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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (779)Comment receiving replies
Hi everyone,
I’m a 56 yo woman living in BC Canada. I have had symptoms since my mid 20’s and in my 30’s finally had a Doc that asked for an ultrasound but nothing showed up. Then decades of worsening symptoms and episodes with visits to the ER and finally called Telus Health and told them I needed a referral to a cardiologist. When I was diagnosed I was happy to get confirmation that it wasn’t all in my head. Now the hard work starts… I have pretty severe symptoms now and going to try Camzyos starting next week. Any advice for me?
Replies to "Hi everyone, I’m a 56 yo woman living in BC Canada. I have had symptoms since..."
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Welcome @avcowie! You will find a lot of information about HOCM here. I see that you are already off to a good start in the Camzyos discussions. That's great, because there are fellow HOCM folks and fellow Canadians there too! I see you asked a question too about mitral valve involvement. It sounds like you were caught off guard during that visit. Do you know what your next steps are? It is super important that you are being followed by an HCM expert, do you know if your cardiologist is skilled in HCM? Is your plan now to try Camzyos, no surgery?