonchek

Hi Wayne
I have HOCM and had a total knee replacement in august 2018. My docs knew of my heart condition and my surgery was in a larger hospital with good cardiac support.
All went well.
I was very glad to get it done and out of the way
Good luck

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Thank you. Where did you get yours done?

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Profile picture for Debra, Volunteer Mentor @karukgirl

Thank you for sharing your story. I'm happy your husband is doing so well. It's encouraging to hear these stories and have the benefit of being able to "look back", hindsight I suppose, and help others who now face what you have already gone through. I have read about how common depression is in recovery, and glad it didn't last long. I suppose it's helpful to know all the things, good and bad, that go along with something so major. Thank you for sharing. I appreciate the information. Best regards

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Thank you, you will get lots of support from this group so stay in touch. Take care
Maureen

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Profile picture for rrowner2 @rrowner2

Hi there, My husband had septal myectomy at Mayo in Rochester Dr Schaff was his surgeon. He was diagnosed with HCM at 43 and was 74 when he had the surgery. Despite the ever increasing symptoms was still quite active. Earlier in the year he had a complete heart block and had a pacemaker/ defibrillator implanted, his HCM became obstructive to the point of several episodes of syncope. His cardiologist in San Diego recommended Mayo but we had done lots of research so Rochester it was.
His surgery went well was in hospital for 4 days traveling home 2 days later.
I think he will now acknowledge how sick he was and how amazing he has felt since.
I’m a former nurse so was worried about his recuperation, but he was fine took about 6 weeks to resume normalcy.
One thing I don’t see mentioned on this site is the emotional effect of open heart surgery my husband had several days of depression so be aware and get help for that.
Wishing you all the positive thoughts in the world
Maureen

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Thank you for sharing your story. I'm happy your husband is doing so well. It's encouraging to hear these stories and have the benefit of being able to "look back", hindsight I suppose, and help others who now face what you have already gone through. I have read about how common depression is in recovery, and glad it didn't last long. I suppose it's helpful to know all the things, good and bad, that go along with something so major. Thank you for sharing. I appreciate the information. Best regards

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Profile picture for riderwayne @riderwayne

Hi Wayne here .I live in Ontario Canada and have HCM. So happy I found you and feel I have people I can relate to. I am in need of a total knee replacement and Dr.s are worrying me with the risks.

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Hi Wayne
I have HOCM and had a total knee replacement in august 2018. My docs knew of my heart condition and my surgery was in a larger hospital with good cardiac support.
All went well.
I was very glad to get it done and out of the way
Good luck

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Hi Wayne here .I live in Ontario Canada and have HCM. So happy I found you and feel I have people I can relate to. I am in need of a total knee replacement and Dr.s are worrying me with the risks.

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Hello @janemiracle,

I moved your message to this discussion so that people could read more of your post to help with your question about insurance. Simply click VIEW & REPLY in your email notification to find your post.

At most U.S. universities, health insurance specialists are usually available to advise students about their options. Health insurance policies and costs can vary quite a lot, and requirements may also depend on your daughter’s visa category.
Here is an article with some more information: https://www.usnews.com/education/best-colleges/articles/2019-02-12/what-international-students-should-know-about-health-insurance-in-the-us

@janemiracle, when was your daughter diagnosed? How has she been managing her condition?

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Profile picture for jmiracle @janemiracle

My daughter diagnosed with HOCM wants to do masters in the US during 2021. What is the kind of medical insurance would she need ? I hear that the medical insurance does not cover existing illness. Can some one advice please ?

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Most universities offer health insurance for international students. You need to get a copy of the policy and read its limits, including the amount of deductibles, copays, and what is covered and not covered, including pre existing conditions. Please do not rely on what a college admissions officer says. The insurance policy is a contract and will control what is covered. Each policy is different. Welcome to the US, where health insurance and care is a nightmare!!

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My daughter diagnosed with HOCM wants to do masters in the US during 2021. What is the kind of medical insurance would she need ? I hear that the medical insurance does not cover existing illness. Can some one advice please ?

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